Polymyalgia Rheumatica (PMR) Support Group

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This was very helpful. I had tapered down to a low dose 2.5mg prednisone for six...

https://connect.mayoclinic.org/comment/825210/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12, 2023

I did an Enbrel trial back when it first was available but it had no effect....

https://connect.mayoclinic.org/comment/824559/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 11, 2023

Hi @sued70, That is a good question. You are not alone. We moved your post into...

https://connect.mayoclinic.org/comment/824198/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

There are anecdotal positive reports on using Low Dose Naltrexone (LDN) to mitigate PMR pain. LDN...

https://connect.mayoclinic.org/comment/823766/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

I found this method for slowly tapering off prednisone on a website in the UK. I’m...

https://connect.mayoclinic.org/comment/819011/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

I am excited that my PCP was willing to prescribe LDN for me. I will be...

https://connect.mayoclinic.org/comment/818858/

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

That is interesting how the time between infusions is being stretched out. I started Actemra injections...

https://connect.mayoclinic.org/comment/815887/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23, 2023

Has anyone been diagnosed with gout while suffering from PMR? I am 15 months in and...

https://connect.mayoclinic.org/comment/812295/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16, 2023

I am sorry you are going through this. I was diagnosed with PMR about eight months...

https://connect.mayoclinic.org/comment/811596/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14, 2023

Hi @johnbishop. Thanks very much for your comments. The "PMR Dosages and Managing Symptoms" is a...

https://connect.mayoclinic.org/comment/809504/

Discussion: PMR questions about prednisone, surgery limitations, pain and more

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2023

Being treated for PMR going on two years. Taper down to zero prednisone only to be...

https://connect.mayoclinic.org/comment/807989/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 8, 2023

One thing I learned was there isn't any "correct way" of tapering off prednisone. I took...

https://connect.mayoclinic.org/comment/807321/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

Did you increase the prednisone because of bursitis and tendinitis or did the pain of PMR...

https://connect.mayoclinic.org/comment/807269/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

Inflammatory arthritis and PMR are a bad combination. I took high doses of prednisone intermittently for...

https://connect.mayoclinic.org/comment/807109/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

Hello 1942marilyne, Welcome to Connect. Some members have split their dose between morning and late afternoon/evening...

https://connect.mayoclinic.org/comment/807108/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

Not sure if you actually should increase the amount of Prednisone so that your pain is...

https://connect.mayoclinic.org/comment/806849/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

Thank you John for your reply. I do have some assistance but I’m going to move...

https://connect.mayoclinic.org/comment/805448/

Discussion: PMR or Steroid Myopathy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2, 2023

If all of the pain went away when you started on prednisone and you just had...

https://connect.mayoclinic.org/comment/803487/

Discussion: Hip pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29, 2023

I have read on a number of sites that when you taper/withdraw from Prednisone you may...

https://connect.mayoclinic.org/comment/797653/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2023

Hey Becky, I hope you find good primary care and rheumatology doctors. As you navigate this...

https://connect.mayoclinic.org/comment/797465/

Discussion: Confused: Tapering vs cold turkey stopping prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2023

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