Polymyalgia Rheumatica (PMR) Support Group | Page 17

In Sept 2025 I first noticed stiffness and pain in my left hand and arm. This...

https://connect.mayoclinic.org/comment/1504723/

Discussion: Where have you experienced pain due to PMR?H

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13 9:39am

@tweetypie13 "The Dr. neglected to tell me that Kevzara would help me taper off of the...

https://connect.mayoclinic.org/comment/1501447/

Discussion: Off Prednisone but still feeling new type of pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 7:33am

@johnbishop I also am struggling with tapering down from 4.5 mg to 4mg of Prednisone. Been...

https://connect.mayoclinic.org/comment/1499481/

Discussion: Headaches while tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 11:40am

@nm11643 I would have said my prednisone side effects were "minimal" during my heyday of taking...

https://connect.mayoclinic.org/comment/1498493/

Discussion: Newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 5 7:39am

@elleninz Hi my diagnosis is the same as yours, but with PMR too. Actemera ( initially...

https://connect.mayoclinic.org/comment/1498333/

Discussion: Anyone experienced hair loss while taking or tapering Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 4 8:26pm

@stonewheel Yes ... everything is the same for Actemra injections. All the precautions and potential side...

https://connect.mayoclinic.org/comment/1496688/

Discussion: Is Kevzara that has been rerefrigerated still any good?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 5:21pm

@dlb3 I personally don't seem to be infection prone since being on a biologic alone. I...

https://connect.mayoclinic.org/comment/1496561/

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 2 2:44pm

Is Rinvoq working for you? Have you tapered off Prednisone? I'm currently being treated with a...

https://connect.mayoclinic.org/comment/1503669/

Discussion: Who is on Rinvoq for GCA vs Actemra?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 12 6:02am

I recommend you go to YouTube. Look up Dr Megan, the prednisone Pharmacist. She has over...

https://connect.mayoclinic.org/comment/1530811/

Discussion: Still confused about tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19 2:57pm

@pdxmac My rheumatologist told me yesterday that if bilateral pain returns while tapering, that is a...

https://connect.mayoclinic.org/comment/1529935/

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 18 1:01pm

I'm sorry that you have joined the PMR club. I started on 60 mg. of Prednisone...

https://connect.mayoclinic.org/comment/1530641/

Discussion: Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 19 10:46am

@jabrown0407 That is a great recommendation to get a second opinion. I was diagnosed with PMR...

https://connect.mayoclinic.org/comment/1533419/

Discussion: Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23 9:23am

What a timely and valuable post. I was diagnosed with PMR in October but changed to...

https://connect.mayoclinic.org/comment/1531407/

Discussion: Sharing ways to stop coping and start living!

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 20 11:51am

@susanlf Hello! I feel your pain! And I really mean that. YOU ARE NOT WHINING!! PMR...

https://connect.mayoclinic.org/comment/1536003/

Discussion: If you have PMR do you remember your childhood illnesses?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26 3:59pm

How long have you been off prednisone? It took time for my muscles and connective tissues...

https://connect.mayoclinic.org/comment/1537460/

Discussion: GOING TO A CHIROPRACTOR AND/OR A MASSAGE THERAPIST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28 4:45pm

@momokelly1 I started Tyenne in January and just had an episode of mild diverticulitis. I don't...

https://connect.mayoclinic.org/comment/1538577/

Discussion: Giant Cell Arteritis Diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 30 8:46am

I was getting a lot of pain when trying to taper too fast, ie. one mg...

https://connect.mayoclinic.org/comment/1537931/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29 11:05am

I have newly diagnosed PMR, and am starting a prednison taper. My rheumatologist is suggesting that...

https://connect.mayoclinic.org/comment/1539929/

Discussion: I have recently switched from Actemra to Tyenne due to insurance.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31 7:15pm

12.5 is a low side dose. It might help to go higher rather than split. You...

https://connect.mayoclinic.org/comment/1503087/

Discussion: Is this common?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 9:59am

@jfannarbor If you have been on it for 35 years I would suggest you talk to...

https://connect.mayoclinic.org/comment/1525989/

Discussion: Has anyone with PMR been able to get off prednisolone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 11:18am