Polymyalgia Rheumatica (PMR): Discussions | Page 52

You can private message me if you wish. Generally speaking what your endocrinologist told you is...

https://connect.mayoclinic.org/comment/1264388/

Discussion: Adrenal Insufficiency caused by long term Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 22 5:46pm

When I got down to 1.5 (tapering at 0.5 per month at that point), my doc...

https://connect.mayoclinic.org/comment/1260960/

Discussion: So close and yet so far away – tapering to 1 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18 8:53am

I was also diagnosed in December 2023, symptoms started in mid-November. When 20 mg of prednisone...

https://connect.mayoclinic.org/comment/1053597/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2024

I have no experience with Kevzara but I have over 15 years of experience with PMR....

https://connect.mayoclinic.org/comment/1141799/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

Welcome @summertime24, Sorry to hear that Mr. Ugly has invaded your personal space. Eating healthy with...

https://connect.mayoclinic.org/comment/1231027/

Discussion: Immune system boosters

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 5:47pm

Was diagnosed in July 2024 with PMR and possible GCA. Started on 60 mg of prednisone...

https://connect.mayoclinic.org/comment/1237405/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 9:54am

I was diagnosed with PMR Dec. of 2023. My exercise mainly consists of walking and hiking....

https://connect.mayoclinic.org/comment/1234357/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 10:28am

You should stay and tell us how you were able to get off prednisone in a...

https://connect.mayoclinic.org/comment/1222078/

Discussion: Saying Goodbye and Thank You ALL

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 26 10:06am

Both exercise and diet helped my second time around with PMR. The first time it took...

https://connect.mayoclinic.org/comment/1223584/

Discussion: Saying Goodbye and Thank You ALL

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 28 7:12am

"I was on 5 mg and two days ago had a big flare up of my...

https://connect.mayoclinic.org/comment/1224893/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 3:57pm

Hello @leetaanderson Yes, jaw pain and when chewing your jaw gets really tired. Also temple pain,...

https://connect.mayoclinic.org/comment/1224812/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29 1:51pm

Your doctor will have to tell you how to taper if necessary, but I just googled...

https://connect.mayoclinic.org/comment/1240060/

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 2:34pm

I agree. Demonizing prednisone is not helpful. Some of us have tried every option to get...

https://connect.mayoclinic.org/comment/1236784/

Discussion: Is This a Safe Taper as Prescribed by my doctor?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14 11:39am

It sounds like your PMR isn't completely under control yet if you're having trouble walking and...

https://connect.mayoclinic.org/comment/1248262/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 6:27pm

I was diagnosed in Sept 2024 with GCA. I started off with 60mg of Prednisone after...

https://connect.mayoclinic.org/comment/1246468/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 9:21am

Thank you John. You are a wonderful source of information and good advice. I have been...

https://connect.mayoclinic.org/comment/1252701/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 3:22pm

Welcome @bravo1, Thanks for sharing how you taper. We are all different and it definitely helps...

https://connect.mayoclinic.org/comment/1253320/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 1:25pm

I think a low cortisol is expected after months on prednisone. It potentially is a serious...

https://connect.mayoclinic.org/comment/1253368/

Discussion: Very low end of normal lab values for cortisol and ACTH after stopping

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 2:40pm

No ... DHEA wasn't recommended. I tried DHEA for a month on my own and stopped...

https://connect.mayoclinic.org/comment/1226780/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 9:19am

Yes, Inflammation markers can be normal (as with me) and you can still have PMR. My...

https://connect.mayoclinic.org/comment/1227512/

Discussion: what does the community consider a normal SED rate for GCA/PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 9:26am

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