Polymyalgia Rheumatica (PMR) Support Group

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I should say that I have been off prednisone for 3 years except for when Actemra...

https://connect.mayoclinic.org/comment/813414/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2023

@richardab I am sorry to hear about your pain. Is your prednisone at a sufficiently high...

https://connect.mayoclinic.org/comment/812769/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 17, 2023

I was on prednisone for 3 and half years the first time my PMR was diagnosed....

https://connect.mayoclinic.org/comment/811759/

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023

I sympathize with you! I was diagnosed with PMR and took prednisone for 13 years before...

https://connect.mayoclinic.org/comment/808858/

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Feb 9, 2023

Dry eyes and a dry mouth are the most common symptoms of Sjogren's syndrome. https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216#:~:text=Sjogren's%20(SHOW%2Dgrins)%20syndrome,as%20rheumatoid%20arthritis%20and%20lupus. Psoriatic...

https://connect.mayoclinic.org/comment/808813/

Discussion: Myopathy?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9, 2023

I would say that the 10% is a good idea. However, I think your rheumatologist is...

https://connect.mayoclinic.org/comment/807307/

Discussion: Reducing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2023

I also have major hand issues and wish the connection between the hands and PMR could...

https://connect.mayoclinic.org/comment/805037/

Discussion: PMR and Hand issues

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1, 2023

Last year I suddenly developed debilitating and painful symptoms - later diagnosed as PMR- after my...

https://connect.mayoclinic.org/comment/803636/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30, 2023

Hi @ctipmarie, my Rheumatologist put me on 40 mg of prednisone for Giant Cell Arteritis to...

https://connect.mayoclinic.org/comment/802487/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 27, 2023

@samara66 It was a combination of autoimmune related inflammatory arthritis along with PMR. There was also...

https://connect.mayoclinic.org/comment/838755/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2023

Wow I hope it was. The Naltrexone has so few side effects compared with prednisone. Frankly...

https://connect.mayoclinic.org/comment/838194/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 5, 2023

I hated being on prednisone! But, it was the only way to stop the pain and...

https://connect.mayoclinic.org/comment/832610/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2023

The doctor has given me a 6 month tapering schedule with the weekly injections of Actemra....

https://connect.mayoclinic.org/comment/836149/

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2023

My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...

https://connect.mayoclinic.org/comment/840706/

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2023

I only had/have inactive pain while in bed. Once I got out of bed, I was...

https://connect.mayoclinic.org/comment/799456/

Discussion: Does anyone take Turmeric/Curcumin to help with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 20, 2023

My Rheumatologist had me split the dose 2mgAM 2mgPM until I had some strong “PMRsymptoms/Prednisone Withdrawal...

https://connect.mayoclinic.org/comment/797423/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 16, 2023

After 2 plus years on prednisone, I have tapered to 1 mg for a month and...

https://connect.mayoclinic.org/comment/796013/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13, 2023

I have been on Actemra for six months. It has allowed me to taper to 1...

https://connect.mayoclinic.org/comment/776265/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2022

I certainly would not go cold, turkey being on 20 mg. I have repeatedly heard that’s...

https://connect.mayoclinic.org/comment/801040/

Discussion: Confused: Tapering vs cold turkey stopping prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 24, 2023

Judy here- I've been taking monthly actemra infusions for 6 months. Much improved symptoms and able...

https://connect.mayoclinic.org/comment/776217/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 22, 2022

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