Polymyalgia Rheumatica (PMR) Support Group

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Comments (3,803)

The following link says the following: "A patient may notice a decrease in symptoms as soon...

https://connect.mayoclinic.org/comment/1277634/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9 8:19am

Good question. I’m asking myself the same thing. I’m in pain every morning but not in...

https://connect.mayoclinic.org/comment/1277211/

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 8 2:42pm

Artron9, I have been taking Actemra for 8 months, and it has been very beneficial for...

https://connect.mayoclinic.org/comment/1268334/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28 2:55am

My GP diagnosed my PMR, prescribed prednisone then referred me to a rheumatologist. My GP also...

https://connect.mayoclinic.org/comment/1247419/

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 28 1:16pm

My experience with the first rheumatologist wasn't ideal. I had a long standing diagnosis of reactive...

https://connect.mayoclinic.org/comment/1248134/

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 1:48pm

I think that evidently the dose you are currently taking isn't quite enough to control the...

https://connect.mayoclinic.org/comment/992151/

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 5, 2024

I was diagnosed with PMR and possible GCA in late July 2024. I started on 60...

https://connect.mayoclinic.org/comment/1248282/

Discussion: Do CPR and SED rate numbers correspond to pain levels?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 7:23pm

I was 52 when I was diagnosed with PMR. The difficulty I had with being diagnosed...

https://connect.mayoclinic.org/comment/1249255/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 8:25am

I agree with jeff97. After spending months with extreme pain and barely able to function let...

https://connect.mayoclinic.org/comment/1248501/

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 2 8:27am

I had the Covid booster and flu injections in Oct. My PMR symptoms have been worse...

https://connect.mayoclinic.org/comment/792064/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4, 2023

Between Mayo Connect and HealthUnlocked PMR group out of the UK, there are many thousands of...

https://connect.mayoclinic.org/comment/624108/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2021

@suebep, I was more worried about the moon face and weight gain but I did end...

https://connect.mayoclinic.org/comment/624063/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 7, 2021

Hi @klpintx, Welcome to Connect, an online community where patients and caregivers share their experiences, find...

https://connect.mayoclinic.org/comment/624592/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2021

I had written to this group a few weeks ago. I had been on 1 mg...

https://connect.mayoclinic.org/comment/744329/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 1, 2022

Not a tough choice for me in the future. I will NEVER get another flu vaccine!...

https://connect.mayoclinic.org/comment/717905/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2022

Me too. Chiropractor, physio and massage and nothing was helping (of course). So frustrating and expensive....

https://connect.mayoclinic.org/comment/718906/

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2022

Actemra (tocilizumab) was FDA approved to treat GCA back in 2017. I was started on Actemra...

https://connect.mayoclinic.org/comment/1257180/

Discussion: Anyone tried Kevzara for PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 13 3:07pm

Hi @debbiebas216 , I am on a similar taper schedule, 8mg reducing 1mg every 4 weeks....

https://connect.mayoclinic.org/comment/1257680/

Discussion: PMR and pain levels

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14 9:32am

I achieved remission as measured by SED and CRP testing in three months after initial diagnosis....

https://connect.mayoclinic.org/comment/1174996/

Discussion: Length of PMR condition

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17, 2024

Have you completed a prednisone taper while keeping records of stiffness and pain? That is how...

https://connect.mayoclinic.org/comment/1285102/

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 19 5:39am

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