Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

5,119 total results

Comments (4,835)

Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...

https://connect.mayoclinic.org/comment/890554/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 5, 2023

I will try to answer your questions but I don't have any experience with Kevzara. My...

https://connect.mayoclinic.org/comment/889954/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...

https://connect.mayoclinic.org/comment/889839/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4, 2023

I began with 20mg (5/13) of prednisone and got some relief but there was still some...

https://connect.mayoclinic.org/comment/888675/

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2023

I would like to weigh in about PMR coming on gradually. My symptoms began in Jan....

https://connect.mayoclinic.org/comment/888645/

Discussion: Can PMR come on more gradually?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2, 2023

That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...

https://connect.mayoclinic.org/comment/886875/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

Hi, I have been dealing with PMR for a while. Started on Prednisone 15 mg last...

https://connect.mayoclinic.org/comment/886377/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

I finally saw a rheumatologist last week!! Been waiting since February! So, it’s officially PMR -...

https://connect.mayoclinic.org/comment/885712/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 26, 2023

@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...

https://connect.mayoclinic.org/comment/884478/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2023

@ellegeee, my rheumatologist initially prescribed methylprednisolone. He switched me to prednisone as I started to taper....

https://connect.mayoclinic.org/comment/883069/

Discussion: Accuracy of pill cutting

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

Hi. It’s so nice to hear a more positive story! If your symptoms just started in...

https://connect.mayoclinic.org/comment/882864/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2023

Interesting that you say that about regulating your own prednisone that’s kind of what I am...

https://connect.mayoclinic.org/comment/882222/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21, 2023

Hi, my name is Leslie and I have recently started on my PMR journey with bilateral...

https://connect.mayoclinic.org/comment/881611/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

Hi @chanciesmommy2018, I see that you have been a member for awhile but this is your...

https://connect.mayoclinic.org/comment/881078/

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

I really believe mine came about because of extreme stress. I was already totally stressed from...

https://connect.mayoclinic.org/comment/880835/

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18, 2023

It is incredible how often people can't seem to decrease their prednisone dose below +/- 7...

https://connect.mayoclinic.org/comment/879644/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2023

Hi Everyone, I thought I would weigh in as I just had a dr. appt. with...

https://connect.mayoclinic.org/comment/879549/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2023

I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...

https://connect.mayoclinic.org/comment/878459/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 14, 2023

I was very active with weights & walking daily. Pilates 6 days a week. Then I...

https://connect.mayoclinic.org/comment/878016/

Discussion: I have questions: Can you work out while on Prednisone? Options?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 13, 2023

I was diagnosed with PMR a year ago. I was initially put on 30 mg prednisone...

https://connect.mayoclinic.org/comment/876733/

Discussion: Is everyone here diagnosed with PMR seeing a rheumatologist?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 11, 2023

1
…
31
32
33
34
35
…
242

Autoimmune Diseases

Follow

20132

24 minutes ago

Follow

19380

4 hours ago

Follow

4905

4 hours ago

Follow

15443

5 hours ago

Visiting Mayo Clinic

Follow

6905

1 day ago