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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (226)
PMR Case Study with Remaining Questions as of 09-04-2025
Background 1. PMR 40 -20-15-10-7.5-5-2.5-0 mg/daily tapering over 5 months, 77-yr old male in great shape. PMR triggered overseas dive trip (Malaysia) unexpectedly and exceedingly...
Last active: Sep 10 6:00pm
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Last active: Dec 12, 2023
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Last active: Jun 27, 2023
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Last active: Aug 23 12:52pm
Anyone successfully treating PMR without Prednisone?
I am in severe pain with soreness aching in shoulders, upper back, both hips and now headache. I am starting to get some numbness in...
Last active: Aug 10 5:25pm
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Last active: May 21, 2024
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
Last active: Jan 29 11:07am
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
Last active: Jul 29 2:57pm
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Aug 18 12:36pm
Back on Prednisone
Because of HFpEF heart failure, I had to get off of my prednisone quickly. (I addressed this in an earlier post). I successfully tapered and...
Last active: Jun 21 11:39am
PMR questions about prednisone, surgery limitations, pain and more
I'm relatively new to the PMR scene - diagnosed in June. I'm wondering if anyone has experience with unremitting pain in one or both shoulders....
Last active: Feb 27, 2023
Trouble being able to sleep more than 3-4 hours before
I was diagnosed with PMR October 2023 and had the symptoms since April 2023. Have been tapering off prednisone by .5mg every 2 weeks. Biggest...
Last active: Jul 6, 2024
PMR/GCA
Hello everyone, I am dealing with PMR/GCA and have experienced some brief episodes of double vision which my Ophthamologist says are inconsequential. I am slowly...
Last active: Jul 8 7:46am
Moonface
I was diagnosed in late November. Started at 20mg of prednisone and am currently on 15mg. I hope to taper to 12.5 next week. I...
Last active: Jan 30 1:04pm
Can PMR present in the clavicle too?
I’m a 62 year old female, who was diagnosed in summer of 2020 with PMR. About two weeks before the PMR symptoms happened, I had...
Last active: Feb 14 6:24am
Does diet affect the occurrence and severity of pain?
I was diagnosed with PMR in May 2023. My GP agreed to start me on 10mg daily of prednisone. Blood markers both positive. I did...
Last active: Jun 6, 2024
symptoms present but lab markers aren't high
Hi! Recently diagnosed or at least leaning in the direction of PMR around March of this year. Did like most, got on Prednisone 20mg and...
Last active: Sep 15, 2024
Prescriptions
Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...
Last active: Feb 28 12:16pm
Polymyalia Rheumatica
Hi, I am only new to PMR. Currently on 15mg daily tapering down to 12.5 next week. I was shocked when diagnosed as like many...
Last active: Aug 21 4:56pm
Saying Goodbye and Thank You ALL
It's been a week since I stopped taking my last daily dose of 1/4 mg of prednisone, tapering from 20 mg for the last 18...
Last active: Jan 29 9:12pm