Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,992)

https://connect.mayoclinic.org/comment/1356339/

Discussion: small red blotches on skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 25 4:06pm

Not much can be done about the adrenal suppression and a low cortisol level. It is...

https://connect.mayoclinic.org/comment/1356930/

Discussion: small red blotches on skin

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 26 11:27am

"My pharmacist buddy says 2 mg of prednisone really does not do much for you." "Does...

https://connect.mayoclinic.org/comment/1358552/

Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28 1:48pm

I took Kevzara for 4 months and felt good very quickly. I tapered without pain from...

https://connect.mayoclinic.org/comment/1358555/

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28 1:52pm

I’m just one person but my first time with PMR lasted 3 and a half years...

https://connect.mayoclinic.org/comment/1358554/

Discussion: Polymyalgia rheumatica: Any thoughts on my taper plan?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 28 1:48pm

Thank you for posting about dizziness. I have been experiencing the same thing. Sometimes I walk...

https://connect.mayoclinic.org/comment/1360554/

Discussion: Has anyone experienced dizziness with medication for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 8:46am

I don't fit your criteria but I am commenting anyway. I am in my seventh year...

https://connect.mayoclinic.org/comment/1360500/

Discussion: PMR and Flu Vaccine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 31 7:45am

Wonderful!! Taking Prednisone is more like art than science. What art I like might not be...

https://connect.mayoclinic.org/comment/1343993/

Discussion: Diagnosed with PMR 16 days ago.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 7:11pm

OMG, another person with teeth pain! My rheumatologist said bluntly, "go see a dentist". Blurry vision...

https://connect.mayoclinic.org/comment/1347426/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 13 3:14pm

So, I went to the Rheumatologist and she wants me to go on methotrexate and actemra...

https://connect.mayoclinic.org/comment/1349843/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16 5:40pm

Hi again Dad, Missed your messages. I apologize for not staying more interested…just quite disappointed in...

https://connect.mayoclinic.org/comment/1341229/

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4 7:01pm

"I guess this is pretty much a "see how it goes" routine for now. A whole...

https://connect.mayoclinic.org/comment/1335378/

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 26 7:05am

Thank you! I just saw the doctor yesterday, and he wants me to continue to tapper....

https://connect.mayoclinic.org/comment/1339027/

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 1 10:05am

Not off prednisone yet but down to 2 mg/day over last 10 months. I haven’t run...

https://connect.mayoclinic.org/comment/1338812/

Discussion: New to PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30 7:56pm

I am having almost the exact same reaction. A month ago, I had a physical with...

https://connect.mayoclinic.org/comment/1339744/

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2 12:15pm

Your inflammation markers being normal may only indicate the current dose of prednisone is correctly eliminating...

https://connect.mayoclinic.org/comment/1340643/

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3 6:56pm

Doc, I have been under treatment for GCA and PMR for 12 months. I started at...

https://connect.mayoclinic.org/comment/1343543/

Discussion: PMR/GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 7:46am

Did you enjoy the meteor showers of flashing lights? I would have every kind of visual...

https://connect.mayoclinic.org/comment/1343971/

Discussion: New onset uveitis while weaning steroids for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 6:20pm

That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...

https://connect.mayoclinic.org/comment/1332679/

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 11:28am

Doctor actually wanted to start the Actemra in July but Blue Cross insisted I be on...

https://connect.mayoclinic.org/comment/1333503/

Discussion: Temporal Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23 12:27pm

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