Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Feb 3 11:37am
PMR questions about prednisone, surgery limitations, pain and more
I'm relatively new to the PMR scene - diagnosed in June. I'm wondering if anyone has experience with unremitting pain in one or both shoulders....
Last active: Feb 27, 2023
Trouble being able to sleep more than 3-4 hours before
I was diagnosed with PMR October 2023 and had the symptoms since April 2023. Have been tapering off prednisone by .5mg every 2 weeks. Biggest...
Last active: Jul 6, 2024
Moonface
I was diagnosed in late November. Started at 20mg of prednisone and am currently on 15mg. I hope to taper to 12.5 next week. I...
Last active: Jan 30 1:04pm
Can PMR present in the clavicle too?
I’m a 62 year old female, who was diagnosed in summer of 2020 with PMR. About two weeks before the PMR symptoms happened, I had...
Last active: Feb 14 6:24am
Does diet affect the occurrence and severity of pain?
I was diagnosed with PMR in May 2023. My GP agreed to start me on 10mg daily of prednisone. Blood markers both positive. I did...
Last active: Jun 6, 2024
symptoms present but lab markers aren't high
Hi! Recently diagnosed or at least leaning in the direction of PMR around March of this year. Did like most, got on Prednisone 20mg and...
Last active: Sep 15, 2024
Prescriptions
Have had PMR for 5 months. I am down to 10mg prednisone. I tried to drop to 7.5 about 3 weeks ago, but each time...
Last active: Feb 28 12:16pm
When is your worse time of day with PMR?
I am wondering if anyone else is experiencing this like I am. Before I was diagnosed, when I got up in the morning I was...
Last active: May 12 11:52am
Saying Goodbye and Thank You ALL
It's been a week since I stopped taking my last daily dose of 1/4 mg of prednisone, tapering from 20 mg for the last 18...
Last active: Jan 29 9:12pm
Knee pain and PMR?
I was diagnosed with PMR the end of October 2024 and have been on prednisone ever since and tapering. Right now I just increased from...
Last active: Jun 5 2:37am
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
Last active: Jan 19, 2024
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Last active: Apr 2, 2023
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Last active: Sep 10, 2024
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6, 2024
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
Last active: May 16 4:33pm
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: May 18 8:26am
Upcoming surgery prevents prednisone use
I have to have major back surgery in 3 weeks (rods, fusion etc) due to severe stenosis. The doctors think my steroids were covering any...
Last active: Feb 28, 2024
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
Last active: Jun 18, 2023
When your doctor stops prescribing prednisone
So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...
Last active: Apr 29, 2022