Polymyalgia Rheumatica (PMR) Support Group | Page 20

@kayept Being from California, as well as having grown up in wine country, I am a...

https://connect.mayoclinic.org/comment/1535543/

Discussion: Moderate Use of Alcohol

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26 6:46am

@randersonccc I'm so happy to read this. It validates some of the positives I have experienced...

https://connect.mayoclinic.org/comment/1537999/

Discussion: GLP-1 Drugs Effects on PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 12:12pm

20 mgs is highest dose of Lefludimide but they also make 10 mgs. I’m a little...

https://connect.mayoclinic.org/comment/1527705/

Discussion: Has anyone had experience w Leflunomide( Arava)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 15 4:30pm

@jfannarbor Yes .. according to my medical records, my Prednisone use has spanned "decades." I would...

https://connect.mayoclinic.org/comment/1526107/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 2:03pm

@janb62 Hi Jan. Glad you reached out. Yes! The infusion is an easier way to go,...

https://connect.mayoclinic.org/comment/1523489/

Discussion: Are others with GCA and PMR on Tyenne Monthly Infusions?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 6:37pm

@rhb80 … thanks for the focus on percent reductions for tapering. My new GP verified /...

https://connect.mayoclinic.org/comment/1523345/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 2:16pm

I came off prednisone in mid-December after being on and off it for over a year....

https://connect.mayoclinic.org/comment/1522714/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 5:47pm

My taper was 1/2 mg per months for almost 2 years. I have been off Prednisone...

https://connect.mayoclinic.org/comment/1522233/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 8:20am

I had symptoms for at least a couple of months before they became severe enough to...

https://connect.mayoclinic.org/comment/1522222/

Discussion: Classic PMR symptoms but...

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8 8:11am

Everyone, Kevzara was approved in2017, according to the internet. I have just come off 11 months...

https://connect.mayoclinic.org/comment/1522060/

Discussion: When to taper prednisone when starting kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7 9:19pm

@irene6754 It is a very long story! Yes ... I eventually managed to get off Prednisone....

https://connect.mayoclinic.org/comment/1521243/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 6 6:59pm

@pah17 I had the same issue, ie, not really knowing how much pain was acceptable….my doc...

https://connect.mayoclinic.org/comment/1520500/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 5 5:12pm

@dadcue I spent 6 weeks at 60 mg, and then 6 more weeks tapering 5 mg...

https://connect.mayoclinic.org/comment/1519701/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 4:05pm

@bbrass I was on prednisone for eight months. The prednisone controlled my GCA as well as...

https://connect.mayoclinic.org/comment/1519581/

Discussion: Biologic Medications-Video about how to decide what is right for you.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 1:54pm

@jeff97 When you google more than a year on Prednisone, you get something different. It is...

https://connect.mayoclinic.org/comment/1519346/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 10:09am

Thanks for posting this video. It was helpful in learning a little more about biológics. I...

https://connect.mayoclinic.org/comment/1518512/

Discussion: Biologic Medications-Video about how to decide what is right for you.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 10:15am

@randersonccc Just so you know... I was told that I shouldn't taper any lower than 3...

https://connect.mayoclinic.org/comment/1518081/

Discussion: Biologic Medications-Video about how to decide what is right for you.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 5:15pm

I'd like to update to my original post. I went for a follow through with my...

https://connect.mayoclinic.org/comment/1516829/

Discussion: Prednisone Taper Stories

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 9:41pm

@kathy22wright Thank you so much for your comments! The frustrations that I felt after leaving the...

https://connect.mayoclinic.org/comment/1516336/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 8:46am

@diegory My 50# weight gain was probably within the first 5 years of starting Prednisone for...

https://connect.mayoclinic.org/comment/1515919/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 2:03pm