Polymyalgia Rheumatica (PMR) Support Group

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I am 72, have had PMR for over a year now, on prednisone for almost a...

https://connect.mayoclinic.org/comment/720312/

Discussion: Questioning my diagnosis of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23, 2022

Welcome @suemce, It sounds like your tapering down on prednisone is going pretty good. You are...

https://connect.mayoclinic.org/comment/720102/

Discussion: PMR flare without a dose reduction

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22, 2022

I started over a year ago with 5 mg and have tapered down to 2 mg...

https://connect.mayoclinic.org/comment/718503/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17, 2022

The Rheumatologist was as her reviews depicted her. My approach was to go in with an...

https://connect.mayoclinic.org/comment/713083/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31, 2022

I am curious to learn how long it may take to taper off. My husband is...

https://connect.mayoclinic.org/comment/712771/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 30, 2022

I was diagnosed with PMR in early 2020 and ceased Prednisone entirely at the end of...

https://connect.mayoclinic.org/comment/710004/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2022

What you are experiencing is not normal. It saddens me to read the replies and how...

https://connect.mayoclinic.org/comment/709596/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19, 2022

No one wants to increase prednisone, but if you let the inflammation accumulate, you'll wind up...

https://connect.mayoclinic.org/comment/709010/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2022

Hi @emma321 Ihad PMR, undiagnosed, then Giant Cell Arteritis, diagnosed by temporal artery biopsy a year...

https://connect.mayoclinic.org/comment/707683/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12, 2022

Yes ... I was offered Actemra (tocilizumab) for PMR after "all other treatment alternatives failed." That...

https://connect.mayoclinic.org/comment/825958/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Hello @lestep, I would like to add my welcome to Connect along with @tillysam and others....

https://connect.mayoclinic.org/comment/825893/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2023

Spondylitis is like what you describe. It is a progressive type of autoimmune disorder. In the...

https://connect.mayoclinic.org/comment/825576/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

From my experience with uveitis and other autoimmune problems, I would tend to agree with the...

https://connect.mayoclinic.org/comment/825346/

Discussion: Initial Dosage of Prednisone Impacts Long Term Recovery

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13, 2023

Good paper. There were possible mechanisms discussed for LDN that I was unaware of. My general...

https://connect.mayoclinic.org/comment/822849/

Discussion: Low Dose Naltrexone and Prednisone for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 8, 2023

Welcome to Connect @barbiek! It is a great site where we are all in this together...

https://connect.mayoclinic.org/comment/822295/

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

John - Thank you for the great link and explanation! I’ve been on the pred rollercoaster...

https://connect.mayoclinic.org/comment/822269/

Discussion: How does one know when it is OK to start a slow taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 7, 2023

I had an "interesting" experience with double vision. I think it was generated by PMR inflammation....

https://connect.mayoclinic.org/comment/820676/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4, 2023

Thank-you ... I will check out what ED582 has to say. To my knowledge, nobody on...

https://connect.mayoclinic.org/comment/819434/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1, 2023

Thanks for this detailed and thoughtful reply. It is very, very helpful to understand and compare...

https://connect.mayoclinic.org/comment/818709/

Discussion: Tapering off of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28, 2023

Hi @redboat, I told my rheumatologist there is nothing like the pain of PMR. I called...

https://connect.mayoclinic.org/comment/813533/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18, 2023

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