Polymyalgia Rheumatica (PMR) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

3,995 total results

Comments (3,782)

What injection med are you using? I use kevzara bi-monthly. My doctor wants me to wean...

https://connect.mayoclinic.org/comment/1160388/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

I forgot to mention that the first time my PMR was active it took me 3...

https://connect.mayoclinic.org/comment/1159783/

Discussion: Neck and lower head pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2024

I didn't understand the complexity of getting off Prednisone until someone who had an adrenal crisis...

https://connect.mayoclinic.org/comment/1159533/

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 19, 2024

For about 20 years, all I knew was to start with 60 mg of Prednisone and...

https://connect.mayoclinic.org/comment/1155867/

Discussion: PMR to RA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12, 2024

This last go round, my Rheumatologist gave me the option of Acterma, but then decided to...

https://connect.mayoclinic.org/comment/1153626/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 7, 2024

Well, my third attempt at tapering didn't end well, same as the first two. I went...

https://connect.mayoclinic.org/comment/1152260/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 5, 2024

I’d love to try a biologic to get off prednisone but until I get a specialist...

https://connect.mayoclinic.org/comment/1151948/

Discussion: Has anyone experienced steroid myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 4, 2024

I had a great response from Actemra. My first dose was on January 1st, 2019. It...

https://connect.mayoclinic.org/comment/1150722/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

My Rheum tells me that the inflammation and pain from PMR is NOT a sign of...

https://connect.mayoclinic.org/comment/1148813/

Discussion: Weaning off of all medicine - prednisone and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2024

I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...

https://connect.mayoclinic.org/comment/1147078/

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2024

@dadcue @tuckerp OMG, you guys read my mind, lol. I was just thinking of what I...

https://connect.mayoclinic.org/comment/1147017/

Discussion: PMR and Fatigue. Interesting study

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2024

Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...

https://connect.mayoclinic.org/comment/1144491/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

Hi there, I am on a nine week tapering off the Prednisone. From a very high...

https://connect.mayoclinic.org/comment/1144289/

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20, 2024

Hi @dadcue! You asked "Did anyone ever tell you that your taper was too fast?" The...

https://connect.mayoclinic.org/comment/1144057/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

Your treatment sounds unconventional to me. Maybe read this new post. https://connect.mayoclinic.org/discussion/pmr-and-prednisone/?pg=1#comment-1143766 ---------------------------- or the following:...

https://connect.mayoclinic.org/comment/1143833/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2024

No floaters but my vision has been blurry and eyes horribly filled with blood like pinkeye...

https://connect.mayoclinic.org/comment/1143021/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2024

I'm not giving medical advice. I'm just sharing what my experience was. Good luck! I wish...

https://connect.mayoclinic.org/comment/1142992/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2024

I would think you might need more than 2.5 mg of prednisone before starting Kevzara. It...

https://connect.mayoclinic.org/comment/1142909/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2024

It was similar for me. A six month odyssey of worse and worse muscle pain made...

https://connect.mayoclinic.org/comment/1142164/

Discussion: symptoms present but lab markers aren't high

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15, 2024

Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an...

https://connect.mayoclinic.org/comment/1139108/

Discussion: Trembling and shaking, no energy - PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 9, 2024

Autoimmune Diseases

Follow

16205

28 minutes ago

Follow

15402

2 hours ago

Visiting Mayo Clinic

Follow

5665

2 hours ago

Follow

2985

3 hours ago

Follow

11785

7 hours ago