Pancreatic Cancer Support Group

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Comments (548)

We are just starting Creon and it is a hard one to figure out. My husband...

https://connect.mayoclinic.org/comment/678086/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 6, 2022

Go online to read all side effects and you can also go to Abbvie.com, the manufacturers...

https://connect.mayoclinic.org/comment/1080061/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Jun 3, 2024

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

Hi Matt Thanks for the info. On my drug plan I'd have to pay $400 a...

https://connect.mayoclinic.org/comment/1312400/

Discussion: Pancreatic enzymes: They are expensive, any suggestions?

Support Group: Pancreatic Cancer

Posted: May 25 9:40am

He gets pretty nauseated after the chemo and for a week doesnt care about eating but...

https://connect.mayoclinic.org/comment/642296/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2021

I am taking Creon 36000 per meal for two weeks now and now I have blurred...

https://connect.mayoclinic.org/comment/948191/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2023

I had a complete pancreatectomy, spleen, duodenum, partial stomach, etc. Take Creon with any food. Doing...

https://connect.mayoclinic.org/comment/1101401/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 8, 2024

If you go to creon website you can get it ay a discount. We've gotten 2...

https://connect.mayoclinic.org/comment/285220/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jul 14, 2020

My wife is still taking Creon and has actually upped the full meal dose to 3...

https://connect.mayoclinic.org/comment/657791/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2021

So far, I have not had any recovery of exocrine function (-almost 2 1/2 years since...

https://connect.mayoclinic.org/comment/884033/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

Your story is an inspiration!! Can you share some details about the diet you follow. I...

https://connect.mayoclinic.org/comment/866380/

Discussion: Question about CT scan

Support Group: Pancreatic Cancer

Posted: May 25, 2023

I also had these removed. Creon was necessary for about 2 months. I journaled my food...

https://connect.mayoclinic.org/comment/971613/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

I’m on CREON but unfortunately I have a different affect from it. I’m having a hard...

https://connect.mayoclinic.org/comment/1122144/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2024

I have been taking Creon 12000 unt for about a year. I have gained all my...

https://connect.mayoclinic.org/comment/1205242/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 6 10:47am

I have stayed on 25,000 units of Creon per meal since i started it. I am...

https://connect.mayoclinic.org/comment/973396/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Dec 1, 2023

Foods that bind? Steel cut oatmeal, baked potato, rice then progress slowly to other solid food...

https://connect.mayoclinic.org/comment/1110902/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 24, 2024

I also have problems with Creon dosage, but as to gas, my doctors recommended I try...

https://connect.mayoclinic.org/comment/257741/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 27, 2020

Love hearing the success stories! And also was excited when 2025 began to take advantage of...

https://connect.mayoclinic.org/comment/1269965/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Mar 30 9:59am

According to the AbbieVie website, patients who are insured under any federal program (Medicare,etc) will not...

https://connect.mayoclinic.org/comment/855546/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: May 6, 2023

Back on the thread topic, enzyme replacement... Since starting the new year and new co-pay year,...

https://connect.mayoclinic.org/comment/208609/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jan 31, 2021