Polymyalgia Rheumatica (PMR) Support Group

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I will be on it soon. Probably about the same time? Heard good reviews but I’d...

https://connect.mayoclinic.org/comment/1361397/

Discussion: Anyone successfully treating PMR without Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1 11:03am

Great news off pred. Glad to hear Kevzara going well. We don’t have a lot of...

https://connect.mayoclinic.org/comment/1366195/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8 8:14am

A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...

https://connect.mayoclinic.org/comment/1341138/

Discussion: Diagnosed with PMR 16 days ago.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 4 3:32pm

There are different benefits to all three ways of getting Actemra. I have done all three...

https://connect.mayoclinic.org/comment/1343798/

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 1:36pm

I was on prednisone for about 1 1/2 years. Took several attempts to taper to a...

https://connect.mayoclinic.org/comment/1345261/

Discussion: Infusion vs injection of tocilizumab (Actmera)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 10 2:12pm

I've been on Kevzara for 2 months and was at 5 mg prednisone when started. I've...

https://connect.mayoclinic.org/comment/1346882/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 12 11:09pm

Sadly ... other than lifestyle changes ... there doesn't seem like there is much you can...

https://connect.mayoclinic.org/comment/1343496/

Discussion: PMR Remission

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 6:24am

Oh goodie, not just me. I'm in Florida and the summer humidity is a killer. Or...

https://connect.mayoclinic.org/comment/1352172/

Discussion: Hot, humid weather really increases my PMR symptoms.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20 7:52am

If you are having pain in the morning and not later in the day you might...

https://connect.mayoclinic.org/comment/1373455/

Discussion: Polymyalia Rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18 11:36am

Hello @mjontour. I'm now at 2.5 years with PMR. @73 now, down to 1mg (starting today)...

https://connect.mayoclinic.org/comment/1371216/

Discussion: PMR and fatigue

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15 10:50am

Actemra also has a boxed warning from the FDA and the wording is almost identical to...

https://connect.mayoclinic.org/comment/1348154/

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14 1:44pm

As @jeff97 has detailed all those things are potential problems from "long term" prednisone use. I...

https://connect.mayoclinic.org/comment/1374954/

Discussion: Still Struggling with that last mile on the path to 0 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20 10:03am

I was diagnosed with PMR (finally) in May 2015. In May, my family doctor put me...

https://connect.mayoclinic.org/comment/1373522/

Discussion: Using methotrexate with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 18 12:36pm

What I have found from the chat room, other PMR people, and my own Dr is...

https://connect.mayoclinic.org/comment/1332891/

Discussion: Recently Diagnosed PMR Disease Progression

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 22 3:33pm

I’m on 8mg prednisone for 2 months, my dr told me to try and take 1/2...

https://connect.mayoclinic.org/comment/1334044/

Discussion: PMR and the taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24 9:35am

I was diagnosed with PMR end November 2024. I am currently on 8mg of prednisone per...

https://connect.mayoclinic.org/comment/1333116/

Discussion: Down to 1mg prednisone and then extreme fatigue sets in.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 23 3:09am

Doctor wanted to start in July but my Blue Cross would t approve until I was...

https://connect.mayoclinic.org/comment/1334522/

Discussion: Temporal Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 24 8:04pm

"If the doctor is in too big a hurry to get you off prednisone, that can...

https://connect.mayoclinic.org/comment/1335121/

Discussion: Decreasing Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 4:26pm

Thank you for relating your experiences with these diseases. It sounds like I will be on...

https://connect.mayoclinic.org/comment/1368133/

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11 7:07am

I was wondering the same thing about disposing of sharps. Thanks for your input also! I...

https://connect.mayoclinic.org/comment/1370075/

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13 6:12pm

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