Polymyalgia Rheumatica (PMR) Support Group

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In retrospect, I should have tried harder to taper off Prednisone sooner. I tried to taper...

https://connect.mayoclinic.org/comment/1122952/

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2024

@jabrown0407 suggestions have merit. I took Prednisone for more than 12 years. My primary diagnosis was...

https://connect.mayoclinic.org/comment/1122681/

Discussion: Has anyone tried stem cell therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2024

I was treated for Lyme a month ago and then treated for PMR. The prednisone had...

https://connect.mayoclinic.org/comment/1121048/

Discussion: Lyme Disease and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 10, 2024

I just started my first taper from 15mg Prednisone to 12.5 a week ago. I have...

https://connect.mayoclinic.org/comment/1120561/

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2024

you dont say how far along this journey you are but like John mentioned the longer...

https://connect.mayoclinic.org/comment/1120069/

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

Prednisone myalgia is more about how muscles shrink or atrophy when someone is on Prednisone. The...

https://connect.mayoclinic.org/comment/1120065/

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

"None of these drugs work on helping to restart your cortisol." I mostly agree with this....

https://connect.mayoclinic.org/comment/1116415/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

I sympathize. Even on Prednisone, I have my good days and bad days. Never know which...

https://connect.mayoclinic.org/comment/1115831/

Discussion: Progression and Regression?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2024

Agreeing with assessments by tuckerp and DadCue. If your ESR and CRP are in the normal...

https://connect.mayoclinic.org/comment/1115716/

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2024

I was on prednisone for almost two years starting at 15 Mg but quickly learned my...

https://connect.mayoclinic.org/comment/1111907/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2024

I think there are many things that can lead to fatigue. You dont mention where you...

https://connect.mayoclinic.org/comment/1111477/

Discussion: Tiredness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25, 2024

I do have hot showers. They don't affect my pain one way or the other, but...

https://connect.mayoclinic.org/comment/1109212/

Discussion: Heating pad or ice pack

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 21, 2024

Hello @lilyonm I just had a setback after tapering from 30mg Prednisone ( May 2023) to...

https://connect.mayoclinic.org/comment/1108425/

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19, 2024

The facial changes (“moon face”) usually happen at higher doses. As you taper off the prednisone...

https://connect.mayoclinic.org/comment/1107478/

Discussion: Newly Diagnosed with PMR: Anyone 51 or had it a long long time?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 18, 2024

I meant to add that as I had severe adverse affects within a month of taking...

https://connect.mayoclinic.org/comment/1105668/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2024

You are a miracle child. You need to donate to science. Ok. I agree. I had...

https://connect.mayoclinic.org/comment/1103030/

Discussion: Circulating cortisol levels -- Does it have an effect on PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

"Some studies have suggested that the bodies inability to produce enough cortisol in a PMR trigger...

https://connect.mayoclinic.org/comment/1103002/

Discussion: Circulating cortisol levels -- Does it have an effect on PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

I would agree completely with both articles. But I have the thought that PMR symptoms is...

https://connect.mayoclinic.org/comment/1102958/

Discussion: Circulating cortisol levels -- Does it have an effect on PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

I believe it is just something to get used to. We are all different, but in...

https://connect.mayoclinic.org/comment/1102742/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10, 2024

What was the time frame for all of this tapering. I took prednisone for 12 years...

https://connect.mayoclinic.org/comment/1102567/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

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