Polymyalgia Rheumatica (PMR) Support Group

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Right now, I am on all three drugs. Prednisone down to 8 mg. Methotrexate and Kevzara....

https://connect.mayoclinic.org/comment/1074782/

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2024

Reactive arthritis derives its name from a "reaction to an infection." https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/symptoms-causes/syc-20354838 It used to be...

https://connect.mayoclinic.org/comment/1074116/

Discussion: "Evolution" of Seronegative RA into PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2024

@JustinMcClanahan Thanks for inviting me to this page. I will check it out. My husband developed...

https://connect.mayoclinic.org/comment/1073329/

Discussion: Osteoporosis or PMR symptoms

Support Group: Osteoporosis & Bone Health

Posted: May 23, 2024

I'm not able to create a link but this is the URL for the report on...

https://connect.mayoclinic.org/comment/1071758/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2024

I did some research currently looking for that “miracle” for the pain I am dealing with...

https://connect.mayoclinic.org/comment/1071505/

Discussion: Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2024

Under the rule of it’s always something… I’m tapering off ophthalmic prednisone right now. Had cataract...

https://connect.mayoclinic.org/comment/1070484/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

Especially tough to balance when I had a flare of uveitis almost as soon as I...

https://connect.mayoclinic.org/comment/1070431/

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 18, 2024

@dadcue: My experience was very similar. I was previously active and doing a marathon gardening session...

https://connect.mayoclinic.org/comment/1069504/

Discussion: PMR target areas

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 17, 2024

I'm in a similar situation. I've been on prednisone for PMR since August 2021. I could...

https://connect.mayoclinic.org/comment/1065669/

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 10, 2024

I know that feeling, too. It's scary when you think you may have some horrible other...

https://connect.mayoclinic.org/comment/1064536/

Discussion: One month on prednisone. Bloodwork showed neutrophil high/lymphocytes

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2024

After Actemra was started ... what was the prednisone tapering recommendation that your doctor suggested? It...

https://connect.mayoclinic.org/comment/1062363/

Discussion: Facial puffiness? PMR/GCA on Prednisone/Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 5, 2024

"Then, doctors wrote on my med records that I had abused steroids." That's a shame your...

https://connect.mayoclinic.org/comment/1060913/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024

I came down with Covid end of March 2022. This happened 4 months after receiving the...

https://connect.mayoclinic.org/comment/1060853/

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024

I don’t know that I have much to add, but wanted to say you’re not alone....

https://connect.mayoclinic.org/comment/1060570/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2, 2024

Welcome @victoriab, PMR can definitely cause havoc with symptoms and flares when you are tapering off...

https://connect.mayoclinic.org/comment/1060470/

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

"Conclusions: Sarilumab showed significant efficacy in achieving sustained remission and reducing the cumulative glucocorticoid dose in...

https://connect.mayoclinic.org/comment/1058100/

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2024

@tedmbrady My husband developed PMR 5/2023 and then GCA (giant cell arteritis) in 2/2024. It's been...

https://connect.mayoclinic.org/comment/1056983/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2024

I agree, trust your rheumatologist, but be honest with him/her. You should not have to hurt...

https://connect.mayoclinic.org/comment/1054090/

Discussion: New PMR patient, wondering if mornings will become pain free someday

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 20, 2024

Hi all. I am off prednisone now for 15 weeks and off Kevzara since mid February....

https://connect.mayoclinic.org/comment/1052195/

Discussion: Has anyone fought Polymyalgia without prednisone successfully?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

I thought of one more thing - search around this site for 'split dose". -- that...

https://connect.mayoclinic.org/comment/1049641/

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2024

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