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Pancreatic Cancer Support Group

Public Support Group
691 total results
Discussions (46)
Pancreatic tumor genotype KRAS G12c, removed but one node positive
Have had Whipple which revealed one positive node. Genotype KRAS G12C, a rare type, highly aggressive and loves to become resistant to treatment. I underwent...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2022
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24, 2024
Anyone have any experience with clinical trials or immunotherapy?
My husband (43) was diagnosed with stage 4 pancan on Sept 1. He’s had 4 rounds on chemo, Folfirinox with some dosage adjustments due to...
Support Group: Pancreatic Cancer
Last active: Nov 21, 2023
Question about CT scan
Hello everyone, my Mom has a very rare form of pancreatic cancer and is currently on a clinical trial targeting the genetic fusion driving her...
Support Group: Pancreatic Cancer
Last active: May 25, 2023
Anyone participate in RMC9805 and RMC6236 clinical trials?
My mom is fighting pancreatic cancer. She had 12 rounds of FOLFIRINOX, followed by 15 fractions of chemoradiation in a hope to have a Whipple...
Support Group: Pancreatic Cancer
Last active: May 7 9:51am
Help with low albumin numbers
Hello everyone, my Mom has advanced pancreatic cancer and is currently on an immunotherapy/vaccine clinical trial. Her latest blood results last week showed very low...
Support Group: Pancreatic Cancer
Last active: Jul 10, 2023
Success stories and working
Hi All, I am new here. I was diagnosed last year with Pancreatic Cancer (adenocarcinoma). I had a distal pancreatectomy with splenectomy and was staged...
Support Group: Pancreatic Cancer
Last active: May 22 12:44pm
Protein Powders, Calorie Boosters, Appetite Stimulation?
Hi, all. Looking for recommendations on protein powders, calorie boosters, appetite stimulators. My father has metastatic disease and has been off of therapy for 2...
Support Group: Pancreatic Cancer
Last active: Aug 9, 2023
New diagnosis: locally advanced pancreatic cancer
I'm new to the Mayo board, but not a Mayo patient and not in MN. This week I received a new diagnosis of locally advanced...
Support Group: Pancreatic Cancer
Last active: Aug 17, 2023
PARP inhibitors and Maintenance Drugs
I have stage 4 pancreatic cancer and have just completed my 11th round of chemo. I have a BRCA2 gene mutation. So far, the chemo...
Support Group: Pancreatic Cancer
Last active: Jun 2, 2024
Advice needed about my Mom
Hello everyone, my Mom was diagnosed with a rare form of pancreatic cancer (arising from an Intraductual Oncocytic Papillary Neoplasm) in July 2020. She had...
Support Group: Pancreatic Cancer
Last active: Mar 20, 2023
Questions about maintenance chemotherapy
After 6 rounds of chemo and my gallbladder surgery, my pancan stats are looking good--so of course, now I have more questions! As a reminder,...
Support Group: Pancreatic Cancer
Last active: Nov 7, 2023
Biomarker mutations question
Hello I recently had the Tempus 684 gene panel done to identify biomarker mutations. I would be interested in hearing from others who have had...
Support Group: Pancreatic Cancer
Last active: Aug 7, 2024
BelongDaveAI
Anyone heard of this BelongDaveAI? Supposed to help find clinical trials? Read about it on a different site that someone recommended.
Support Group: Pancreatic Cancer
Last active: Mar 18 11:47pm
Any thoughts on the mRNA vaccine trials for pancreatic cancer?
I was wondering if anyone has information or opinions as to the pros and cons of being enrolled in Clinical trials for, hopefully,preventing the reoccurrence...
Support Group: Pancreatic Cancer
Last active: Oct 8, 2023
Searching for Suburban Cancer Clinics
I am looking for suburban cancer clinics that are situated where patients in rural areas and under-served communities would have access. An additional plus would...
Support Group: Pancreatic Cancer
Last active: Aug 1, 2024
Negative Turn in a Long Journey
I was diagnosed with PC in March 2023 just after my 60th birthday, and have frequently checked this forum, read most of the posts and...
Support Group: Pancreatic Cancer
Last active: 2 hours ago
Artificial Intelligence and Cancer Care: Anyone doing it?
Hi- Has anyone used companies involved with artificial intelligence. (AI). There are companies like icures that are compiling data on cancer patients and then using...
Support Group: Pancreatic Cancer
Last active: Jun 6, 2023
Do you record your appointments?
I know my limitations. While I’m with my wife/patient, I think about how to spell Flowfirnox and Oxoliplatin and neuropathy and Whipple surgery. What do...
Support Group: Pancreatic Cancer
Last active: May 13 2:52pm
Successful treatment of recurrence?
I had successful treatment in 2021, completing in 2022. Whipple, adjuvant Folfirinox 6 1/2 months, brief SBRT for undetermined hazy mass in pancreatic bed. I...
Support Group: Pancreatic Cancer
Last active: Mar 9, 2023