Pancreatic Cancer Support Group

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Comments (514)

I worked with the hepatobiliary dietician before and after my Whipple. The first part was getting...

https://connect.mayoclinic.org/comment/946784/

Discussion: Husband won’t eat

Support Group: Pancreatic Cancer

Posted: Oct 12, 2023

I am on creon as well . It depletes your potasium so i was told. In...

https://connect.mayoclinic.org/comment/929035/

Discussion: Can Creon be the cause of headaches and leg cramps?

Support Group: Pancreatic Cancer

Posted: Sep 12, 2023

@bb21 I appreciate your added input into your diet and health journies with cancer. You have...

https://connect.mayoclinic.org/comment/667438/

Discussion: Post Whipple: how long before your stomach "woke up"?

Support Group: Pancreatic Cancer

Posted: Jan 3, 2022

gardenlady, Do you have an out of pocket max for your drugs, for medicare? I will...

https://connect.mayoclinic.org/comment/984408/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 21, 2023

This page from Cleveland Clinic is still in my browser library so is probably where I...

https://connect.mayoclinic.org/comment/812376/

Discussion: High Dose Vitamin D: Is it safe?

Support Group: Pancreatic Cancer

Posted: Feb 16, 2023

It took me some time to recover from surgery plus adjusting to diet, Creon pills and...

https://connect.mayoclinic.org/comment/841581/

Discussion: What's recovery after distal pancreatectomy and splenectomy like?

Support Group: Pancreatic Cancer

Posted: Apr 11, 2023

I started on Creon about five years ago and was taking one 24,000 capsule per meal...

https://connect.mayoclinic.org/comment/884159/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

I had a Whipple at Mayo Clinic nearly 12 years ago and have been on a...

https://connect.mayoclinic.org/comment/208576/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 14, 2018

I take creon twice a day. I eat often and little by little. I have diarrhea,...

https://connect.mayoclinic.org/comment/1122318/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2024

Rexan, you may be interested in this discussion about Creon and pancreatic enzyme replacement: - Pancreatic...

https://connect.mayoclinic.org/comment/657623/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 26, 2021

For me the desire to eat got better with Creon treatment. I am now up to...

https://connect.mayoclinic.org/comment/866404/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

I found that I had to take additional Creon when I was going to eat fatty...

https://connect.mayoclinic.org/comment/1200278/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 30, 2024

Yes, I had the same experience. When my oncologist recommended creon, I called my insurance company...

https://connect.mayoclinic.org/comment/1084198/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Jun 10, 2024

@icelander19 I take creon to aid with digestion. Dose is based on my weight and/or amount...

https://connect.mayoclinic.org/comment/857494/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I get two different doses of Creon from the Abbvie company for free by mail. I...

https://connect.mayoclinic.org/comment/1084758/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Jun 11, 2024

Creon has financial support that you can apply for to cover the cost of the pills....

https://connect.mayoclinic.org/comment/734272/

Discussion: How can I help my husband face the possibility he may not survive?

Support Group: Pancreatic Cancer

Posted: Aug 5, 2022

I am on Creon 8 a day severe stomach cramps watery diarrhea Have to wear a...

https://connect.mayoclinic.org/comment/1121716/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 11, 2024

I live in California and had no problem getting Creon; my only problem was the cost...

https://connect.mayoclinic.org/comment/947792/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Oct 14, 2023

My husband lost 10kgs after having had 66% of his pancreas removed. Surgeon put him on...

https://connect.mayoclinic.org/comment/1179540/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Nov 25, 2024

Yes, diarrhea is a regular visitor. I had the whipple in April and my last (twelfth)...

https://connect.mayoclinic.org/comment/907889/

Discussion: Diarrhea frequently during Chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 5, 2023

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