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polymyalgia rheumatica

Posted by @marshahj in Bones, Joints & Muscles, Jan 5, 2012

Has anyone experienced complete management of symptoms at onset of disease with Prednisone and then experienced a major setback while decreasing the dosage? If so, what treatment plan was used? Also, has anyone had any success with any other prescribed medicines in the treatment of the disease? My husband was diagnosed three months ago and with first major dose of Predison (60mg) he improved 100% with symptoms totally subsiding. The symptoms returned when the doseage was reduced to 20mg. He is currently taking 40 mg but his symptoms have never completely subsided again. His rheumatologist started him three weeks ago on Methotrexate as well in hope to use this med as treatment and take him off the Predisone. Thus far the treatment plan does not appear to be working. My husband is also experiencing most side effects from the use of long term Predisone which is also a reason for considering an alternative treatment.

Thanks and appreciate any information provided.


Posted by @joni, Jan 23, 2012

hi, my name is Joni and I have had polymyalgia rheumatica for over 6 years. I am on a low dose (5 mg) of prednisone, but even with slow tapering, I cannot be painfree without it. I have failed tapering for several years. I refuse to take any other medication, as I have developed osteoarthritis and thin skin (resulting in
sever bruising very easily. All from the prednisone. It is very disturbing that most people get well after 2-3 years, but I have not. I will be 70 years old, and otherwise am well. We travel frequently and I still work
perdiem in nursing at a nearby hospital. Would like to hear from you.


Posted by @bonnie57, Apr 28, 2012

I am 57 years old and have had PMR for 2 years now. Started on 20 mg. of prednisone initially and tapered down to over the 2 years to 1 mg. but the symptoms are back and my blood work and inflammatory markers are all elevated to the same level as when I was first diagnosed. I refuse to back up on prednisone dosage so I supplement with Aleve but I am always in pain, 24/7. It seems like whenever I drop the dosage the symptoms flare up. I am beginning to think prednisone is addictive as the tapering off is as bad as the disease itself.
Not sure what to do next and my Dr. doesn't seem to know either. I am going to try to take a yoga class to see if I can get some relief.


Posted by @njr, Apr 29, 2012

Nancy here. I am 51 and have had PMR for 3 years and did the prednisone thing for two of them. As I tapered off the prednisone the symptoms returned. I am now on methotrexate but it does not seem to help. I have begun acupuncture treatments (not cheap!) and have gone 6 times. Sometimes I feel better after a treatment. Sometimes not. I am desperate for relief from the aches and pains, often accompanied by migraines. I would LOVE to hear from someone who has beat this thing!


Posted by @learner, Sep 19, 2012

I'm new at this, aND JUST NOTICED THE DATE OF YOUR POST. (oops, sorry). I expect by now you have your answer. Anyone else in myt position? I'd very much appreciate hearing from you.


Posted by @sspacek, Dec 9, 2012

The sucess is with the reducing of the prednisone and even then it is difficult and impossible without methotrexate and neproxen or such... Check out Polymyalgia on facebook. I have a site and it has information on reducing.

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