Polymyalgia Rheumatica (PMR) Support Group

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Has anyone else developed neuropathy after pmr has gone into remission and they have tapered off...

https://connect.mayoclinic.org/comment/1070111/

Discussion: Peripheral Neuropathy and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

Not suggesting you do this because I would not wish the steroid on anyone. If your...

https://connect.mayoclinic.org/comment/1069193/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2024

I was on 16 mgs of prednisone since June 1st 2023, started Kevzara in July '23...

https://connect.mayoclinic.org/comment/1068621/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2024

@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...

https://connect.mayoclinic.org/comment/1067338/

Discussion: Has anyone "self-tapered" (increase or decrease prednisone)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2024

I started at 10mg last August after a bout with Covid. I stayed at that level...

https://connect.mayoclinic.org/comment/1066021/

Discussion: Has anyone "self-tapered" (increase or decrease prednisone)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 11, 2024

i read your story and the same situation applied to me. I am or was an...

https://connect.mayoclinic.org/comment/1063142/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6, 2024

Thank you for your reply, you raise some interesting points. I fully agree with your' statement...

https://connect.mayoclinic.org/comment/1062159/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

Thank-you for sharing this information. It is always interesting how other countries treat their medical conditions....

https://connect.mayoclinic.org/comment/1062062/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4, 2024

@csm70 My husband developed PMR in May 2023 and GCA in February 2024. Since developing GCA...

https://connect.mayoclinic.org/comment/1061360/

Discussion: Actemra & Methotrexate for GCA treatment

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 3, 2024

So sorry to hear you've had a relapse. I hope you do well on your taper...

https://connect.mayoclinic.org/comment/1060442/

Discussion: GCA Relapse - A Slow Burn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

"I read the other day that someone received Actemra for PMR. According to our rheumatologist, it's...

https://connect.mayoclinic.org/comment/1057041/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

My endocrinologist wasn't exactly an "adrenal specialist" but she had insight into the problem with adrenal...

https://connect.mayoclinic.org/comment/1056816/

Discussion: Clinical Information or Fishbowl?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I was also diagnosed in December 2023, symptoms started in mid-November. When 20 mg of prednisone...

https://connect.mayoclinic.org/comment/1053597/

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19, 2024

I wouldn't say I'm completely over it but I'm getting close. I sometimes think about everything...

https://connect.mayoclinic.org/comment/1048583/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

How long were you on Kevzara before you could taper off Prednisone? And how long do...

https://connect.mayoclinic.org/comment/1048317/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...

https://connect.mayoclinic.org/comment/1048211/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2024

Adrenal insufficiency is an often overlooked ramification of long term prednisone use. It may be a...

https://connect.mayoclinic.org/comment/1047294/

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8, 2024

I have a different perspective on this because I’m a daughter of someone with PMR. I...

https://connect.mayoclinic.org/comment/1046360/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2024

Thank you for sharing that. I feel fortunate that I was able to figure out he...

https://connect.mayoclinic.org/comment/1045559/

Discussion: What to tell adult kids? Dad diagnosed with giant cell arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

HI @glinda47, I was fortunate not to wind up in the ER with Prednisone IV. I...

https://connect.mayoclinic.org/comment/1045476/

Discussion: Does untreated PMR lead to GCA, organ inflammation and osteoporosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2024

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