Polymyalgia Rheumatica (PMR): Discussions | Page 24

I started Kevzara 6 weeks ago and I love it. I was able to drop from...

https://connect.mayoclinic.org/comment/1330500/

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 10:16am

@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...

https://connect.mayoclinic.org/comment/1298146/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 11:16am

For many autoimmune conditions, prednisone is used initially as a "bridge" to treatment with a biologic....

https://connect.mayoclinic.org/comment/1277100/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8 11:05am

Hi, Robin. I had an onset of PMR last December and like you was very concerned...

https://connect.mayoclinic.org/comment/1163352/

Discussion: Anyone have experience with Low Dose Naltrexone instead of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 27, 2024

I have had both Pfizer Covid shot and flu vaccine now on 1 mg and tapering...

https://connect.mayoclinic.org/comment/1162053/

Discussion: Need to decide to get a Covid Shot while I have PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 24, 2024

Hello @lsm47 I was thinking about your post today while in the pool at the JCC....

https://connect.mayoclinic.org/comment/1161452/

Discussion: PMR with normal labs and having severe thigh pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 23, 2024

The following video is my favorite. https://www.youtube.com/watch?v=7tYNlKpGzoA -------------------- There are some very slow tapering schemes that...

https://connect.mayoclinic.org/comment/1160506/

Discussion: Pain - at back of knees?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

What injection med are you using? I use kevzara bi-monthly. My doctor wants me to wean...

https://connect.mayoclinic.org/comment/1160388/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

I forgot to mention that the first time my PMR was active it took me 3...

https://connect.mayoclinic.org/comment/1159783/

Discussion: Neck and lower head pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2024

I didn't understand the complexity of getting off Prednisone until someone who had an adrenal crisis...

https://connect.mayoclinic.org/comment/1159533/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

For about 20 years, all I knew was to start with 60 mg of Prednisone and...

https://connect.mayoclinic.org/comment/1155867/

Discussion: PMR to RA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

This last go round, my Rheumatologist gave me the option of Acterma, but then decided to...

https://connect.mayoclinic.org/comment/1153626/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 7, 2024

Well, my third attempt at tapering didn't end well, same as the first two. I went...

https://connect.mayoclinic.org/comment/1152260/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2024

I’d love to try a biologic to get off prednisone but until I get a specialist...

https://connect.mayoclinic.org/comment/1151948/

Discussion: Has anyone experienced steroid myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4, 2024

I had a great response from Actemra. My first dose was on January 1st, 2019. It...

https://connect.mayoclinic.org/comment/1150722/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

My Rheum tells me that the inflammation and pain from PMR is NOT a sign of...

https://connect.mayoclinic.org/comment/1148813/

Discussion: Weaning off of all medicine - prednisone and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2024

I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...

https://connect.mayoclinic.org/comment/1147078/

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2024

@dadcue @tuckerp OMG, you guys read my mind, lol. I was just thinking of what I...

https://connect.mayoclinic.org/comment/1147017/

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2024

Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...

https://connect.mayoclinic.org/comment/1144491/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

Hi there, I am on a nine week tapering off the Prednisone. From a very high...

https://connect.mayoclinic.org/comment/1144289/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

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