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Discussions (270)
Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
New to this support group.
Hi, I was diagnosed with PMR and GCA (biopsy) in 2020. Started at 60 mg prednisone (to prevent blindness!) and took me two years to...
PMR tapering
I am new to this forum. I had to cut winter vacation short and head home because of aching shoulders, hips and lower back aches...
Inflammation on Low Doses of Steroids
New to this group. Was diagnosed in November of 2024. Started on Prednisone and no real impacts. Was told that some people (me) cant metabolize...
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
PMR relapse after a fall
I notice that some members of this group mentioned having a PMR flare after a fall and thought I would share this link to an...
Pain ever goes away on its own?
I was on Prednisone from the previous July through May this year for PMR, tapering off. I felt ok for a while, with minor pain...
PMR relapse- anyone mild and quick recovery?
I originally came down with PMR in March 2020 after the Shingrix vaccine and needed a very slow prednisone taper from 15 mg down to...
Possible GCA
I had some symptoms of GCA, headaches, jaw stiffness and mild pain, sore throat, night sweats. I'm waiting on blood work results and in the...
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Prednisone to Kevzara
I am 69 and very active. I loved to play golf but have been unable since onset of PmR. My PMR was diagnosed a year...
Post-surgery symptoms
Had lumbar spinal fusion three weeks ago. Was on 2.5 mg prednisone pre- and post-surgery, now at 2mg. Stopped my leflunomide (Arava) 10 days before...
Magnesium & PMR/GCA & digestive homeostasis
I've had to double my magnesium supplementation for "digestive homeostasis" (ie so I can poop regularly) since getting ill. I'm using magnesium glycinate & magnesium-threonate....
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Pre-diabetes, likely due to long-term steroid use: Anyone else?
I was dismayed yesterday at a doctor’s visit, that my A1C was now is the “pre-diabetes” range. I knew this was a possible side effect...
Itching After Discontinuing Pred?
Greetings. I was on prednisone for 4 1/2 years, have been off since early October 2025, following slow taper. Glad to be done (also aware...
Down to 1mg prednisone and then extreme fatigue sets in.
I was diagnosed with PMR in January after ending up in emergency with extreme pain and unable to walk. In the hospital they gave me...
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