Polymyalgia Rheumatica (PMR) Support Group

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Thanks dadcue. I'm sorry it took you so long to taper down to 15 mg of...

https://connect.mayoclinic.org/comment/949325/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 17, 2023

What a terrible doctor. I wonder what her response would be if she got hit with...

https://connect.mayoclinic.org/comment/948402/

Discussion: What are your rheumatologists using to stop the pain from PMR.?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 16, 2023

Thanks lungranger77! It sounds like getting off prednisone, or even tapering down the dosage, is a...

https://connect.mayoclinic.org/comment/948197/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 15, 2023

Thanks Daniece. I'm sorry you ended up with fractured vertebrae -- that's horrible! This is what...

https://connect.mayoclinic.org/comment/947189/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2023

I was on a very lose dose of prednisone of 10 mg. and I tapered off...

https://connect.mayoclinic.org/comment/946640/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2023

Congratulations on tapering to 8 mg of Prednisone, that is awesome!! Kevzara is definitely the first...

https://connect.mayoclinic.org/comment/946130/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Thanks Terry! It certainly sounds like the tapering has to be done by extremely small increments....

https://connect.mayoclinic.org/comment/946047/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

Thanks 😊 I have taken 2 doses of kevzara now and seen no improvement so far....

https://connect.mayoclinic.org/comment/945906/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 11, 2023

I have had 8 injections of Kevzara. To date I have not had any improvements. I’ve...

https://connect.mayoclinic.org/comment/940613/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2023

I'm on Actemra which works in a similar way as Kevzara. Both Actemra and Kevzara are...

https://connect.mayoclinic.org/comment/939224/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

Good to hear that Kevzara is working for many of you. I am still on 15...

https://connect.mayoclinic.org/comment/939171/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

I was diagnosed with symptoms of GCA in April of 2023 with blood test results. I...

https://connect.mayoclinic.org/comment/934758/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23, 2023

I have been up and down from 8- 15 mgs of prednisone for about one and...

https://connect.mayoclinic.org/comment/934024/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

Hi Ed. Diagnosed about a month ago. I am struggling to find answers and understand all...

https://connect.mayoclinic.org/comment/933858/

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

It is not easy to find the right dosage, but when you finally do you should...

https://connect.mayoclinic.org/comment/932837/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

Here's what happened at my last visit at the rheumatologist: the practice is associated with a...

https://connect.mayoclinic.org/comment/931394/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

Perhaps if your PMR pain is localized, this could be an option. In my case the...

https://connect.mayoclinic.org/comment/931082/

Discussion: Corticosteroid injections for polymyalgia rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

Wow, that is my exact beginning story. My PCP started me on 20. I had the...

https://connect.mayoclinic.org/comment/931017/

Discussion: Prednisone tapering and extreme sweating

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16, 2023

I had onset of symptoms in July of last year at 58 yrs old. It took...

https://connect.mayoclinic.org/comment/927981/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11, 2023

I haven’t posted in a while because I’ve been waiting for something new to report. I...

https://connect.mayoclinic.org/comment/925743/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7, 2023

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