Polymyalgia Rheumatica (PMR) Support Group

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HI Kerry, I agree with John that an anti-inflammatory diet helps. I'm a registered dietitian and...

https://connect.mayoclinic.org/comment/1323484/

Discussion: New to this support group.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9, 2025

I can only speak for myself, but I had a mild case to begin with, which...

https://connect.mayoclinic.org/comment/1299659/

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2025

not a doc but the carpal tunnel diagnosis sounds solid. however see if he can get...

https://connect.mayoclinic.org/comment/1178795/

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

That was more will power. Knowing the damage first hand the steroid causes. I was determined...

https://connect.mayoclinic.org/comment/1077234/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2024

The right dose initially should have gotten rid of the pain. Maybe they need to check...

https://connect.mayoclinic.org/comment/790728/

Discussion: Good days and bad days

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2022

I was on Pred for two years, dosage up and down several times. I kept trying...

https://connect.mayoclinic.org/comment/138113/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13, 2020

I feel your pain literally. I am off Prednisone after 3 years. I'm going to see...

https://connect.mayoclinic.org/comment/759020/

Discussion: Increasing unrelenting pain - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2022

Every body is different! I didn’t have a rapid onset. My rheumatologist diagnosed PMR after an...

https://connect.mayoclinic.org/comment/1430848/

Discussion: Does anyone else feel isolated and misunderstood?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2025

It is very interesting to read these varied medication stories. I might as well add mine...

https://connect.mayoclinic.org/comment/974780/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 4, 2023

@johnbishop That's very interesting regarding aldosteronism. I've googled it and it could be a possibility for...

https://connect.mayoclinic.org/comment/1476295/

Discussion: Would you take blood pressure medication?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 2:40am

Seems like this is a common issue. I had mild osteoarthritis in one joint of one...

https://connect.mayoclinic.org/comment/1064334/

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2024

Like all of you, I have found that coming to grips with the taper has been...

https://connect.mayoclinic.org/comment/946953/

Discussion: Has anyone else had pain return after reducing pred by only 2.5 mg?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13, 2023

Many thanks rocksology. I appreciate your response. Yes, over the years I've had my heart checked...

https://connect.mayoclinic.org/comment/1273482/

Discussion: Bear with me on this long post if you can.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2025

My rheumy told me the adrenal gland starts making cortisol at around 8 to 10 in...

https://connect.mayoclinic.org/comment/1159326/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

I take Actemra weekly injections, like an EpiPen, along with my Prednisone. I was diagnosed in...

https://connect.mayoclinic.org/comment/856743/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

I am down to 2.5mg prednisone from 15mg a year ago. Also taking 400mg plaquenil daily....

https://connect.mayoclinic.org/comment/1232924/

Discussion: PMR Flare with New Issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2025

Goodness! I had hand pain, wrist pain, the start of carpal tunnel, and weakness in my...

https://connect.mayoclinic.org/comment/1229711/

Discussion: Neuropathy in Hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 4, 2025

Hi! I am one of those with the purple bruises and skin tears. One (small) tear...

https://connect.mayoclinic.org/comment/1117082/

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 3, 2024

My husband is scheduled for carpal tunnel surgery this Tuesday, because of severe pain and numbness...

https://connect.mayoclinic.org/comment/1178680/

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

Thanks for sharing your story, Peanuts. My Doctor, like yours, told me that I would be...

https://connect.mayoclinic.org/comment/137863/

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2019

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