Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussion
C Reactive Protein levels while tapering
When I was first diagnosed with PMR in August 2022, my C reactive protein (CRP) level was elevated: 25 mg/L should be < 7.0 mg/L...
Last active: Dec 19, 2022
Discussion
Painful Kevzara Injection
I'm a 73-year-old female in otherwise good health, but was diagnosed with PMR in August 2024. After tapering down from 20 mg/day Prednisone to zero,...
Last active: 1 day ago
Discussion
Prednisone love/hate support group
For anyone interested in a good source of information, the Prednisone Pharmacist is prolific with making videos on a wide variety of topics about prednisone....
Last active: Feb 8 5:39pm
Discussion
PMR due to immunotherapy for cancer.
I have cancer and receive immunotherapy. Now I have PMR due to an overactive immune system. I had a couple of treatments of the immunotherapy...
Last active: Aug 27, 2024
Discussion
Aching from the most minor of exercise
Diagnosed with PMR early this year. Shoulders, elbows and knees. Started with Prednisone, tapered to 5 mg, but pain is back. I am now experiencing...
Last active: Sep 15, 2024
Discussion
New to this support group.
Hi, I was diagnosed with PMR and GCA (biopsy) in 2020. Started at 60 mg prednisone (to prevent blindness!) and took me two years to...
Last active: Jun 12 10:02am
Discussion
Loss of smell and taste
DOES PREDNISONE CAUSE THIS?? IT STARTED A WEEK AGO I HAVE BEEN TAPERING DOWN FROM 60MG VERY SLOWLY JUST STARTED ON 15 MG. YESTERDAY FROM...
Last active: May 20, 2020
Discussion
Increasing Prednisone Dosage
I have been on this site before, but I can’t seem to find my way back to the link. Today I was told that I...
Last active: Jun 6, 2019
Discussion
New to PMR
I am new to this, so apologies if I am not using this forum correctly. Diagnosed last week with PMR by my GP, diagnosis confirmed...
Last active: Jul 6 9:54pm
Discussion
PMR 2ys and 4mos. Tapering to 1.5mg
PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...
Last active: Jun 17 1:41pm