Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
Has anyone else had pain return after reducing pred by only 2.5 mg?
I'd been taking 15 mg of prednisone for two months after being diagnosed with PMR in early August (I am 62). I saw my doctor...
Last active: Oct 24, 2023
PMR and tapering -- will blood work change?
I received a private message from @alanbruce that I think a lot of you may be interested in or thinking about. Alan said it was...
Last active: Jul 6, 2021
Prednisone and Opioids
Pred put me into type II diabetes with BPs up to 185/115. I also have Crohn's disease and cannot take NSAIDs. I've had PMR for...
Last active: Feb 20 2:35pm
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15 1:39pm
Anyone tapered down as directed, but increased back up on their own?
I'm new to these discussions and my husband's PMR. His Dr. wrote RX for Prednisone starting at 20 mg tapering down by 2.50 mg every...
Last active: Apr 12, 2024
Additional Treatment while on prednisone.
I was diagnosed in March for PMR at the age of 64. At the time I could not raise my shoulders and my hips, both...
Last active: Jun 25 4:48pm
Do we actually “recover”?
Will there be a time when the PMR actually goes away, or is this a lifetime diagnosis? I have to taper off prednisone rather quickly,...
Last active: May 14 4:13pm
Extremely anxious
Is it normal to be extremely anxious while tapering? I am now taking 2.5mg of prednisone every other day and Kevzara bi weekly. It's so...
Last active: Oct 22, 2024
Prednisone, Leflunomide, adrenal adenoma. Confused
I was diagnosed with PMR the end of October. Originally put on 15 mg of prednisone. Helped but not great. So upped me to 20...
Last active: Jan 7 12:55pm
PMR pain management with medical cannabis
Has anyone used medical cannabis for pain management/ treatment for PMR? Has it helped you taper Prednisone? Do you use it on a regular basis...
Last active: Oct 23, 2024
Joint Clinical Guidelines for Prednisone Induced Adrenal Insufficiency
Good stuff in my opinion! This was how my endocrinologist approached my low cortisol level when I tapered off prednisone. I couldn't continue my taper...
Last active: Dec 16, 2024
Using CBD to reduce inflammation
Hi, I'm interested if finding out if anyone has had success in reducing the inflammation associated with PMR using CBD? I'm trying to taper down...
Last active: Dec 31, 2024
Keep encouraged, tapering second time is working
My husband (now 80) diagnosed with PMR 2020; went on prednisone; tapered down, but in 2023 it came back. Dr. retired. We found a new...
Last active: Jan 19 11:44am
Prednisone dosage split
Something that may help someone but confirm with your physician before implementing. I had a major flare up a few weeks ago. My Rheumatologist started...
Last active: Feb 27 10:29am
Actemra & Methotrexate for GCA treatment
Hello everyone,I was diagnosed with GCA on October, 2023 and started a 60mg/day treatment with Prednisone. I am now on Prednisone (10mg/day) and Methotrexate (17.5mg/week)....
Last active: May 5, 2024
Covid and pmr
I am on 8 mg of prednisone and tapering 1 mg. Per month. I just got Covid and I’m very achy and sick. Did anyone...
Last active: Sep 14, 2024
Back on Prednisone
Because of HFpEF heart failure, I had to get off of my prednisone quickly. (I addressed this in an earlier post). I successfully tapered and...
Last active: Jun 21 11:39am
Possibly Misdiagnosed?
I never had any bloodwork inflammation markers for PMR. Tested twice now. But due to age and joint stiffness in neck, hips, thighs, legs, I...
Last active: Aug 2, 2024
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jul 17, 2024
What mg of prednisone to take when a person gets a flare up?
When a person gets a flare up from PMR are they supposed to go up to a mg where they don't have any pain and...
Last active: Jun 6, 2024