Polymyalgia Rheumatica (PMR) Support Group

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I had issues with lightheadedness while on methotrexate. Saw every specialist they could think of since...

https://connect.mayoclinic.org/comment/781149/

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2022

I think you might need a new rheumatologist who will listen. Sometimes I feel like I'm...

https://connect.mayoclinic.org/comment/703908/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 29, 2022

It took almost 6 months to be diagnosed with GCA. Part of it was my fault...

https://connect.mayoclinic.org/comment/702720/

Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26, 2022

I have had PMR for a year now, and am down to 3mg. of prednisone. I...

https://connect.mayoclinic.org/comment/698232/

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2022

Hi John, Yes my PMR is still active and I am still tapering off prednisone. I...

https://connect.mayoclinic.org/comment/697968/

Discussion: Buttock/tailbone pain, sitting or lying down - symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2022

My internist, who I originally saw about my pain that turned out to be caused by...

https://connect.mayoclinic.org/comment/697842/

Discussion: Melatonin and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 10, 2022

I noticed that my left foot is slightly puffy in the mornings some days. I spoke...

https://connect.mayoclinic.org/comment/696569/

Discussion: Blood Clots - Connected with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 6, 2022

Hi @mzamyl, my rheumatologist told me that tapering is a fine balancing act. A doctor friend...

https://connect.mayoclinic.org/comment/694930/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 31, 2022

Having great difficulty with this taper. Went down 5 mg. on Feb. 23 which was not...

https://connect.mayoclinic.org/comment/694058/

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 29, 2022

@abbeyc, You will notice that we changed the title of your discussion to describe your question...

https://connect.mayoclinic.org/comment/693817/

Discussion: New to PMR - Are Monthly Labs and Check-ups normal?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2022

My understanding is that we need to be pain free In order for the Prednisone taper...

https://connect.mayoclinic.org/comment/693738/

Discussion: Experience with Methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2022

I was originally diagnosed with PMR over 2 years ago. I went on a 10 month...

https://connect.mayoclinic.org/comment/747383/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 9, 2022

I had 3 Pfizer vaccines and on my 4th vaccine, I decided to “mix it up”...

https://connect.mayoclinic.org/comment/745221/

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 3, 2022

Welcome @gipsie, Sorry to hear that your PMR came out after the COVID booster last December....

https://connect.mayoclinic.org/comment/740061/

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2022

Hi …I agree that’s it works better to ramp down slowly. I’ve had PMR since last...

https://connect.mayoclinic.org/comment/739179/

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19, 2022

Mine was shedding a lot. Very upsetting. Also noticed it with each taper. Now pretty much...

https://connect.mayoclinic.org/comment/738754/

Discussion: Hair loss from PMR or Steroids?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18, 2022

So..a quick and straightforward question…actually two. 1. Do we not taper our prednisone dose AT ALL...

https://connect.mayoclinic.org/comment/738359/

Discussion: Prednisone tapering is challenging. What does remission feel like?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2022

Yes, there does seem to be relationship between moderate exercise and increased PMR symptoms with lower...

https://connect.mayoclinic.org/comment/742148/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2022

I'm in a similar situation as @susiequeue . The ER started me on one of the...

https://connect.mayoclinic.org/comment/742129/

Discussion: Urgent Question Regarding Prednisone Burst Dosage

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2022

I was diagnosed with PMR in March 2022 and started on 20 mg of Prednisone with...

https://connect.mayoclinic.org/comment/741994/

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2022

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