Polymyalgia Rheumatica (PMR): Discussions | Page 11

I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...

https://connect.mayoclinic.org/comment/1156266/

Discussion: Can anyone recommend a Rheumatologist at UCSF in San Francisco?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 13 8:56am

I am sorry you are feeling so much pain. I have had a similar experience after...

https://connect.mayoclinic.org/comment/1153875/

Discussion: Pain ever goes away on its own?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 8 7:34am

https://connect.mayoclinic.org/comment/1126998/

Discussion: Grouped Into 3 Buckets

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 19 6:25pm

Did you ever get flares of uveitis along with the flares of reactive arthritis? After I...

https://connect.mayoclinic.org/comment/1130892/

Discussion: Off Prednisone but Residual Stiffness

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26 6:21am

I would be interested in what a UK doctor tells a newly diagnosed PMR patient. Is...

https://connect.mayoclinic.org/comment/1133197/

Discussion: newly diagnosed

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 30 8:03am

I dont know any of your particulars. But for my own case it seems the 10mg...

https://connect.mayoclinic.org/comment/1134022/

Discussion: How much Prednisone to increase?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31 1:55pm

You should read up on cortisol circadian rhythm. After about 2 weeks prednisone is making your...

https://connect.mayoclinic.org/comment/1134911/

Discussion: Recently diagnosed, symptom question

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 2 9:26am

The longer you stay on prednisone, the longer it takes to get off. It mostly depends...

https://connect.mayoclinic.org/comment/1131260/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26 2:38pm

I currently do a monthly infusion of Actemra but I used to do Actemra injections. My...

https://connect.mayoclinic.org/comment/1131281/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26 3:29pm

I take cholestyramine 2x a day which blocks absorption. I have to take medications 1 hour...

https://connect.mayoclinic.org/comment/1136083/

Discussion: Recently diagnosed, symptom question

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 4 10:36am

My rheumatologist was very honest in telling me that they do not know what causes rheumatological...

https://connect.mayoclinic.org/comment/1146222/

Discussion: What is the root cause of PMR? Is it contagious?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 23 3:21pm

I am tapered down to 4 from 15. For the last month my hands have been...

https://connect.mayoclinic.org/comment/1149119/

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 29 9:32am

@yertondg I posted a video about the "gold standard" for tapering off prednisone for the treatment...

https://connect.mayoclinic.org/comment/1129857/

Discussion: Has anyone successfully weaned off prednisone without using a biologic

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 24 11:20am

@hopeinal Hello, so sorry you are having this problem with prednisone tapering! Maybe your doctor needs...

https://connect.mayoclinic.org/comment/1132153/

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28 8:27am

Hi Lily, This sure sounds familiar. I had immediate onset of PMR after knee replacement. Family...

https://connect.mayoclinic.org/comment/1132990/

Discussion: Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29 5:17pm

My PMR began in January of 2022. In April of 2024 I was trying to taper...

https://connect.mayoclinic.org/comment/1141703/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15 6:29am

This is great news about the biosimilar to Actemra. Tyenne will lower the cost of treatment...

https://connect.mayoclinic.org/comment/1140480/

Discussion: FDA approved Tyenne significantly cheaper biosimilar to Actemra

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12 1:26pm

Sounds like you're doing well with your tapering. I don't do as much exercise as you...

https://connect.mayoclinic.org/comment/1139721/

Discussion: Aching from the most minor of exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 11 5:39am

Some times I use CBD+CBN gummies to help with sleep. As a nurse I have seen...

https://connect.mayoclinic.org/comment/1141061/

Discussion: PMR and MGUS/SSM/MM multiple myeloma

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 13 2:05pm

I did not take a biologic. So I am not sure. I would say if your...

https://connect.mayoclinic.org/comment/1141523/

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14 1:02pm

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