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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (270)
Prednisone, Leflunomide, adrenal adenoma. Confused
I was diagnosed with PMR the end of October. Originally put on 15 mg of prednisone. Helped but not great. So upped me to 20...
Last active: Jan 7, 2025
Pseudo gout
I have been on Prednisone for a little more than 2 years . I have tapered to 2 mg and have developed pseudo gout in...
Last active: Feb 5 8:34pm
Possibly Misdiagnosed?
I never had any bloodwork inflammation markers for PMR. Tested twice now. But due to age and joint stiffness in neck, hips, thighs, legs, I...
Last active: Aug 2, 2024
Shortness of breath ..dyspenia..while on prednisone
I entered rheumology land when my c- reactive was off the charts. Pred at 15 mg brought it down to like 1! But on the...
Last active: Jun 4, 2025
PMR pain management with medical cannabis
Has anyone used medical cannabis for pain management/ treatment for PMR? Has it helped you taper Prednisone? Do you use it on a regular basis...
Last active: Oct 23, 2024
kevzara and relapse
I started taking prednisone in October 2024 for pmr. My rheumatologist started me on kevzara the last week of December and it has been a...
Last active: Sep 16, 2025
What mg of prednisone to take when a person gets a flare up?
When a person gets a flare up from PMR are they supposed to go up to a mg where they don't have any pain and...
Last active: Jun 6, 2024
Prednisone dosage split
Something that may help someone but confirm with your physician before implementing. I had a major flare up a few weeks ago. My Rheumatologist started...
Last active: Feb 27, 2025
Has anyone used an anti inflammatory diet to get off prednisone ?
I have had pmr for 2 plus years now and down to 2mg but each time I taper I have had more pain. My goal...
Last active: Sep 10, 2024
PMR: Are there treatment alternatives to Prednisone?
Hi, all. I'm wondering if anyone is finding any alternatives to Prednisone in treatment of PMR? I've been on the PMR/Prednisone train for about 6...
Last active: Apr 11 1:22pm
Covid and pmr
I am on 8 mg of prednisone and tapering 1 mg. Per month. I just got Covid and I’m very achy and sick. Did anyone...
Last active: Sep 14, 2024
Can PMR cause Balance problems?
I’m currently in a taper after a slight relapse @ 7mg now tapering 1mg a month started 4mg (3mg AM 1mg PM) 11/1 but began...
Last active: Nov 13, 2022
Glucocorticoid-induced Adrenal Insufficiency
Finally some guidance from endocrinologists. This is recent information about a topic that is near and dear to me. It discusses many of the problems...
Last active: Apr 28, 2025
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jan 19 5:27pm
Heating pad or ice pack
I’m having a major flare with arm/shoulder pain and thigh pain. Prednisone up to 20 mg from5 (was hoping to taper off in a few...
Last active: Jul 26, 2024
PMR symptom flare from a head cold
I have been on prednisone (started at 30mg) since May and now have tapered to 5mg with no issues. This week Santa has brought me...
Last active: Dec 27, 2023
Tapering down and inflammation markers up
Diagnosed Feb with PMR/ GCA. Slowly tapered and now I am down to 10 mg from 40 mg with no flare ups 🙏🙏 Had SED...
Last active: Aug 4, 2023
Switching From Prednisone to Methotrexate!?
I was diagnosed with PMR 10 years ago and have been on low dose Prednisone (5mg) ever since. Flares happen about once a year on...
Last active: Aug 16, 2025
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Last active: Mar 31 7:48pm
Still confused about tapering
Hi there, I was diagnosed with PMR about 4 months ago ... my rheumatologist gave me a "schedule" for tapering but I haven't been able...
Last active: Mar 19 7:27pm