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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (333)
Headaches while tapering
I have been having headaches & a senstive scalp while tapering from 6 to 5 mg of Predsolone for PMR. GP ruled out GCA as...
Last active: Feb 6 11:40am
PMR and tapering -- will blood work change?
I received a private message from @alanbruce that I think a lot of you may be interested in or thinking about. Alan said it was...
Last active: Jul 6, 2021
Quadriceps, predinisone and alternatives
Now in a second bought of PMR and been on prednisone for 2 years. At a certain point when tapering pain and weakness in quads-...
Last active: Mar 4, 2023
Rash with Actemra injections?
Hi, I was diagnosed with PMR in Sept 2024, and wasn't able to taper off prednisone even with methotrexate. I started Actemra weekly injections Jan...
Last active: Mar 4 5:33am
When to start tapering
I've been doing ok on 25mg of prednisone for 2 weeks now. Started at 10mg, increased over time until I felt "good". I do sometimes...
Last active: Dec 1, 2025
Tapering and being nauseous
I’m tapering from 7mg to 5mg for 2 days now. Feel nasusa by afternoon. Anyone else??
Last active: Jul 8, 2025
Flareups, Prednisone, Tapering
After being diagnosed with PMI, the course of treatment is prednisone or prednisolone. Taking these steroids makes the inflammation, aches and stiffness seem to disappear....
Last active: Sep 29, 2025
Tapering Prednisone from 5 to 4
I am seeking experience from fellow PMR folks please. My RA has given me the go ahead to go down to 4 mg from 5...
Last active: Feb 14 8:02am
Prednisone and vertigo
Hi all. As I taper down (6.5), I'm having intermittent vertigo. Dr. Internet tells me this is yet another symptom of our dear Predni. Others...
Last active: Apr 14, 2025
PMR savvy doctors in Portland Oregon
I moved here from Eugene and am currently seeing a rheumatologist at Providence on NE Hoyt St. Although I was diagnosed with PRM in 2008,...
Last active: Dec 2, 2024
C Reactive Protein levels while tapering
When I was first diagnosed with PMR in August 2022, my C reactive protein (CRP) level was elevated: 25 mg/L should be < 7.0 mg/L...
Last active: 22 hours ago
Post prednisone
Today marks the 24th day since I tapered to zero prednisone. I did my taper very slowly, dropping 0.5 mg per month since June of...
Last active: Jun 1, 2024
Initial Dosage of Prednisone Impacts Long Term Recovery
https://academic.oup.com/rheumatology/article/55/2/347/1822760 Higher initial dosages LOWERED the total time needed to taper to 5mg of prednisone. This study was for Giant Cell Arteritis, a closely related...
Last active: Mar 29, 2023
Using CBD to reduce inflammation
Hi, I'm interested if finding out if anyone has had success in reducing the inflammation associated with PMR using CBD? I'm trying to taper down...
Last active: Dec 31, 2024
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10, 2024
Prednisone and Opioids
Pred put me into type II diabetes with BPs up to 185/115. I also have Crohn's disease and cannot take NSAIDs. I've had PMR for...
Last active: Feb 20, 2025
Mental fog and slight dizziness on Actemra
I've had PMR for almost 13yrs, starting in my late '50s. (Btw...Both my paternal grandfather and father had it.) Started on the 20mg prednisone that...
Last active: Jun 26, 2025
My theory on tapering prednisone
I was diagnosed with PMR in August of 2023 so it's been about 10 months. I started on 15mg of prednisone but the pain was...
Last active: Jun 3, 2024
Heating pad or ice pack
I’m having a major flare with arm/shoulder pain and thigh pain. Prednisone up to 20 mg from5 (was hoping to taper off in a few...
Last active: Jul 26, 2024
Tingling fingers part of PMR symptom?
Been tapering for about 5 months. I have reduced my prednisone level from 7.5mg for quite a few weeks to now 6mg. On 6mg for...
Last active: Nov 25, 2024