Polymyalgia Rheumatica (PMR) Support Group

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Good paper. There were possible mechanisms discussed for LDN that I was unaware of. My general...

https://connect.mayoclinic.org/comment/822849/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2023

Welcome to Connect @barbiek! It is a great site where we are all in this together...

https://connect.mayoclinic.org/comment/822295/

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

John - Thank you for the great link and explanation! I’ve been on the pred rollercoaster...

https://connect.mayoclinic.org/comment/822269/

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

I had an "interesting" experience with double vision. I think it was generated by PMR inflammation....

https://connect.mayoclinic.org/comment/820676/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4, 2023

Thank-you ... I will check out what ED582 has to say. To my knowledge, nobody on...

https://connect.mayoclinic.org/comment/819434/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2023

Thanks for this detailed and thoughtful reply. It is very, very helpful to understand and compare...

https://connect.mayoclinic.org/comment/818709/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Hi @redboat, I told my rheumatologist there is nothing like the pain of PMR. I called...

https://connect.mayoclinic.org/comment/813533/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2023

I should say that I have been off prednisone for 3 years except for when Actemra...

https://connect.mayoclinic.org/comment/813414/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2023

@richardab I am sorry to hear about your pain. Is your prednisone at a sufficiently high...

https://connect.mayoclinic.org/comment/812769/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17, 2023

I was on prednisone for 3 and half years the first time my PMR was diagnosed....

https://connect.mayoclinic.org/comment/811759/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

I sympathize with you! I was diagnosed with PMR and took prednisone for 13 years before...

https://connect.mayoclinic.org/comment/808858/

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Feb 9, 2023

Dry eyes and a dry mouth are the most common symptoms of Sjogren's syndrome. https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216#:~:text=Sjogren's%20(SHOW%2Dgrins)%20syndrome,as%20rheumatoid%20arthritis%20and%20lupus. Psoriatic...

https://connect.mayoclinic.org/comment/808813/

Discussion: Myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2023

I would say that the 10% is a good idea. However, I think your rheumatologist is...

https://connect.mayoclinic.org/comment/807307/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

I also have major hand issues and wish the connection between the hands and PMR could...

https://connect.mayoclinic.org/comment/805037/

Discussion: PMR and Hand issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1, 2023

Hi @ctipmarie, my Rheumatologist put me on 40 mg of prednisone for Giant Cell Arteritis to...

https://connect.mayoclinic.org/comment/802487/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27, 2023

I certainly would not go cold, turkey being on 20 mg. I have repeatedly heard that’s...

https://connect.mayoclinic.org/comment/801040/

Discussion: Confused: Tapering vs cold turkey stopping prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2023

I have been on Prednisone 15 mg since July when my Dr. was finally able to...

https://connect.mayoclinic.org/comment/800110/

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 22, 2023

I only had/have inactive pain while in bed. Once I got out of bed, I was...

https://connect.mayoclinic.org/comment/799456/

Discussion: Does anyone take Turmeric/Curcumin to help with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2023

My Rheumatologist had me split the dose 2mgAM 2mgPM until I had some strong “PMRsymptoms/Prednisone Withdrawal...

https://connect.mayoclinic.org/comment/797423/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2023

After 2 plus years on prednisone, I have tapered to 1 mg for a month and...

https://connect.mayoclinic.org/comment/796013/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2023

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