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Polymyalgia Rheumatica (PMR) Support Group

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Has anyone tried stem cell therapy
I’m going on 3 years now with PMR and my rheumatologist indicates she’s done all she can. I am now on kevzara and tapering down...
Last active: Feb 20 10:22am
New to this support group.
Hi, I was diagnosed with PMR and GCA (biopsy) in 2020. Started at 60 mg prednisone (to prevent blindness!) and took me two years to...
Last active: Jun 12, 2025
PMR tapering
I am new to this forum. I had to cut winter vacation short and head home because of aching shoulders, hips and lower back aches...
Last active: May 7, 2025
Inflammation on Low Doses of Steroids
New to this group. Was diagnosed in November of 2024. Started on Prednisone and no real impacts. Was told that some people (me) cant metabolize...
Last active: Aug 28, 2025
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
Any suggestions getting or not getting RSV, flu, covid vaccines?
I am traveling out of the country for 3 months , will be tapering to 8 or 8.5 prednisone in a week and just wondering...
Last active: Oct 25, 2023
PMR relapse after a fall
I notice that some members of this group mentioned having a PMR flare after a fall and thought I would share this link to an...
Last active: Oct 30, 2022
Pain ever goes away on its own?
I was on Prednisone from the previous July through May this year for PMR, tapering off. I felt ok for a while, with minor pain...
Last active: Oct 13, 2024
PMR relapse- anyone mild and quick recovery?
I originally came down with PMR in March 2020 after the Shingrix vaccine and needed a very slow prednisone taper from 15 mg down to...
Last active: Apr 17, 2025
Possible GCA
I had some symptoms of GCA, headaches, jaw stiffness and mild pain, sore throat, night sweats. I'm waiting on blood work results and in the...
Last active: Jan 23 3:01pm
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10, 2024
Prednisone to Kevzara
I am 69 and very active. I loved to play golf but have been unable since onset of PmR. My PMR was diagnosed a year...
Last active: Jun 18, 2024
Post-surgery symptoms
Had lumbar spinal fusion three weeks ago. Was on 2.5 mg prednisone pre- and post-surgery, now at 2mg. Stopped my leflunomide (Arava) 10 days before...
Last active: Nov 19, 2024
Magnesium & PMR/GCA & digestive homeostasis
I've had to double my magnesium supplementation for "digestive homeostasis" (ie so I can poop regularly) since getting ill. I'm using magnesium glycinate & magnesium-threonate....
Last active: Mar 24, 2023
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15, 2025
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: May 19, 2025
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Last active: Jul 28, 2023
Pre-diabetes, likely due to long-term steroid use: Anyone else?
I was dismayed yesterday at a doctor’s visit, that my A1C was now is the “pre-diabetes” range. I knew this was a possible side effect...
Last active: Mar 25, 2022
Itching After Discontinuing Pred?
Greetings. I was on prednisone for 4 1/2 years, have been off since early October 2025, following slow taper. Glad to be done (also aware...
Last active: Jan 27 5:43am
Down to 1mg prednisone and then extreme fatigue sets in.
I was diagnosed with PMR in January after ending up in emergency with extreme pain and unable to walk. In the hospital they gave me...
Last active: Jan 6 6:53am