Pancreatic Cancer Support Group

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Comments (656)

I have loose motion and high blood sugars from taking Creon. I am having to take...

https://connect.mayoclinic.org/comment/1079348/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2024

If you go to the Creon website, there is a link for co-pay assistance. I think...

https://connect.mayoclinic.org/comment/951564/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

Hello crickard70! Are you the one who had a total pancreatectomy around Nov. 21? I was...

https://connect.mayoclinic.org/comment/971744/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

I showed my oncologist the Pancreatic Enzyme Formula (by Pure) Supplement Facts sheet and he said...

https://connect.mayoclinic.org/comment/901543/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 24, 2023

I get Creon from Abbvie Assist for free each month. You email them, they send you...

https://connect.mayoclinic.org/comment/897142/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 17, 2023

I was diagnosed with stage 3 pancreatic cancer in jan 2021. I have had Whipple surgery...

https://connect.mayoclinic.org/comment/852944/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 2, 2023

Thank you for all the information. I’m wondering if Creon would be better than Zenpep. Not...

https://connect.mayoclinic.org/comment/866428/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

How long can you go on Creon capsules ? Hubby taking it 25000 3 times a...

https://connect.mayoclinic.org/comment/953371/

Discussion: Creon capsule too large to swallow: Any tips?

Support Group: Pancreatic Cancer

Posted: Oct 24, 2023

My results after 5 days hiding the over the counter enzyme replacement tablets…they seem to work...

https://connect.mayoclinic.org/comment/904444/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 30, 2023

@matt2024 could cramping be a source of too little creon Sometimes I cramps all.day. By the...

https://connect.mayoclinic.org/comment/1457010/

Discussion: Belly pain, cramps and painful gas months after Whipple: Thoughts?

Support Group: Pancreatic Cancer

Posted: Dec 9, 2025

Wow. You are amazing. Thanks for sharing. I have gone from 145 to 107 and have...

https://connect.mayoclinic.org/comment/850786/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: Apr 28, 2023

Thanks for sharing. I too have all kinds of trouble with Creon that I'm taking for...

https://connect.mayoclinic.org/comment/828961/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Mar 20, 2023

May I ask how much creon are you taken per meal? Do you have bloating, belly...

https://connect.mayoclinic.org/comment/971188/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2023

Exactly! Being alive is what matters! I am also on Creon, b/c most of my pancreas...

https://connect.mayoclinic.org/comment/866063/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2023

I do not take any supplements except for vitamins. Your husband will need enzymes (creon) to...

https://connect.mayoclinic.org/comment/1488759/

Discussion: Did you use supplements or holistic approaches with traditional tx?

Support Group: Pancreatic Cancer

Posted: Jan 22 10:56am

As for the expense of pancreatic enzymes…..I have used Creon and am now using Zenpep. There...

https://connect.mayoclinic.org/comment/986745/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Dec 26, 2023

My husband is 76 which scares me for him to go through with this. He take...

https://connect.mayoclinic.org/comment/1082849/

Discussion: Anyone had pancreatic whipple surgery with a portal vein resection?

Support Group: Pancreatic Cancer

Posted: Jun 8, 2024

@lgk2948 If you are not able to get reduced cost through the Creon website, you might...

https://connect.mayoclinic.org/comment/953290/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 24, 2023

if you can contact me I may be able to help. My wife passed away July...

https://connect.mayoclinic.org/comment/769292/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 4, 2022

Thanks. PC has made me diabetic type 2. I will have to learn how to balance...

https://connect.mayoclinic.org/comment/985313/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2023

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