Polymyalgia Rheumatica (PMR): Discussions | Page 32

How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...

https://connect.mayoclinic.org/comment/895854/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...

https://connect.mayoclinic.org/comment/891301/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 6, 2023

It is incredible how often people can't seem to decrease their prednisone dose below +/- 7...

https://connect.mayoclinic.org/comment/879644/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2023

That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...

https://connect.mayoclinic.org/comment/886875/

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 28, 2023

I too was scheduled for a hip replacement last September but since I was on Prednisone...

https://connect.mayoclinic.org/comment/1022050/

Discussion: Upcoming surgery prevents prednisone use

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 25 7:00am

Someone else posted this article not too long ago. https://connect.mayoclinic.org/discussion/safe-dose-and-tapering-on-glucocorticoid-therapy/?pg=1#comment-1020760 I guess everyone was speechless or...

https://connect.mayoclinic.org/comment/1022858/

Discussion: Synacthen Test

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 26 8:18am

@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...

https://connect.mayoclinic.org/comment/884478/

Discussion: When and How to Taper Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24, 2023

@mtr2601 Wow ! OUR very astute @dadcue noticed that you had linked to this article just...

https://connect.mayoclinic.org/comment/1023447/

Discussion: Safe dose and tapering on Glucocorticoid therapy.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 6:26am

I have the same experience. I started H in March 2023 after taking Prednisone for 3...

https://connect.mayoclinic.org/comment/921886/

Discussion: Treating PMR with Prednisone and Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2023

Thank-you but when I looked to find information I found the following: "What Is Not Eligible...

https://connect.mayoclinic.org/comment/869380/

Discussion: Polymyalgia Rheumatica (PMR) - Clinical Trials

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2023

Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...

https://connect.mayoclinic.org/comment/1012486/

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 10:14am

Hi; the Wilmingtonemperor here. I was diagnosed nearly a year ago with PMR. The highest dose...

https://connect.mayoclinic.org/comment/997097/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 14 11:48am

Every bottle of melatonin I ever purchased had a warning not to use if you have...

https://connect.mayoclinic.org/comment/1007936/

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 3:19pm

Both you and @nyxygirl are getting close to "adrenal territory." The tapering will get harder as...

https://connect.mayoclinic.org/comment/1024699/

Discussion: Safe dose and tapering on Glucocorticoid therapy.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29 7:10am

It did and I know that meth has really helped others. But when I got down...

https://connect.mayoclinic.org/comment/993805/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 8 11:15am

I'm hoping that I will be free of this soon but I also expect some pain...

https://connect.mayoclinic.org/comment/994675/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 7:11pm

I am so grateful to find this meeting place. I don't know anyone with PMR and...

https://connect.mayoclinic.org/comment/953437/

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 25, 2023

@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...

https://connect.mayoclinic.org/comment/1012549/

Discussion: ACR Convergence 2023 Nov -Program abstracts are available for view

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 11:50am

No doubt the prednisone was awesome if you haven't taken it for a long time. Pity...

https://connect.mayoclinic.org/comment/1003772/

Discussion: Methotrexate / Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 25 6:23pm

@mzamyl, I struggled my first time around with PMR and took 3 and half years to...

https://connect.mayoclinic.org/comment/694039/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

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