Support Groups

Pancreatic Cancer Support Group

Public Support Group
452 total results
Discussions (31)
Anyone been on a clinical trial of Immunotherapy and Niraparib?
Has anyone been on a clinical trial of Immunotherapy and Niraparib, if so , for how long and what is your experience, ( positive or...
Support Group: Pancreatic Cancer
Last active: Apr 2 8:23am
Phase 1 Clinical Trial - GNX102
Hi, all! Is anyone able to share any information related to GNX102 (GlycoNex)? My father has liver metastasis that has continued to show mixed response...
Support Group: Pancreatic Cancer
Last active: Jul 1, 2023
Is anyone participating in a clinical trial for pancreatic cancer?
Is anyone participating in a clinical trial for pancreatic cancer? My husband’s PC is not genetic. He has tried Folfirinox. He was allergic to Oxaliplatin...
Support Group: Pancreatic Cancer
Last active: Jan 24, 2023
Clinical trial (third line treatment) lurbinectedin and irinotecan
Starting a clinical trial this week for stage iv pancreatic cancer. Trial doesn’t target a specific mutation but it does target neuroendocrine tumors. Was on...
Support Group: Pancreatic Cancer
Last active: Jun 27, 2023
Anyone familiar with the clinical trial RMC-6236? Or how to enroll?
Question,,,is anyone familiar with the clinical trial for RMC-6236? Or is currently enrolled in it? Or is familiar with how the process works?
Support Group: Pancreatic Cancer
Last active: Apr 16 9:20am
Clinical trial for AOH1966 targeting "all" solid tumors
"City of Hope scientists develop targeted chemotherapy able to kill all solid tumors in preclinical research" It's only early in a phase-1 trial at two...
Support Group: Pancreatic Cancer
Last active: Nov 25, 2023
Looking for Clinical Trial for MRD (min. resid. disease) Immunotherapy
I have been NED for 10 months following a Whipple (2021) and chemo (Folfirinox). In January, tumor markers rose and ctDNA because positive (after being...
Support Group: Pancreatic Cancer
Last active: Mar 27, 2023
Clinical trial video from PANCAN- questions about first time treatment
Yesterday I watched a very informative video on clinical trials from the PANCAN network. Stageivsurvivor was a guest speaker and have an excellent presentation! Here’s...
Support Group: Pancreatic Cancer
Last active: Jun 1 10:30am
Help Finding Clinical Trials
Having applied for a couple of trials and searching for new ones, I now realize I need help navigating these clinical trial options and doing...
Support Group: Pancreatic Cancer
Last active: Sep 5, 2023
Any experiences with Nivolumab and/or Ipilimumab treatment?
Hi everyone, my Mom is supposed to start a clinical trial next week that involves the use of two immunotherapy drugs- Nivolumab and Ipilimumab. Does...
Support Group: Pancreatic Cancer
Last active: Dec 17, 2023
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2021
Clinical Trials: they are not designed only to be a “last resort”
The world of clinical trials can be difficult to navigate. Please know that they are not designed only to be a “last resort”. In the...
Support Group: Pancreatic Cancer
Last active: 1 day ago
Pancreatic tumor genotype KRAS G12c, removed but one node positive
Have had Whipple which revealed one positive node. Genotype KRAS G12C, a rare type, highly aggressive and loves to become resistant to treatment. I underwent...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2022
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24 12:11pm
Question about CT scan
Hello everyone, my Mom has a very rare form of pancreatic cancer and is currently on a clinical trial targeting the genetic fusion driving her...
Support Group: Pancreatic Cancer
Last active: May 25, 2023
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2023
Help with low albumin numbers
Hello everyone, my Mom has advanced pancreatic cancer and is currently on an immunotherapy/vaccine clinical trial. Her latest blood results last week showed very low...
Support Group: Pancreatic Cancer
Last active: Jul 10, 2023
Protein Powders, Calorie Boosters, Appetite Stimulation?
Hi, all. Looking for recommendations on protein powders, calorie boosters, appetite stimulators. My father has metastatic disease and has been off of therapy for 2...
Support Group: Pancreatic Cancer
Last active: Aug 9, 2023
New diagnosis: locally advanced pancreatic cancer
I'm new to the Mayo board, but not a Mayo patient and not in MN. This week I received a new diagnosis of locally advanced...
Support Group: Pancreatic Cancer
Last active: Aug 17, 2023