Polymyalgia Rheumatica (PMR) Support Group

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I was diagnosed with PMR in May 2016 & didn't want to take a corticosteroid like...

https://connect.mayoclinic.org/comment/722744/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1, 2022

Seems like your dose of Prednisone may not be enough. I started at 20 mg. in...

https://connect.mayoclinic.org/comment/721975/

Discussion: PMR initial diagnosis: Can there be an underlying disease?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 29, 2022

I was tapering off Prednisone starting from 15 mg I went to 12.5-then 10-then 8,6,4, 3,2.5,2,1.5,1,1/2....

https://connect.mayoclinic.org/comment/720864/

Discussion: Questioning my diagnosis of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2022

Welcome @zoe10, I started both of my occurrences of PMR at 20 mg prednisone and you...

https://connect.mayoclinic.org/comment/720837/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25, 2022

@suetex, you mentioned you flared a couple of months ago but were doing OK prior to...

https://connect.mayoclinic.org/comment/720343/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2022

So much unnecessary suffering! The fact that prednisone eased the pain should be enough evidence for...

https://connect.mayoclinic.org/comment/714809/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2022

I was a very active 73 yr young I have had pmr now for a year...

https://connect.mayoclinic.org/comment/713263/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2022

I was diagnosed with PMR about two years ago. I was dealing with extreme discomfort in...

https://connect.mayoclinic.org/comment/712420/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2022

I was diagnosed with PMR 3 years ago and am still trying to taper off prednisone...

https://connect.mayoclinic.org/comment/709237/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2022

Your posting sounds very familiar. PMR diagnosed six months ago. Started on 20 mg, then 10...

https://connect.mayoclinic.org/comment/709222/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2022

You shouldn't have to be suffering those "knifepoint lightning burns". You should be proactive in tapering...

https://connect.mayoclinic.org/comment/709085/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2022

I'm so happy you're in remission. Such good news! Thanks for your update. I live on...

https://connect.mayoclinic.org/comment/708365/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15, 2022

Hi e(@epvb) I agree with @ kmeikle1. It's important for you to be tested for GCA,...

https://connect.mayoclinic.org/comment/703503/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28, 2022

I was never referred to a rheumatologist. I am now 74 and was diagnosed by my...

https://connect.mayoclinic.org/comment/701671/

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 23, 2022

I believe my PMR started shortly after I had the first shingles vaccine and the senior...

https://connect.mayoclinic.org/comment/700959/

Discussion: Prednisolone immuno-suppressant effect v Covid booster protection

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 21, 2022

Welcome @ralphs, During my first occurrence of PMR I was so happy the prednisone took away...

https://connect.mayoclinic.org/comment/697922/

Discussion: Buttock/tailbone pain, sitting or lying down - symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2022

Thank you for the confirmation that Prednisone does indeed cause hair loss! Fortunately, I have very...

https://connect.mayoclinic.org/comment/696048/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 4, 2022

My name is Tricialynn and I was diagnosed with Polymyalgia rheumatica in the fall of 2020....

https://connect.mayoclinic.org/comment/695222/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1, 2022

3rd bout of PMR. I’m 2 1/2 years from diagnosis, decreasing from 3 mg prednisone to...

https://connect.mayoclinic.org/comment/694040/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

Thanks for the good questions @redboat. Indeed, I am "hoping LDN would let [me] speed up...

https://connect.mayoclinic.org/comment/825936/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

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