Pancreatic Cancer Support Group

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Comments (509)

I have been taking Creon 12000 unt for about a year. I have gained all my...

https://connect.mayoclinic.org/comment/1205242/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 6 10:47am

My whipple was preformed almost 9 1/2 years ago and lost over 100lbs within a few...

https://connect.mayoclinic.org/comment/326774/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 12, 2021

@gardenlady1116 , You are way tougher than I am! I had no true complications from my...

https://connect.mayoclinic.org/comment/1013790/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 11, 2024

I tried to get hepf but don’t meet requirements 1,900 is way too much any suggested....

https://connect.mayoclinic.org/comment/938421/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Sep 28, 2023

My oncologist prescribed the Creon. Saved my life my body was melting down. The hepato pancreatic...

https://connect.mayoclinic.org/comment/1045152/

Discussion: Anyone experiencing malabsorption?

Support Group: Pancreatic Cancer

Posted: Apr 4, 2024

Is he taking creon before he eats? I ate chicken noodle soup to start and egg...

https://connect.mayoclinic.org/comment/951682/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Oct 21, 2023

I see a hepatobiliary dietician at MSKCC. She has been very helpful especially with dealing with...

https://connect.mayoclinic.org/comment/860592/

Discussion: Still losing weight: Does timing of Creon help?

Support Group: Pancreatic Cancer

Posted: May 16, 2023

All the luck to you and your bucket list. I was able to do the things...

https://connect.mayoclinic.org/comment/1090330/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 20, 2024

Did creon help you with the cost? We have gotten a coupon for 5/month. Don't know...

https://connect.mayoclinic.org/comment/208596/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2020

Creon as well as any of the pancrealipase products need to be optimized based on the...

https://connect.mayoclinic.org/comment/982329/

Discussion: How to deal with stomach problems

Support Group: Pancreatic Cancer

Posted: Dec 17, 2023

My husband had Whipple and just completed 6 mths of chemo. He's on Creon. I'm looking...

https://connect.mayoclinic.org/comment/878272/

Discussion: Is anyone taking Zenpep rather than Creon? If so what foods work?

Support Group: Pancreatic Cancer

Posted: Jun 14, 2023

No problem with Humana PPO. In fact over 7 years, whipple, all types of chemo, sbrt...

https://connect.mayoclinic.org/comment/682372/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 19, 2022

I am receiving Creon with the Abbvie Assist program. I have Medicare, Supplement and RX coverage....

https://connect.mayoclinic.org/comment/890731/

Discussion: Color me confused (2 questions)

Support Group: Pancreatic Cancer

Posted: Jul 5, 2023

We are just starting Creon and it is a hard one to figure out. My husband...

https://connect.mayoclinic.org/comment/678086/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 6, 2022

Have you tried the pancrealipase dosing calculator at https://digestthis.ca It eliminates a lot of the guess...

https://connect.mayoclinic.org/comment/857736/

Discussion: Long standing symptoms and nothing on CT scan: Does it happen often?

Support Group: Pancreatic Cancer

Posted: May 10, 2023

I am taking Creon 36000 per meal for two weeks now and now I have blurred...

https://connect.mayoclinic.org/comment/948191/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2023

I had a complete pancreatectomy, spleen, duodenum, partial stomach, etc. Take Creon with any food. Doing...

https://connect.mayoclinic.org/comment/1101401/

Discussion: Bird picking at food after Whipple surgery and Creon

Support Group: Pancreatic Cancer

Posted: Jul 8, 2024

If you go to creon website you can get it ay a discount. We've gotten 2...

https://connect.mayoclinic.org/comment/285220/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jul 14, 2020

He gets pretty nauseated after the chemo and for a week doesnt care about eating but...

https://connect.mayoclinic.org/comment/642296/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2021

My wife is still taking Creon and has actually upped the full meal dose to 3...

https://connect.mayoclinic.org/comment/657791/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Nov 27, 2021

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