Polymyalgia Rheumatica (PMR): Discussions | Page 19

Thank you very much. ☺️For me every time I tried to taper below 4mg of prednisone...

https://connect.mayoclinic.org/comment/1302709/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 4:18pm

Hello, I’m 62 and was diagnosed in 2021. I’ve been on prednisone since and was started...

https://connect.mayoclinic.org/comment/1312511/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 11:38am

A biologic like Kevzara introduces another variable into the tapering process. When I tried another biologic...

https://connect.mayoclinic.org/comment/1308288/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 7:09am

I suspect many people can taper by 1 mg per month. That is what the guidelines...

https://connect.mayoclinic.org/comment/1308271/

Discussion: Fast Prednisone taper?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20 6:46am

I'm assuming your "off label" use of Actemra is for PMR since it isn't FDA approved...

https://connect.mayoclinic.org/comment/1312929/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25 9:39pm

Viruses evolve. For flu and Covid, they have to keep updating the vaccines to deal with...

https://connect.mayoclinic.org/comment/1314949/

Discussion: When in PMR remission: What's your experience with covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 1:13pm

I have PMR, with intense pain. I’m on 15mg of prednisone. I was on 30mg and...

https://connect.mayoclinic.org/comment/1315138/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 4:32pm

That is another story. I took the plunge. I stopped Prednisone but did a "countdown taper."...

https://connect.mayoclinic.org/comment/1320239/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 12:31pm

Did you experience any symptoms of adrenal insufficiency? Adrenal suppression is probably inevitable with any dose...

https://connect.mayoclinic.org/comment/1322423/

Discussion: PMR (ending prednisone) and Osteoarthritis flare up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 7 3:56pm

"This is hard work for patients because for most of that time, you have to run...

https://connect.mayoclinic.org/comment/1320699/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 8:28am

Tapering off of prednisone and managing the PMR symptoms can be challenging. Keeping a daily log...

https://connect.mayoclinic.org/comment/1304504/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 7:54am

I began taking Prednisone in July 2024 for PMR/GCA. 60 mg. for 6 weeks. My voice...

https://connect.mayoclinic.org/comment/1304571/

Discussion: PMR with hand/wrist pain and swollen veins?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 15 9:20am

That sounds like poor options they are giving you for Rheumatologist appts but I know there...

https://connect.mayoclinic.org/comment/1302874/

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 12 8:30pm

After 3-4 months on Actemra, my prednisone taper came to an abrupt halt when I reached...

https://connect.mayoclinic.org/comment/1308018/

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 5:13pm

When I was first diagnosed (July 2024), I had severe pain from my hips to my...

https://connect.mayoclinic.org/comment/1298041/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 6 9:17am

Welcome @tyman23, Sorry to hear you've joined the PMR club but happy you have found Connect....

https://connect.mayoclinic.org/comment/1319172/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 7:59am

Diagnosed three years ago, and have tapered to a very low dose of prednisone. Although shoulder...

https://connect.mayoclinic.org/comment/1319098/

Discussion: Knee pain and PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:10am

"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...

https://connect.mayoclinic.org/comment/1327841/

Discussion: Weight based prednisone dosing

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 15 2:49pm

Mayo Connect is a good resource. There are many people in the USA being started on...

https://connect.mayoclinic.org/comment/1329973/

Discussion: Kevzara Experiences

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 1:49pm

My Mayo rheumatologist discussed the side effects with me when we discussed a tapering strategy to...

https://connect.mayoclinic.org/comment/1289010/

Discussion: Side effects of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 2:03pm

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