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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (334)
Do CPR and SED rate numbers correspond to pain levels?
I was newly dxed with PMR about 3 weeks ago. I have had a good response to prednisone, started on 10 mg, now tapering with...
Last active: Mar 1, 2025
Down to 1mg prednisone and then extreme fatigue sets in.
I was diagnosed with PMR in January after ending up in emergency with extreme pain and unable to walk. In the hospital they gave me...
Last active: Jan 6 6:53am
Lingering Stiffness Left Thigh
I find that when tapering, I have this lingering stiffness remaining in only my left thigh. All other stiffness responds to my 1-1/2 mg. Medrol....
Last active: Jul 9, 2024
PMR: anyone have problems with diarrhea
Diagnosed in June 2022. Have tapered from 40 mg to 3 mg. Taking supplements: multivitamin, magnesium + calcium, vit D, fish oils, turmeric, pycogenol. Gave...
Last active: Nov 29, 2023
Switching From Prednisone to Methotrexate!?
I was diagnosed with PMR 10 years ago and have been on low dose Prednisone (5mg) ever since. Flares happen about once a year on...
Last active: Aug 16, 2025
Timing of meds: don't do what I did!
I've been more or less successfully tapering with the morning pred dose, supplemented with Meloxicam with dinner as prescribed by my rheumy, but I had...
Last active: Aug 1, 2024
Trying To get Answers About GCA
I was diagnosed with GCA in March 2025 and it has been a roller coaster ride and not a good one. My vision has been...
Last active: Feb 1 7:51pm
Glucocorticoid-induced Adrenal Insufficiency
Finally some guidance from endocrinologists. This is recent information about a topic that is near and dear to me. It discusses many of the problems...
Last active: Apr 28, 2025
how to know how much to increase Prednisone dosage during flare
I have PMR and tapered down from 20mg/day to 2 mg/day of Prednisone over 15 months. Then, yesterday I woke up stiff and in pain...
Last active: Jan 19 5:27pm
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Aug 18, 2025
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
PMR/GCA patient asking about headaches
I was diagnosed in December 2024 with PMR/GCA I have tapered down from 48 mg. Methoprednosone to now at 12mg. an on my 2nd week...
Last active: Jun 13, 2025
Recently Diagnosed With GCA - Still Experiencing Pain
Hi Everyone! I was recently diagnosed with GCA and have been on prednisone for over a month now. I am concerned because I started at...
Last active: Jan 31 8:07am
PMR questions about prednisone, surgery limitations, pain and more
I'm relatively new to the PMR scene - diagnosed in June. I'm wondering if anyone has experience with unremitting pain in one or both shoulders....
Last active: Feb 27, 2023
PMR and hump on back and chest
One month ago I was diagnosed with PMR which came on after COViD vaccines. I am only 55. My CRP was very high. I was...
Last active: Jun 5, 2022
Better to be in some pain or better to up the dose of prednisone?
Thank you for all of the information and guidance provided by members of this group. It has been very helpful. I have been tapering down...
Last active: Aug 21, 2025
Sed Rate still elevated, but pain much improved
I have tapered from 40 mg prednisone last February to a current dose of 9 mg. I’ve also been on methotrexate going on three months,...
Last active: Oct 27, 2024
Is anyone having success with Plaquenil in addition to prednisone?
I have been on plaquenil 400 mg a day for 7 months and I am taping prednisone also. I am having several side effects from...
Last active: Jun 15, 2025
Polymyalgia, Covid Infection, Anti-Virals
I have just finished a 5 day course of anti-viral tablets (‘Paxlovid’ - ‘nirmatrelvir’ + ‘ritonavir’) following a positive Covid test. Paxlovid is approved for...
Last active: Nov 24, 2022
Weakness won't go away
I've been on methylprednisolone for 3 years and down to 6 mg without pain and tapering (again) down to hopefully 2 mg. I can't seem...
Last active: Sep 25, 2025