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Public Support Group 3,107 total results
Discussions (134)
Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
I was diagnosed with PMR in 2007 which was in addition to reactive arthritis with recurring uveitis which was diagnosed in the early 1990's. I...
Autoimmune changes
I have allergic contact dermatitis, and the allergen being formaldehyde, there hadn't been any way to avoid the itchy rash. But after I was diagnosed...
Feelings when tapering: My journey
I have been taking Prednisone for 6 weeks now, started on 15mg and massive improvements once on 12.5, walking well, using light weights for training...
PMR questions about prednisone, surgery limitations, pain and more
I'm relatively new to the PMR scene - diagnosed in June. I'm wondering if anyone has experience with unremitting pain in one or both shoulders....
Trouble being able to sleep more than 3-4 hours before
I was diagnosed with PMR October 2023 and had the symptoms since April 2023. Have been tapering off prednisone by .5mg every 2 weeks. Biggest...
Does diet affect the occurrence and severity of pain?
I was diagnosed with PMR in May 2023. My GP agreed to start me on 10mg daily of prednisone. Blood markers both positive. I did...
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Need to decide to get a Covid Shot while I have PMR.
I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Upcoming surgery prevents prednisone use
I have to have major back surgery in 3 weeks (rods, fusion etc) due to severe stenosis. The doctors think my steroids were covering any...
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
Sleep apnea and GCA
My husband was diagnosed when PMR May 2023 and GCA Feb 2024. He’s been on very high doses of prednisone that has resulted in osteoporosis....
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
When your doctor stops prescribing prednisone
So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
GCA Relapse - A Slow Burn
I thought I was doing so well, off Prednisone almost two years, after having PMR and GCA for about two and a half years (one...
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