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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (226)
Magnesium & PMR/GCA & digestive homeostasis
I've had to double my magnesium supplementation for "digestive homeostasis" (ie so I can poop regularly) since getting ill. I'm using magnesium glycinate & magnesium-threonate....
Last active: Mar 24, 2023
What justifies an increase in prednisone?
I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...
Last active: Aug 8, 2024
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15 1:39pm
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: May 19 3:05pm
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Last active: Jul 28, 2023
Painful Kevzara Injection
I'm a 73-year-old female in otherwise good health, but was diagnosed with PMR in August 2024. After tapering down from 20 mg/day Prednisone to zero,...
Last active: Jul 24 11:46am
PMR 2ys and 4mos. Tapering to 1.5mg
PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...
Last active: Jun 17 1:41pm
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 26, 2023
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Last active: May 14 4:13pm
Pill splitting
I have had two rheumatologists discourage pill splitting. I have to believe they have what I'll call 'medical logic' for discouraging their patients splitting prednisone...
Last active: Jan 22 12:54pm
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
PMR and Fatigue. Interesting study
Lots of threads on here to the question of fatigue. I know I suffer from it. It is well documented that steroids can cause fatigue...
Last active: Sep 27, 2024
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Last active: Aug 16, 2024
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Last active: Jun 14, 2024
Just Started Actemra
I just wanted to share some info about my new treatment but wanted to give you a little history first. I was diagnosed with PMR...
Last active: Aug 12 9:49am
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Last active: Mar 13, 2024
New to PMR
I am new to this, so apologies if I am not using this forum correctly. Diagnosed last week with PMR by my GP, diagnosis confirmed...
Last active: Jul 6 9:54pm
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Last active: May 10, 2024
Statins - side-effects, PMR, Giant Cell Arteritis
My husband was diagnosed with PMR May 2023, GCA (giant cell arteritis) Feb 2024. He's been on high-dose Prednisone the entire time. Started on 30...
Last active: May 26, 2024
Additional Treatment while on prednisone.
I was diagnosed in March for PMR at the age of 64. At the time I could not raise my shoulders and my hips, both...
Last active: Jun 25 4:48pm