5,112 total results
Discussions (283)
Need to decide to get a Covid Shot while I have PMR.
I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...
Actemra Infusions
I was diagnosed with PMR and possible GCA in July 2024. In January 2025, I began Actemra infusions, every 4 weeks. I am currently on...
Sharing ways to stop coping and start living!
I’ve been doing the PMR dance for a couple of years. (Sometimes it’s a slow waltz, sometimes it’s The Jerk.) I’m currently at 5mg prednisone,...
PMR diagnosis without markers in blood work
I have been dealing with hip, shoulder,neck and back pain besides other joints for a few years now. Have had injuries ruled out and have...
Weather affects on PMR by state
Just curious how everyone feels right now based on your location. I’m located in central NC (Piedmont area) and have been in cold weather for...
PMR Case Study with Remaining Questions as of 09-04-2025
Background 1. PMR 40 -20-15-10-7.5-5-2.5-0 mg/daily tapering over 5 months, 77-yr old male in great shape. PMR triggered overseas dive trip (Malaysia) unexpectedly and exceedingly...
Sugar and PMR
Has anyone else found that sugar worsens their PMR symptoms? I've tried cutting the sugar in my diet to an absolute minimum, and it seemed...
PMR's effect on my hands
Has PMR affected your hands? In February, I noticed my legs and arms were often sore and stiff (no pain in my neck or shoulders)....
Starting treatment with Kevzara: My journey
Good morning everyone.Well, yesterday was my first dose of Kevzara and day one of my taper down to 15mg of prednisone. We'll see how that...
Feeling defeated
I guess I'm posting in an effort to reach out seeking some hope and optimism, because PMR is really getting me down. I'm only two...
Polymyalia Rheumatica
Hi, I am only new to PMR. Currently on 15mg daily tapering down to 12.5 next week. I was shocked when diagnosed as like many...
New member with PMR
Hi, I’m Terri! I was diagnosed with PMR January 21, 2025, but I have lived with chronic pain for the last 20 years. I’m also...
Trying To get Answers About GCA
I was diagnosed with GCA in March 2025 and it has been a roller coaster ride and not a good one. My vision has been...
Prednisone and Osteoperosis
Two years ago I was diagnosed with Osteopenia. This January I was diagnosed with PMR and put on 20 mg Prednisone which I have not...
PMR and interactions with meds for other conditions
I am a 64 yr old female diagnosed with high blood pressure in February. I also have mild asthma but am otherwise healthy, active, good...
Suddenly much better
I am approaching the 3rd anniversary of this blasted disorder, and have successfully tapered to 1.5 mg prednisone daily. But PMR has been ever present...
Are others with GCA and PMR on Tyenne Monthly Infusions?
I just joined today, 1/17/26, after having been diagnosed with GCA & PMR in 7/2024. On High dose (60mg) Prednisone for several months, tapering over...
Still Struggling with that last mile on the path to 0 mg
After two months on 1/2mg of prednisone, various setbacks, and revisiting PT, I started to feel quite a bit of improvement, which led me to...
Confused about PMR symptoms
I was diagnosed with PMR in August by a rheumatologist. I was placed on 60mg Prednisone. Began tapering and now I am down to 15mg...
Getting COVID, Flu etc vaccines while treating for PMR
Hi all, I'm new to this group. I'm finding alot of useful info! I self diagnosed myself with PMR when PT failed to help with...
Connect