Polymyalgia Rheumatica (PMR) Support Group

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Hello @leetaanderson Yes, jaw pain and when chewing your jaw gets really tired. Also temple pain,...

https://connect.mayoclinic.org/comment/1224812/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 1:51pm

Your doctor will have to tell you how to taper if necessary, but I just googled...

https://connect.mayoclinic.org/comment/1240060/

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 2:34pm

I agree. Demonizing prednisone is not helpful. Some of us have tried every option to get...

https://connect.mayoclinic.org/comment/1236784/

Discussion: Is This a Safe Taper as Prescribed by my doctor?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14 11:39am

It sounds like your PMR isn't completely under control yet if you're having trouble walking and...

https://connect.mayoclinic.org/comment/1248262/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 6:27pm

I was diagnosed in Sept 2024 with GCA. I started off with 60mg of Prednisone after...

https://connect.mayoclinic.org/comment/1246468/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 9:21am

Thank you John. You are a wonderful source of information and good advice. I have been...

https://connect.mayoclinic.org/comment/1252701/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 3:22pm

Welcome @bravo1, Thanks for sharing how you taper. We are all different and it definitely helps...

https://connect.mayoclinic.org/comment/1253320/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 1:25pm

No ... DHEA wasn't recommended. I tried DHEA for a month on my own and stopped...

https://connect.mayoclinic.org/comment/1226780/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 9:19am

Yes, Inflammation markers can be normal (as with me) and you can still have PMR. My...

https://connect.mayoclinic.org/comment/1227512/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 9:26am

Hand pain has been a constant for me along with hip and shoulder. PMR started in...

https://connect.mayoclinic.org/comment/1216207/

Discussion: Hand pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 19 8:02am

I was diagnosed with PMR in November 2022 at 58 yrs old, and started on 20...

https://connect.mayoclinic.org/comment/1088970/

Discussion: Symptoms after you stop prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2024

hi, my name is Joni and I have had polymyalgia rheumatica for over 6 years. I...

https://connect.mayoclinic.org/comment/69249/

Discussion: Polymyalgia Rheumatica treatment options

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23, 2012

Hello @bix53, I see that you have already connected with @joanna626 and I would like to...

https://connect.mayoclinic.org/comment/921425/

Discussion: Polymyalgia Rheumatica treatment options

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30, 2023

Thanks so much! The higher dose did clear the pain but my Rheumatologist is concerned about...

https://connect.mayoclinic.org/comment/1218491/

Discussion: PMR and Work

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 21 7:56pm

"... my whole goal in being on this site is to help people understand the love...

https://connect.mayoclinic.org/comment/1228591/

Discussion: Prednisone love/hate support group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 3 11:25am

With luck you’re going into remission. When I was first diagnosed my CRP was 76. My...

https://connect.mayoclinic.org/comment/1227841/

Discussion: PMR AND CRP QUESTION

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 3:14pm

good topic. I too am curious as to why the two cannot be taken at the...

https://connect.mayoclinic.org/comment/138164/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 16, 2020

I also experienced wrist discomfort while tapering. The description of feeling as if they were "strained"...

https://connect.mayoclinic.org/comment/954662/

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 27, 2023

Hello @nothatkaren, It can be really discouraging battling the PMR beast especially with all the other...

https://connect.mayoclinic.org/comment/1214735/

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 7:30am

I’m trying an anti inflammatory diet too but in moderation. I haven’t had any drinks (wine)...

https://connect.mayoclinic.org/comment/1189960/

Discussion: Anti-inflammatory diet and supplements for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 13, 2024

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