Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,818)

You should work with your rheumatologist to see what dose of prednisone you should be taking....

https://connect.mayoclinic.org/comment/1224930/

Discussion: Prednisone duration

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 5:13pm

Hi @noti, Unfortunately I don't think it's the same for everyone and can be difficult for...

https://connect.mayoclinic.org/comment/1232418/

Discussion: Path to 0mg and acceptable discomfort?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 3:14pm

I am an otherwise very healthy and active 83 year old woman, and I've been taking...

https://connect.mayoclinic.org/comment/1205786/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 7:45am

Yes, I agree that everyone is different and slow taper is less likely to encounter flares....

https://connect.mayoclinic.org/comment/1232721/

Discussion: The lowest effective dose, how is it defined?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 7:15am

Im afraid I am traveling in the same direction, My Rheumatologist will not prescribe LDN. I...

https://connect.mayoclinic.org/comment/1241552/

Discussion: Prednisone and Opioids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 20 1:02pm

https://connect.mayoclinic.org/comment/1242396/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 2:31pm

My GCA started Oct 2023 with headaches, swollen temporal arteries, and scalp sensitivity. I never get...

https://connect.mayoclinic.org/comment/1242918/

Discussion: Antiviral flu medication and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 22 10:11am

I'm 71, was diagnosed by my primary physician who told me he had similar cases so...

https://connect.mayoclinic.org/comment/1238531/

Discussion: Is This a Safe Taper as Prescribed by my doctor?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 4:59pm

“Anyone have pain when tapering…?” Of course you will. My rheumy told me in my first...

https://connect.mayoclinic.org/comment/1144535/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

I just started KEVZARA yesterday and thankfully no side effects so far! My question is how...

https://connect.mayoclinic.org/comment/1235548/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12 8:15pm

@lori62yb Hello Lori, I don’t know why your doctor would say that PMR doesn’t normally present...

https://connect.mayoclinic.org/comment/1231440/

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 7 9:44am

I always keep in mind that each of us has our own journey. April 2024 apparent...

https://connect.mayoclinic.org/comment/1232079/

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8 9:30am

How soon was Kevzara started after you were diagnosed with PMR? My response to Actemra was...

https://connect.mayoclinic.org/comment/1237281/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 7:55am

I agree with Dadcue. Its great that Kevzara works. I think it should be tried as...

https://connect.mayoclinic.org/comment/1141882/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

I agree with those who have posted so far. I ran into a similar problem with...

https://connect.mayoclinic.org/comment/1246203/

Discussion: Prescriptions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26 7:51pm

Hi @phogan0609, Welcome to Connect. Sorry to hear Mr. Ugly (PMR) has invaded your personal space....

https://connect.mayoclinic.org/comment/1248263/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 6:29pm

Hello. I am 54 and was diagnosed about 3 years ago. I have added flax seed...

https://connect.mayoclinic.org/comment/1009533/

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 4, 2024

About a year and a half behind you, so you are a pioneer for me! Hope...

https://connect.mayoclinic.org/comment/1287042/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 21 6:27pm

"Others in this forum seem to have had good success with it." --------------------------- Now that more...

https://connect.mayoclinic.org/comment/1289020/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 2:17pm

My experience has been very similar to yours. I was diagnosed with GCA and PMR in...

https://connect.mayoclinic.org/comment/1288758/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 9:07am

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