Polymyalgia Rheumatica (PMR) Support Group

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I was diagnosed with GCA last July. It was very scary, I was hospitalized for 5...

https://connect.mayoclinic.org/comment/1048891/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024

Thank-you for posting this reference. I will add it to my file. The highlighted paragraphs in...

https://connect.mayoclinic.org/comment/1048489/

Discussion: Question about PMR in addition to other autoimmune disorders?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

Most people seem to gain weight on high dose prednisone. He's lost weight. He's leveled out...

https://connect.mayoclinic.org/comment/1048394/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

@dadcue Thank you for sharing your experiences with prednisone and Actemra. It was very helpful. I...

https://connect.mayoclinic.org/comment/1045212/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

I was on moderately high doses of prednisone for 12 years ... in the 20-40 mg...

https://connect.mayoclinic.org/comment/1044991/

Discussion: Living with someone on high-dose long-term prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

I am finally off of Prednisone after 2 years! I still have manageable pain -probably aches...

https://connect.mayoclinic.org/comment/1044946/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2024

Thx for this John. I have been keeping a log of pain levels since tapering to...

https://connect.mayoclinic.org/comment/1043172/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2024

I started Kevzara Dec 16th for PMR prednisone tapering. I quit March 1st due to side...

https://connect.mayoclinic.org/comment/1043056/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2024

Welcome @joaniem5, I'm sorry to hear that you have joined the PMR club but you have...

https://connect.mayoclinic.org/comment/1042600/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30, 2024

I am so glad that you decided go with Kevzara. I am off of Kevzara since...

https://connect.mayoclinic.org/comment/1040983/

Discussion: How long does it take for you to move without pain and stiffness in a.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 27, 2024

Thank you for these insightful comments. I basically diagnosed myself (I'm a somatic educator with 30...

https://connect.mayoclinic.org/comment/1040383/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

I agree! I started doing Yoga every day during the Covid lockdown and attribute my practice...

https://connect.mayoclinic.org/comment/1037558/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 21, 2024

Starting in October, initially on P20, my dose had to be adjusted to P30 to tame...

https://connect.mayoclinic.org/comment/1036438/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19, 2024

Welcome @gsm1, Those 1 mg prednisone tablets do help for tapering in smaller amounts. It sounds...

https://connect.mayoclinic.org/comment/1035286/

Discussion: Confused about PMR symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 17, 2024

Glad to hear the MSM is working for you! I was skeptical at first, but it...

https://connect.mayoclinic.org/comment/1033429/

Discussion: Sugar and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2024

That’s consistent with my experience too. I had a good long stretch of over a year...

https://connect.mayoclinic.org/comment/1031906/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 11, 2024

Your history amazes me. Mine is a bit more linear. I believe I told you that...

https://connect.mayoclinic.org/comment/1030520/

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2024

@charlotte61 I just read your post and will share our experience. It is my husband who...

https://connect.mayoclinic.org/comment/1029430/

Discussion: How often does PMR progress to GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

Sorry to hear about your diagnosis! I was also scared of going on prednisone when I...

https://connect.mayoclinic.org/comment/1029276/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2024

Sorry you've joined the club. Prednisone is the magic elixir for me - unfortunately. I've been...

https://connect.mayoclinic.org/comment/1028518/

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6, 2024

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