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Pancreatic Cancer Support Group

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Discussions (125)
Help: Struggling with Wife's Pancreatic Cancer issues
Its been just over a year now that my wife and I started this fight with nonoperational Pancreatic cancer. We are now on a new...
Support Group: Pancreatic Cancer
Last active: Oct 18, 2024
Abort chemo Rx & go straight to surgery while I am still Stage 1?
I was very fortunate in how my stage one pancreatic cancer was diagnosed. In August 2023, I had an unrelated intestinal surgery and three weeks...
Support Group: Pancreatic Cancer
Last active: Apr 12, 2024
Locally advanced pancreatic tumor started growing and kidney function
CA19-9 reduced from 16,000 to 74 then stopped responding to chemo so we did stereotactic radiation after that it started aggressively growing and CA19-9 is...
Support Group: Pancreatic Cancer
Last active: Sep 18, 2023
Pancreatic cancer recurrence at 2 years: Treatment change
I haven't checked in for a while... My wife was diagnosed in July 2019 right after her 61st birthday. Had 9 rounds of Folfirinox, then...
Support Group: Pancreatic Cancer
Last active: Jun 28, 2021
Oxaliplatin & Nab-paclitaxel Neuropathy - Longer Infusion Time?
My dad was diagnosed with pancreatic cancer in late January 2023 with encasement of PV/SMV and abutment/180degree encasement of SMA (he was deemed to be...
Support Group: Pancreatic Cancer
Last active: May 28, 2024
N.E.D. And other things that go bump in the night
Just wondering .. for those with the NED status … what kind of CA19-9 numbers are you showing?
Support Group: Pancreatic Cancer
Last active: Jul 16, 2023
Newly diagnosed pancreatic cancer
My mom is 81 and relatively healthy, thyroid disease and hypertension, and was just diagnosed with pancreatic cancer in the head of the pancreas. Her...
Support Group: Pancreatic Cancer
Last active: Sep 26, 2025
12 months free of disease with clear CT scans: What is next?
My husband has been clear of disease for 12 months with clear CT scans. The cancer disappeared after 12 sessions of chemo which the oncologist...
Support Group: Pancreatic Cancer
Last active: Jun 6, 2023
Bone (Skeletal) Metastases
At the end of January my mother was diagnosed with ductal adenocarcinoma in the head of the pancreas measuring no more than 3 cm. All...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2023
Anyone experiencing malabsorption?
While my CA19 numbers are trending down, I have had malabsorption for almost a month. Not sure if chemo related, or disease progression. Stage 4...
Support Group: Pancreatic Cancer
Last active: Apr 10, 2024
Nausea when eating during Folfirinox Adjuvant Chemotherapy
Hi guys, My relative has been suffering from nausea right during eating , and he is taking a three week break during the 6th Folfirinox...
Support Group: Pancreatic Cancer
Last active: Feb 7, 2024
Any experiences with Gemcitabine + Abraxane as second line treatment?
My 45yr old husband was diagnosed with stage IV pancreatic adenocarcinoma in Sept 2025. It had metastasized to his liver and spleen. He started out...
Support Group: Pancreatic Cancer
Last active: Mar 15 11:31am
What's next?
Folfirinox showed resistance after about 9 or 10 months. Now gem/abrax may be going the same route as CA19-9 numbers have gone from 300 to...
Support Group: Pancreatic Cancer
Last active: Mar 11, 2025
Treatment for lymph nodes?
My husband's latest CT scan showed no progression of disease, except "Enlarging centrally necrotic appearing retroperitoneal lymph nodes". His CA19-9 numbers had gone up after...
Support Group: Pancreatic Cancer
Last active: Nov 8, 2024
Has anyone take erlotinib (Tarceva) for Pancreatic Cancer?
Hi, did anyone had Tarceva as a targeted therapy for PanCan? I have unoperable adenocarcinoma st IV, went through 8 or 9 rounds of Folfrinox...
Support Group: Pancreatic Cancer
Last active: Feb 1, 2025
ONIVYDE irinotecan liposome
Has anyone here been treated with Onivyde? After 10 treatments with gemcitibine/abraxane/cisplaten and 8 treatments with gemcitibine/abraxane, my wife's CA19-9 is still climbing and a...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2021
Update on my father's issue
From looking at the reports that I was finally given access to, my father (62) now officially 1 year post whipple, the 'spot' they were...
Support Group: Pancreatic Cancer
Last active: Mar 11, 2023
treatment for liver mets
recap: my wife had aborted Whipple 7/22/24 due to SMV involvement. We decided on SMART radiation therapy for 9/6/24, but this had to be cancelled...
Support Group: Pancreatic Cancer
Last active: Sep 19, 2024
Anyone had success with gemcitabine and capecitabine (GemCap) chemo?
I was diagnosed in Aug, 2025 with adenocarcinoma of the pancreas. Oct 17 I had a distal pancreatectomy with app 70% of pancreas removed. My...
Support Group: Pancreatic Cancer
Last active: Jan 12 7:00pm
Recurrence at SMA Lymph node
Hi all, My father is currently suffering from recurrent pancreatic cancer (moderately differentiated adenocarcinoma). He is diagnosed and underwent Whipple surgery in July 2023 which...
Support Group: Pancreatic Cancer
Last active: Jan 27, 2025