Polymyalgia Rheumatica (PMR): Discussions | Page 12

@dadcue It's true; weekly injections of Actemra worked great for me! Before starting Actemra, I was...

https://connect.mayoclinic.org/comment/1141672/

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14 10:57pm

The minute by minute need for cortisol is variable and the body regulates the amount of...

https://connect.mayoclinic.org/comment/1140575/

Discussion: FDA approved Tyenne significantly cheaper biosimilar to Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12 4:51pm

My symptoms are all consistent with PMR. Ditto for inflammation markers. My pain and other symptoms...

https://connect.mayoclinic.org/comment/1142583/

Discussion: Is progress being made in understanding PMR/GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 16 4:54pm

Sadly ... we are told to take prednisone for more than a year for PMR. Then...

https://connect.mayoclinic.org/comment/1142778/

Discussion: If you have tapering problems below 5 mg this might explain why.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17 7:07am

I was diagnosed with PMR about one year ago. I started at 20 mg of Prednisone...

https://connect.mayoclinic.org/comment/1144606/

Discussion: Feelings when tapering: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 20 12:31pm

@gramsof6 Just to add to my previous text… I also believe you would have more control...

https://connect.mayoclinic.org/comment/1144834/

Discussion: PMR and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21 5:04am

It is interesting that you had a flare of psoriasis after stopping Prednisone. Has anyone ever...

https://connect.mayoclinic.org/comment/1150891/

Discussion: I am on ACTEMRA for my giant Cell Arteritis but it seems like my PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2 5:13pm

The 7 mg barrier strikes again. That might be caused by adrenal insufficiency. Methotrexate (MTX) is...

https://connect.mayoclinic.org/comment/1147561/

Discussion: Weaning off of all medicine - prednisone and methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26 9:47am

I am so sorry that is so discouraging. The dead slow tapering plan is what I’ve...

https://connect.mayoclinic.org/comment/1151413/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3 4:42pm

@dadcue ,@cgm You know already that we are in that same boat, unfortunately. I was diagnosed...

https://connect.mayoclinic.org/comment/1155687/

Discussion: PMR to RA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 12 6:54am

I was diagnosed with PMR in May, 2023 and began with 25 mg of prednisone. My...

https://connect.mayoclinic.org/comment/1125623/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17 3:56pm

I had a very robust reaction to my second shingles shot last November. Pain and swelling....

https://connect.mayoclinic.org/comment/1139416/

Discussion: Pneumonia Vaccine (Prevnar) OK with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 10 10:54am

I agree completely. Your advice is much better than how I did it or how I...

https://connect.mayoclinic.org/comment/1128001/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21 8:58am

I tapered off methylprednisolone in six months without any issue. The PMR pain never came back,...

https://connect.mayoclinic.org/comment/1128436/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 22 5:39am

Yes, I ended six weeks ago (July 6). PMR had started in mid-May of the previous...

https://connect.mayoclinic.org/comment/1126711/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19 10:31am

I would probably pick Kevzara if I had to do it over again. As Dadcue mentioned....

https://connect.mayoclinic.org/comment/1131882/

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27 5:24pm

Unfortunately you can't simply stop taking prednisone. Methotrexate might help you get off Prednisone sooner if...

https://connect.mayoclinic.org/comment/1131927/

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27 7:18pm

Prednisone caused major sleep issues for me. Now I am back to normal after tapering off....

https://connect.mayoclinic.org/comment/1136737/

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 5 12:19pm

It took 4 months for me to be diagnosed because I only hurt when laying down...

https://connect.mayoclinic.org/comment/1137137/

Discussion: symptoms present but lab markers aren't high

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 6 7:50am

Welcome @spiker, We are all a little different with our pain experience and tapering off of...

https://connect.mayoclinic.org/comment/1137930/

Discussion: Aching from the most minor of exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 7 3:24pm

Polymyalgia Rheumatica (PMR) Support Group