Pancreatic Cancer Support Group

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Comments (510)

I also had these removed. Creon was necessary for about 2 months. I journaled my food...

https://connect.mayoclinic.org/comment/971613/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

Your story is an inspiration!! Can you share some details about the diet you follow. I...

https://connect.mayoclinic.org/comment/866380/

Discussion: Question about CT scan

Support Group: Pancreatic Cancer

Posted: May 25, 2023

I have been taking Creon 12000 unt for about a year. I have gained all my...

https://connect.mayoclinic.org/comment/1205242/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 6 10:47am

I’m on CREON but unfortunately I have a different affect from it. I’m having a hard...

https://connect.mayoclinic.org/comment/1122144/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 12, 2024

Foods that bind? Steel cut oatmeal, baked potato, rice then progress slowly to other solid food...

https://connect.mayoclinic.org/comment/1110902/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 24, 2024

I also have problems with Creon dosage, but as to gas, my doctors recommended I try...

https://connect.mayoclinic.org/comment/257741/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 27, 2020

I have stayed on 25,000 units of Creon per meal since i started it. I am...

https://connect.mayoclinic.org/comment/973396/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Dec 1, 2023

According to the AbbieVie website, patients who are insured under any federal program (Medicare,etc) will not...

https://connect.mayoclinic.org/comment/855546/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: May 6, 2023

I'm glad I found this thread! I am experiencing similar pains after eating. I wouldn't really...

https://connect.mayoclinic.org/comment/1175513/

Discussion: Creon and stomach pain

Support Group: Pancreatic Cancer

Posted: Nov 18, 2024

Back on the thread topic, enzyme replacement... Since starting the new year and new co-pay year,...

https://connect.mayoclinic.org/comment/208609/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jan 31, 2021

I stumbled across this thread while researching options for obtaining Creon more affordably while my dad...

https://connect.mayoclinic.org/comment/768723/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 3, 2022

Are you taking the Creon all at once or staggering the capsules throughout the duration of...

https://connect.mayoclinic.org/comment/853565/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 3, 2023

Thank you for all that information. It was reo months before an enzyme, Zenpep, was prescribed...

https://connect.mayoclinic.org/comment/1026758/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 3, 2024

I was told to take two Creon capsules at Breakfast Lunch and Dinner and one morning...

https://connect.mayoclinic.org/comment/1125280/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 17, 2024

My back pain was related to meal size. I found that if I ate small portions...

https://connect.mayoclinic.org/comment/737536/

Discussion: Waiting for biopsy - what can I do for back pain?

Support Group: Pancreatic Cancer

Posted: Aug 15, 2022

Folfirinox is a very agressive chemo. I couldn't stand it (lost 20lbs in 3 weeks... and...

https://connect.mayoclinic.org/comment/866215/

Discussion: Extreme loss of appetite since starting chemo for pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 25, 2023

You need to first setup a account at Canada Pharmacy Online, then have your doctor send...

https://connect.mayoclinic.org/comment/952745/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

Posted: Oct 23, 2023

Nice summary of Zenpep vs Creon here: https://www.nicerx.com/compare/zenpep-vs-creon/ Looks like all the same ingredients (lipase, protease,...

https://connect.mayoclinic.org/comment/878445/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

I too have just been diagnosed with EPI and have been put on Creon. Don’t quite...

https://connect.mayoclinic.org/comment/813432/

Discussion: New Diagnosis of EPI, taking Creon: Sad and scared

Support Group: Digestive Health

Posted: Feb 18, 2023

I worked with the hepatobiliary dietician before and after my Whipple. The first part was getting...

https://connect.mayoclinic.org/comment/946784/

Discussion: Husband won’t eat

Support Group: Pancreatic Cancer

Posted: Oct 12, 2023

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