Connect
Public Support Group 5,097 total results
Discussions (282)
Is it really PMR if symptoms aren't upon awakening?
I have been following multiple groups including this one to see if anyone's experience is similar to mine. I have the classic PMR symptoms (hip,...
Initial Dosage of Prednisone Impacts Long Term Recovery
https://academic.oup.com/rheumatology/article/55/2/347/1822760 Higher initial dosages LOWERED the total time needed to taper to 5mg of prednisone. This study was for Giant Cell Arteritis, a closely related...
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
PMR and fingers swollen and painful
I was diagnosed with PMR June 2024. I have been tapering off prednisone since then. In August my hands began to swell, painful to make...
Prednisone and neuropathy
Before prednisone and PMR, I had a very, very mild case of non-diabetic neuropathy. I've been on pred for five months and in the last...
Irregular heartbeat issues
I am tapering off prednisone and currently at 1 mg. I have been monitoring my blood pressure since I was on blood pressure medication prior...
New to PMR diagnosis
Hi, I am new here and just finding my way. I have some questions. I was recently diagnosed with PMR. I took the initial diagnostic...
Prednisone is like running UP a DOWN staircase
Hi all. The unpredictability of prednisone is what causes me the most problems. I know the Myriad of side effects, both physical and mental, are...
Has anyone with PMR used Low Dose Naltrexone when trying to taper off
PMR diagnosed 10 months ago. Prednisone started in June (15mg) and slow taper has been done with CRP and sed rates monthly. Did well until...
Tingling fingers part of PMR symptom?
Been tapering for about 5 months. I have reduced my prednisone level from 7.5mg for quite a few weeks to now 6mg. On 6mg for...
What is the goal when tapering?
I was diagnosed with PMR in November. Started on 65mg of prednisone. I have now tapered to 20mg, but the pain is debilitating. What is...
Polymyalgia rheumatica: Any thoughts on my taper plan?
I am currently on 2.5 milligrams of prednisone. I plan on tapering 1/4 milligram every 4-6 weeks to hopefully get down to zero. Any thoughts...
Infrared sauna blanket for pain relief
I have been coping with PMR pred therapy and tapering for about ten months. I'm tapering 1mg/mo from 10mg and am currently at 2mg. It...
Facial puffiness? PMR/GCA on Prednisone/Actemra
My husband has PMR since May 2023 and GCA since February 2024. He’s on 50 mg of prednisone and weekly shots of Actemra since developing...
New to methotrexate
My rheumatologist started me on methotrexate this week, given my 15-month struggle to taper on prednisone. I'm wondering what I can expect in terms of...
Low blood sugar on prednisone
Has anyone experienced shaky hands and low blood sugar while on prednisone? I'm tapering from 25 (now on 23mg) and this has happened from the...
PMR savvy doctors in Portland Oregon
I moved here from Eugene and am currently seeing a rheumatologist at Providence on NE Hoyt St. Although I was diagnosed with PRM in 2008,...
I have PMR, as well as a high PTH level of 117, anyone else have this?
I was diagnosed 2 months ago with PMR. I started with 15mg per day of prednisone and am now down to 10mg per day. I...
Prednisone
Hi. I think I got PMR after having an infection when I got the first COVID vaccine in 2020. I gradually got severe joint pain...
Connect