Lyme Disease and PMR

Posted by girastancil @girastancil, Aug 23 6:23am

Does anyone know (or know of research) connecting PMR and Lyme disease. I have all the PMR characteristics but no indicators in my blood work. I had lyme disease 4 years ago but it was recognized early and treated with antibiotics. thank you

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) group.

Good question @girastancil, PMR is difficult to diagnose and there are other condtions that mimic PMR. Here are a few resources on the topic.

— Polymyalgia rheumatica or Lyme disease? How to avoid misdiagnosis in older patients:
https://pubmed.ncbi.nlm.nih.gov/7816713/
— Letters: Don’t Forget Lyme Disease When Considering Polymyalgia Rheumatica:
https://www.the-rheumatologist.org/article/letters-dont-forget-lyme-disease-when-considering-polymyalgia-rheumatica/
— Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica

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I had Lyme disease for the third time in the summer of 2021. I completed a month of doxycycline in July 2021. In early August I began to develop severe shoulder and hip pain that was diagnosed as PMR a month later. (my doctor had retired and I needed to find a new doctor). I asked Mayo if there was a relationship, but did not get a reply. It has been a year and I have reduced my prednisone from the initial 20 mg. to 2 mg. I tried to go down to 1 mg, but developed a stiff neck and upper back pain. I thought it might be my arthritis, but as soon as a upped my prednisone to 2 mg. I felt much better.

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I don’t believe Lyme causes PMR. I was walking around with severe pain for months before the elevated sed rate and CRP showed up in my blood work. I’m on 1/2 mg now and do have pain in upper arms and shoulders. I am not going back on prednisone unless it becomes unbearable. It’s caused other issues for me.

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@johnbishop

Good question @girastancil, PMR is difficult to diagnose and there are other condtions that mimic PMR. Here are a few resources on the topic.

— Polymyalgia rheumatica or Lyme disease? How to avoid misdiagnosis in older patients:
https://pubmed.ncbi.nlm.nih.gov/7816713/
— Letters: Don’t Forget Lyme Disease When Considering Polymyalgia Rheumatica:
https://www.the-rheumatologist.org/article/letters-dont-forget-lyme-disease-when-considering-polymyalgia-rheumatica/
— Diseases that mimic polymyalgia rheumatica (PMR): https://www.medicalnewstoday.com/articles/diseases-that-mimic-polymyalgia-rheumatica

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Exactly that was one of the tests they ordered in very beginning for me.

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@flymetothemoon

I don’t believe Lyme causes PMR. I was walking around with severe pain for months before the elevated sed rate and CRP showed up in my blood work. I’m on 1/2 mg now and do have pain in upper arms and shoulders. I am not going back on prednisone unless it becomes unbearable. It’s caused other issues for me.

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But you don't know correct? I have no sed elevated sed rate and their is ample research linking the too. In addition most doctors will tell you we know very little about lyme. I have all the classic symptoms of PMR and had a nasty jolt of lyme about 4 years ago. Will find out as I've been accepted to the Johns Hopkins clinic studying lyme disease. Will post the results later in the year as I find out.

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@girastancil

But you don't know correct? I have no sed elevated sed rate and their is ample research linking the too. In addition most doctors will tell you we know very little about lyme. I have all the classic symptoms of PMR and had a nasty jolt of lyme about 4 years ago. Will find out as I've been accepted to the Johns Hopkins clinic studying lyme disease. Will post the results later in the year as I find out.

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I hope you get some answers. I just know that I had pain for almost a year before my blood tests were elevated. I also thought it may have been lyme. My husband treats a lot of patients with eye issues from PMR so he knows a lot about the condition. An uphill climbs for sure.

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thank you! Would you mind sharing the kinds of eye issues? About the time all this started I had a large floater along with a haze over about a third of my right eye. Also a streak or arc of white light along the left curvature of the eye.

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I also would like to hear about eye issues connected with PMR. I was diagnosed with epischleritis in the early 1990's. I go to a corneal specialist for my eyes, but have not been to the corneal specialist since bring diagnosed with PMR.

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@flymetothemoon @loyal @girastancil and others wanting to hear more about PMR and eye issues – There is another discussion on the topic here:

— PMR and vision: https://connect.mayoclinic.org/discussion/pmr-and-vision/

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Anyone with diagnosed with PMR should see an Ophthalmologist not an Optometrist.

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My blood work did NOT show indications of PMR, but my doctor says he now has 2 patients who have PMR but it did not show up from the blood panel.

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