Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: May 19 3:05pm
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Last active: Jul 28, 2023
What justifies an increase in prednisone?
I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...
Last active: Aug 8, 2024
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 26, 2023
Pill splitting
I have had two rheumatologists discourage pill splitting. I have to believe they have what I'll call 'medical logic' for discouraging their patients splitting prednisone...
Last active: Jan 22 12:54pm
Better to be in some pain or better to up the dose of prednisone?
Thank you for all of the information and guidance provided by members of this group. It has been very helpful. I have been tapering down...
Last active: Apr 13 9:13am
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Last active: 2 days ago
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
Just Started Actemra
I just wanted to share some info about my new treatment but wanted to give you a little history first. I was diagnosed with PMR...
Last active: Dec 28, 2024
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Last active: Aug 16, 2024
PMR and Fatigue. Interesting study
Lots of threads on here to the question of fatigue. I know I suffer from it. It is well documented that steroids can cause fatigue...
Last active: Sep 27, 2024
Statins - side-effects, PMR, Giant Cell Arteritis
My husband was diagnosed with PMR May 2023, GCA (giant cell arteritis) Feb 2024. He's been on high-dose Prednisone the entire time. Started on 30...
Last active: May 26, 2024
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Last active: Mar 13, 2024
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Last active: Jun 14, 2024
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Last active: May 10, 2024
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Last active: Jun 27, 2023
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Last active: Dec 12, 2023
New Methotrexate Study in PMR
As seen on X, another study showing no benefit in PMR using methotrexate. I watch a lot of the RheumNow videos on YouTube as they...
Last active: Nov 24, 2024
Kevzara and elevated liver enzymes ALT AST
Ten weeks after starting Kevzara my ALT & AST readings went from normal to very high values. (ALT = 137, AST = 54) As a...
Last active: Jan 29 11:07am
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Last active: May 21, 2024