Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

3,117 total results

Comments (2,982)

I have just started Kevzara along with the methotrexate. It is a biologic which targets Il-...

https://connect.mayoclinic.org/comment/992891/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 6:25am

Welcome @mpm! My PMR has been in remission for 5+ years now but I do have...

https://connect.mayoclinic.org/comment/915977/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2023

Mehtotrexate is not an alternative to prednisone. It can be used for polymyalgia rheumatica as a...

https://connect.mayoclinic.org/comment/687503/

Discussion: Alternative to Prednisone for Treating PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2022

This would just be a couple of guesses. I'm currently doing monthly infusions of Actemra. The...

https://connect.mayoclinic.org/comment/908164/

Discussion: Sleeping 9-10 hours with tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5, 2023

I was on Actemra for several months a couple of years ago. My doctor’s office had...

https://connect.mayoclinic.org/comment/829388/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2023

Hi, Can just share my experience as over time I had quite serious prednisone side effects....

https://connect.mayoclinic.org/comment/911744/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 12, 2023

Thanks for replying to me John , i was diagnosed with PMR in March and put...

https://connect.mayoclinic.org/comment/912855/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14, 2023

You might want to discuss this tapering plan with your rheumatologist to see if it can...

https://connect.mayoclinic.org/comment/897928/

Discussion: Weaning off long term use of prednisone.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2023

Glad you are with doctor. I am 3 years into it. No pain pill works. Been...

https://connect.mayoclinic.org/comment/901930/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2023

Hi @charlotte61, since you've been doing TaiChi you might want to check out Dr. Loren Fishman's...

https://connect.mayoclinic.org/comment/902654/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2023

Hi Charlotte, I too wanted instant relief and I didn’t get it. After a few days...

https://connect.mayoclinic.org/comment/903123/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 27, 2023

Hi @adia, Sorry to hear you are struggling with the PMR and tapering. I've only used...

https://connect.mayoclinic.org/comment/903728/

Discussion: Tapering angst

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28, 2023

Hi Charlotte, I am sorry that you have received this diagnosis but at least you now...

https://connect.mayoclinic.org/comment/902339/

Discussion: Do I have polymyalgia rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26, 2023

In answer to your question, "What does Remission feel like?" I am now in remission as...

https://connect.mayoclinic.org/comment/897263/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 17, 2023

Hello @mach92, welcome to Connect. Thank you for sharing your story. You are so right about...

https://connect.mayoclinic.org/comment/150885/

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2017

You're welcome! Please keep us up to date on your progress with tapering off of prednisone...

https://connect.mayoclinic.org/comment/150889/

Discussion: Successfully treated for Polymyalgia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2017

There are unfortunate problems that surface when people get into the neighborhood of 5 mg of...

https://connect.mayoclinic.org/comment/891062/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

Here are a few articles discussing the reasoning for tapering schedules. "How to taper GC: The...

https://connect.mayoclinic.org/comment/896625/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

I have been unable to get below 17.5 mg of prednisone. I am scheduled to taper...

https://connect.mayoclinic.org/comment/921577/

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

PMR mostly affects people over 70. Stress aggravates it and from my experience, I see that...

https://connect.mayoclinic.org/comment/912254/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2023

Follow

8778

2 minutes ago

Autoimmune Diseases

Follow

12800

3 minutes ago

Follow

11924

5 minutes ago

Visiting Mayo Clinic

Follow

4521

7 minutes ago

Follow

1404

19 hours ago