Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,781)

I’m 61, but was diagnosed with PMR at 60 by a rheumatologist. I started with 20...

https://connect.mayoclinic.org/comment/1290394/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 26 11:27am

It sounds like 5 mg is your "lowest effective dose." To be at 5 mg already...

https://connect.mayoclinic.org/comment/1295264/

Discussion: PMR tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2 5:09pm

I agree with @megz that the advice to stop prednisone when your dose is 7 mg...

https://connect.mayoclinic.org/comment/1296282/

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 4 9:24am

I've had a very good experience with Actemra for treating my PMR and GCA. I've been...

https://connect.mayoclinic.org/comment/1288861/

Discussion: Tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 10:51am

"My understanding of the initial tapering is that there is an assumption that the starting dose...

https://connect.mayoclinic.org/comment/1289247/

Discussion: What is the goal when tapering?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 24 9:23pm

Flares are hard to define for PMR. Most people just take more Prednisone for any uptick...

https://connect.mayoclinic.org/comment/1318811/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2 4:24pm

Don't get too discouraged. I was on Prednisone for 12 years before learning about Prednisone induced...

https://connect.mayoclinic.org/comment/1320385/

Discussion: Testing for Cortisol levels during taper of prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 4:20pm

"My fear is always GCA and did have some symptoms and a biopsy during my 3rd...

https://connect.mayoclinic.org/comment/1320655/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 7:24am

It seems that 3 mg or less is the magic dose to allow for adrenal recovery....

https://connect.mayoclinic.org/comment/1320809/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 5 10:46am

I can relate to the original comment. I was diagnosed with PMR a little over two...

https://connect.mayoclinic.org/comment/1320251/

Discussion: After "recovering" from PMR, still decreased strength/stamina

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4 12:51pm

What are you doing to tackle the root cause of your PMR? Prednisone is not a...

https://connect.mayoclinic.org/comment/1319110/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3 6:38am

I have had PMR for 2 years. Down now to 6 mg of prednisone, tapering.05 very...

https://connect.mayoclinic.org/comment/1329096/

Discussion: Ozempic for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 17 11:13am

Tapering off prednisone, 7.5mg this week. Also taking methotrexate. Torso stiffness an some pain. Not sure...

https://connect.mayoclinic.org/comment/1314926/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28 12:48pm

I can only tell you from my own experience. Doctors say not to taper if you...

https://connect.mayoclinic.org/comment/1315450/

Discussion: PMR relapse symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 7:01am

I am currently taking 15 mg MT once per week starting 4/1/25 with folate once per...

https://connect.mayoclinic.org/comment/1315552/

Discussion: Anyone having luck while taking methotrexate?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29 9:12am

I have been on Actemra for 6 years and have done Actemra infusions for the last...

https://connect.mayoclinic.org/comment/1317609/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 31 10:40pm

I was diagnosed with GCA in March 2025 and started 60 mg prednisone for one month...

https://connect.mayoclinic.org/comment/1318157/

Discussion: Actemra Infusions

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 7:33pm

His ego. When I told him that the Mayo clinic plus 4 other respected enities recommend...

https://connect.mayoclinic.org/comment/1317819/

Discussion: Shortness of breath ..dyspenia..while on prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 9:41am

Sitting at 3mg prednisone. Yes, I am feeling achy in the morning. Is this low grade...

https://connect.mayoclinic.org/comment/1323476/

Discussion: Trouble going below 3mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 9 8:37am

Generally speaking you need to give any biologic 3 months to see if it works. The...

https://connect.mayoclinic.org/comment/1329997/

Discussion: Tapering pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 18 2:25pm

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