Polymyalgia Rheumatica (PMR) Support Group

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I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...

https://connect.mayoclinic.org/comment/878459/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 14, 2023

I was very active with weights & walking daily. Pilates 6 days a week. Then I...

https://connect.mayoclinic.org/comment/878016/

Discussion: I have questions: Can you work out while on Prednisone? Options?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13, 2023

I was diagnosed with PMR a year ago. I was initially put on 30 mg prednisone...

https://connect.mayoclinic.org/comment/876733/

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Everyone is different, but since you mentioned it’s only your first month with PMR, I’m wondering...

https://connect.mayoclinic.org/comment/876583/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

@pkalkstein I'm writing just to say how important and clear I think your post is.....it is...

https://connect.mayoclinic.org/comment/876552/

Discussion: Breakthrough Pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Hi @lanieg, I'm sorry to hear that the prednisone is messing with your blood glucose. That...

https://connect.mayoclinic.org/comment/876418/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

Hi @jholland ... What do you mean by experimental stages of inflammatory arthritis? The biologic that...

https://connect.mayoclinic.org/comment/876094/

Discussion: Is it PMR (and/) or Osteoarthritis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2023

Hello @livingwithpmr, Tapering off of prednisone while managing the PMR symptoms can be difficult at times....

https://connect.mayoclinic.org/comment/872043/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2023

For me, it was a 22 month slow taper. Many things that I read said 6...

https://connect.mayoclinic.org/comment/871767/

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2023

Thanks Grammy for your fast reply! My blood inflammation markers are normal and initially elevated but...

https://connect.mayoclinic.org/comment/870679/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Wishing you luck... I don't know if GCA could pop up again as a problem, but...

https://connect.mayoclinic.org/comment/870650/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG...

https://connect.mayoclinic.org/comment/870334/

Discussion: Headaches - Side effect of taking prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023

Thank-you but when I looked to find information I found the following: "What Is Not Eligible...

https://connect.mayoclinic.org/comment/869380/

Discussion: Polymyalgia Rheumatica (PMR) - Clinical Trials

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

How long did it take you to taper off prednisone? I tried to go down to...

https://connect.mayoclinic.org/comment/868572/

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I'm currently off prednisone but I took it for more than 12 years for PMR. I...

https://connect.mayoclinic.org/comment/868001/

Discussion: Divided dose or all at once?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2023

I was virtually pain free 2 days after starting on 20 mg of prednisone after being...

https://connect.mayoclinic.org/comment/867845/

Discussion: Prednisone only mildly helpful for my PMR, is this common?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2023

Hello @freeme, Welcome to Connect. It's good that you are advocating for your health and learning...

https://connect.mayoclinic.org/comment/866072/

Discussion: Multiple triggers aka when the chickens come home to roost

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2023

Yes I have had the biopsy You are correct .. mine said GCA healed !! Whatever...

https://connect.mayoclinic.org/comment/865629/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2023

I was diagnosed recently with GCA. My Rheumatologist started me on 60 mg of Prednisone tapering...

https://connect.mayoclinic.org/comment/864950/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2023

I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...

https://connect.mayoclinic.org/comment/864851/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 22, 2023

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