Pancreatic Cancer Support Group

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Comments (897)

The success stories I have read all seem to indicate extended, "maintenance" if you will, chemotherapy....

https://connect.mayoclinic.org/comment/914060/

Discussion: Decided not to have surgery. What’s next?

Support Group: Pancreatic Cancer

Posted: Aug 16, 2023

Well, rats. Just got my latest CA 19-9 back. It doubled to 114. So, from 2/20...

https://connect.mayoclinic.org/comment/1037465/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 21 3:59am

lovingwifeterry, I think what you're feeling is local medical teams providing the normal standards of care...

https://connect.mayoclinic.org/comment/779546/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Dec 1, 2022

Thank you Colleen for the link to the CA19-9. It was very helpful for understanding just...

https://connect.mayoclinic.org/comment/732536/

Discussion: Need advice: Stage 2 pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 30, 2022

I was diagnosed with very small lesion via MRI pancreas protocol and Ct with contrast-pancreas protocol....

https://connect.mayoclinic.org/comment/923582/

Discussion: Pancreatic Cancer Concerns: What tests are done for diagnosis?

Support Group: Pancreatic Cancer

Posted: Sep 3, 2023

I just had my blood work done and my CA 19–9 went up to 39. It...

https://connect.mayoclinic.org/comment/1147559/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Sep 26 9:44am

I was on both since January for peritoneal & liver Mets. 2 weeks on, 2 off....

https://connect.mayoclinic.org/comment/1057730/

Discussion: Pancreatic Cancer Peritoneal Metastasis

Support Group: Pancreatic Cancer

Posted: Apr 26 12:23pm

I had to go back on the same chemo G/A that I was on before my...

https://connect.mayoclinic.org/comment/1085530/

Discussion: Do chemo side effects get any better the second time around?

Support Group: Pancreatic Cancer

Posted: Jun 12 10:54am

I have good news. The PET scan showed no evidence of disease. Blood tests came back...

https://connect.mayoclinic.org/comment/1137912/

Discussion: Surgery Follow-up and pathology report

Support Group: Pancreatic Cancer

Posted: Sep 7 2:43pm

Hi Patti303. Sounds like they caught it early and were able to nip it in the...

https://connect.mayoclinic.org/comment/830988/

Discussion: 2 questions: Interpretation of CA19-9. SBRT methods.

Support Group: Pancreatic Cancer

Posted: Mar 24, 2023

You are lucky like me in that I also had a stage 1A adenocarcinoma. Had whipple...

https://connect.mayoclinic.org/comment/894861/

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jul 13, 2023

My thoughts - I am not a medical professional. This disease is sneaky and hard to...

https://connect.mayoclinic.org/comment/955661/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Oct 29, 2023

Thank you for sharing your story. How is the high dose MRI guided radiation going? This...

https://connect.mayoclinic.org/comment/811213/

Discussion: Surgical options for borderline resectable/locally advanced tumors

Support Group: Pancreatic Cancer

Posted: Feb 14, 2023

Thanks for writing. The CTDNA is the newer Natera /Signatera one that you mentioned. I had...

https://connect.mayoclinic.org/comment/831913/

Discussion: Looking for Clinical Trial for MRD (min. resid. disease) Immunotherapy

Support Group: Pancreatic Cancer

Posted: Mar 25, 2023

One thing you might ask about is a laparoscopic evaluation of your abdomen. My first oncologist...

https://connect.mayoclinic.org/comment/928287/

Discussion: CA 19-9 high but no malignancy

Support Group: Pancreatic Cancer

Posted: Sep 11, 2023

I'm no expert on any of this, but the CA 19-9 appears to be used similarly...

https://connect.mayoclinic.org/comment/959065/

Discussion: Abort chemo Rx & go straight to surgery while I am still Stage 1?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2023

I had an appointment with a different gastroenterologist and he told me to stop Ceron and...

https://connect.mayoclinic.org/comment/812551/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 16, 2023

Thanks for the link. I am currently following up with MSKCC and have been very happy...

https://connect.mayoclinic.org/comment/810681/

Discussion: Surgical options for borderline resectable/locally advanced tumors

Support Group: Pancreatic Cancer

Posted: Feb 13, 2023

Do not feel it is your last stop! I was diagnosed with stage 4 with metastasis...

https://connect.mayoclinic.org/comment/950174/

Discussion: Pancreatic cancer spreading to liver

Support Group: Pancreatic Cancer

Posted: Oct 19, 2023

Tumor did not shrink after immunotherapy, however surgery was only a few weeks after the infusions....

https://connect.mayoclinic.org/comment/1043012/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 31 5:38am

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