Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Last active: Aug 16, 2024
Discussion
PMR and Fatigue. Interesting study
Lots of threads on here to the question of fatigue. I know I suffer from it. It is well documented that steroids can cause fatigue...
Last active: Sep 27, 2024
Discussion
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Last active: Mar 13, 2024
Discussion
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Last active: Jun 14, 2024
Discussion
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Last active: May 10, 2024
Discussion
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Last active: Dec 12, 2023
Discussion
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Last active: Jun 27, 2023
Discussion
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
Last active: Nov 24, 2024
Discussion
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
Last active: Jan 29 11:07am
Discussion
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Last active: May 21, 2024