Pancreatic Cancer Support Group

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Comments (457)

So far, I have not had any recovery of exocrine function (-almost 2 1/2 years since...

https://connect.mayoclinic.org/comment/884033/

Discussion: Return of exocrine function?

Support Group: Pancreatic Cancer

Posted: Jun 24, 2023

No problem with Humana PPO. In fact over 7 years, whipple, all types of chemo, sbrt...

https://connect.mayoclinic.org/comment/682372/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2022

My husband had Whipple and just completed 6 mths of chemo. He's on Creon. I'm looking...

https://connect.mayoclinic.org/comment/878272/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

I am receiving Creon with the Abbvie Assist program. I have Medicare, Supplement and RX coverage....

https://connect.mayoclinic.org/comment/890731/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jul 5, 2023

We are just starting Creon and it is a hard one to figure out. My husband...

https://connect.mayoclinic.org/comment/678086/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 6, 2022

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I am taking Creon 36000 per meal for two weeks now and now I have blurred...

https://connect.mayoclinic.org/comment/948191/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2023

My wife is still taking Creon and has actually upped the full meal dose to 3...

https://connect.mayoclinic.org/comment/657791/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2021

He gets pretty nauseated after the chemo and for a week doesnt care about eating but...

https://connect.mayoclinic.org/comment/642296/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2021

Your story is an inspiration!! Can you share some details about the diet you follow. I...

https://connect.mayoclinic.org/comment/866380/

Discussion: Question about CT scan

Support Group: Pancreatic Cancer

Posted: May 25, 2023

I’m on CREON but unfortunately I have a different affect from it. I’m having a hard...

https://connect.mayoclinic.org/comment/1122144/

Discussion: Anyone have chronic diarrhea while on digestive enzymes?

Support Group: Pancreatic Cancer

Posted: Aug 12 9:35am

I also had these removed. Creon was necessary for about 2 months. I journaled my food...

https://connect.mayoclinic.org/comment/971613/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

Foods that bind? Steel cut oatmeal, baked potato, rice then progress slowly to other solid food...

https://connect.mayoclinic.org/comment/1110902/

Discussion: My HIPEC experience and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Jul 24 8:40am

I have stayed on 25,000 units of Creon per meal since i started it. I am...

https://connect.mayoclinic.org/comment/973396/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Dec 1, 2023

I also have problems with Creon dosage, but as to gas, my doctors recommended I try...

https://connect.mayoclinic.org/comment/257741/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Jul 27, 2020

According to the AbbieVie website, patients who are insured under any federal program (Medicare,etc) will not...

https://connect.mayoclinic.org/comment/855546/

Discussion: Life after Pancreatectomy: How was your recovery?

Support Group: Pancreatic Cancer

Posted: May 6, 2023

I stumbled across this thread while researching options for obtaining Creon more affordably while my dad...

https://connect.mayoclinic.org/comment/768723/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 3, 2022

Back on the thread topic, enzyme replacement... Since starting the new year and new co-pay year,...

https://connect.mayoclinic.org/comment/208609/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jan 31, 2021

Are you taking the Creon all at once or staggering the capsules throughout the duration of...

https://connect.mayoclinic.org/comment/853565/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 3, 2023

Thank you for all that information. It was reo months before an enzyme, Zenpep, was prescribed...

https://connect.mayoclinic.org/comment/1026758/

Discussion: Has anyone experienced bloating?

Support Group: Pancreatic Cancer

Posted: Mar 3 12:05pm