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Pancreatic Cancer Support Group

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Having symptoms but negative tests results so far.
Hi all, I have been following this group for a month or two looking for answers. Past 10 years or so, always had digestion problems...
Support Group: Pancreatic Cancer
Last active: Jan 30, 2023
Discussion
One Year Post-TP: Reflecting on the Journey and seeking support
A year ago, I underwent a total pancreatectomy (TP) at the Mayo Clinic, performed by Dr. Truty. My spleen and gall bladder were also removed...
Support Group: Pancreatic Cancer
Last active: Jun 16, 2025
Discussion
Spots on my pancreas
Hello I’ve lost over 30lbs in the last couple months. Doctor sent me for a full body CT scan. Came back with a haze and...
Support Group: Pancreatic Cancer
Last active: Mar 5, 2023
Discussion
Help with eating.
Hi. My name is Mary. I was diagnosed with pancreatic cancer on my birthday in November. I have lost 52lbs. I can't eat. Since chemo,...
Support Group: Pancreatic Cancer
Last active: Jun 29, 2024
Discussion
Diarrhea frequently during Chemotherapy
My husband had Whipple surgery in Feb. 2023 for pancreatic tumor on head of pancreas. Currently doing 12 rounds of Chemotherapy. Had to take this...
Support Group: Pancreatic Cancer
Last active: Oct 27, 2023
Discussion
New stage 4 diagnosis for my wife
We are in the very unfortunate position to be getting this news for my wife within the last 3 weeks. As for everybody, absolutely heartbreaking....
Support Group: Pancreatic Cancer
Last active: Jul 8, 2025
Discussion
Travel & timing after local recurrence
Hello. I have appreciated people's openness and support on this site. This is my first time posting. My 64-year-old husband was diagnosed with PDAC in...
Support Group: Pancreatic Cancer
Last active: 6 days ago
Discussion
12 months free of disease with clear CT scans: What is next?
My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist...
Support Group: Pancreatic Cancer
Last active: Jun 6, 2023
Discussion
Feet edema
My sister had a complete pancreatectomy, splenectomy, stomach resection. It's been almost 3 months now and she slowly getting better still very weak , eating...
Support Group: Pancreatic Cancer
Last active: Sep 12, 2023
Discussion
What's next?
Folfirinox showed resistance after about 9 or 10 months. Now gem/abrax may be going the same route as CA19-9 numbers have gone from 300 to...
Support Group: Pancreatic Cancer
Last active: Mar 11, 2025