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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (272)
Worried about GCA
I was diagnosed with PMR in June after months of severe morning pain in my hips to mid thighs and my neck. I started at...
Last active: Jan 3, 2025
Golf and PMR
Presently on 5mg/day Prednisone from 6 mg/day and taper hasn’t been all that successful as I experienced an increase in symptoms in my shoulders, right...
Last active: Aug 23, 2025
Feelings when tapering: My journey
I have been taking Prednisone for 6 weeks now, started on 15mg and massive improvements once on 12.5, walking well, using light weights for training...
Last active: Nov 13, 2024
When is your worse time of day with PMR?
I am wondering if anyone else is experiencing this like I am. Before I was diagnosed, when I got up in the morning I was...
Last active: May 12, 2025
Recently Diagnosed With GCA - Still Experiencing Pain
Hi Everyone! I was recently diagnosed with GCA and have been on prednisone for over a month now. I am concerned because I started at...
Last active: Jan 31 8:07am
PMR and hump on back and chest
One month ago I was diagnosed with PMR which came on after COViD vaccines. I am only 55. My CRP was very high. I was...
Last active: Jun 5, 2022
PMR and Depression
For almost three years I have been tapering off Prednisone. I am on a cocktail of medication, including pregabalin, tyeene, prednisone, and sometimes celebrex. And...
Last active: Jan 30 6:49pm
Sed Rate still elevated, but pain much improved
I have tapered from 40 mg prednisone last February to a current dose of 9 mg. I’ve also been on methotrexate going on three months,...
Last active: Oct 27, 2024
Any experience with Actemra - for my mom who is 90 years old
Subject: Actemra for 90-Year-Old with GCA, High BP & Kidney Disease — Looking for Real Experiences Hi everyone, I’m hoping to hear from anyone who...
Last active: Jul 14, 2025
Exercise with PMR and/or GCA
My husband was diagnosed with Polymyalgia Rheumatica (PMR) May 2023. He started at 30 mg prednisone tapering to 12.5 by January 2024. In November his...
Last active: Mar 8, 2024
Sleep apnea and GCA
My husband was diagnosed when PMR May 2023 and GCA Feb 2024. He’s been on very high doses of prednisone that has resulted in osteoporosis....
Last active: Oct 19, 2024
Need to decide to get a Covid Shot while I have PMR.
I am conflicted on when or if to get a Covid shot. I see from our group than some have had a very bad reaction...
Last active: Nov 1, 2024
Sharing ways to stop coping and start living!
I’ve been doing the PMR dance for a couple of years. (Sometimes it’s a slow waltz, sometimes it’s The Jerk.) I’m currently at 5mg prednisone,...
Last active: Mar 23 3:20pm
PMR diagnosis without markers in blood work
I have been dealing with hip, shoulder,neck and back pain besides other joints for a few years now. Have had injuries ruled out and have...
Last active: Feb 18, 2022
PMR Case Study with Remaining Questions as of 09-04-2025
Background 1. PMR 40 -20-15-10-7.5-5-2.5-0 mg/daily tapering over 5 months, 77-yr old male in great shape. PMR triggered overseas dive trip (Malaysia) unexpectedly and exceedingly...
Last active: Sep 10, 2025
Sugar and PMR
Has anyone else found that sugar worsens their PMR symptoms? I've tried cutting the sugar in my diet to an absolute minimum, and it seemed...
Last active: May 24, 2024
PMR's effect on my hands
Has PMR affected your hands? In February, I noticed my legs and arms were often sore and stiff (no pain in my neck or shoulders)....
Last active: May 28, 2025
Starting treatment with Kevzara: My journey
Good morning everyone.Well, yesterday was my first dose of Kevzara and day one of my taper down to 15mg of prednisone. We'll see how that...
Last active: Aug 27, 2025
Feeling defeated
I guess I'm posting in an effort to reach out seeking some hope and optimism, because PMR is really getting me down. I'm only two...
Last active: Jan 20, 2025
Polymyalia Rheumatica
Hi, I am only new to PMR. Currently on 15mg daily tapering down to 12.5 next week. I was shocked when diagnosed as like many...
Last active: Aug 21, 2025