Pancreatic Cancer Support Group

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Comments (1,170)

I had read on this site and my doctors seem to agree that CA19-9 is not...

https://connect.mayoclinic.org/comment/1233984/

Discussion: Is CA 19-9 a lagging indicator? How is it used?

Support Group: Pancreatic Cancer

Posted: Feb 10 6:07pm

thank you so much. Right now i am waiting to see if the radiation took care...

https://connect.mayoclinic.org/comment/761688/

Discussion: Question on Chemo: How often? At Mayo or locally administered?

Support Group: Pancreatic Cancer

Posted: Oct 15, 2022

Still waiting to hear about final approval for my trial, and hope to get started soon....

https://connect.mayoclinic.org/comment/1355940/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Jul 25 9:15am

just be careful re the CA 19-9 test. I have stage 4 pancreatic cancer and the...

https://connect.mayoclinic.org/comment/973078/

Discussion: Type of Tests Required and Recommended for Pancreatic Cancer

Support Group: Pancreatic Cancer

Posted: Dec 1, 2023

His CA 19-9 was over 23,000. We meet with the Oncologist next week. So unsure of...

https://connect.mayoclinic.org/comment/785629/

Discussion: Treatment options for pancreatic cancer stage 4?

Support Group: Pancreatic Cancer

Posted: Dec 16, 2022

My husband continues to progress on this. He did 3 times a month for 13 months-39...

https://connect.mayoclinic.org/comment/909397/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Aug 8, 2023

In my case … the scans showed the pancreas to be clear but Mets in the...

https://connect.mayoclinic.org/comment/925151/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Sep 6, 2023

Hi Colleen. The post was for my brother. He is having his fifth cycle of folfirinox...

https://connect.mayoclinic.org/comment/913083/

Discussion: Anyone had pancreatic cancer mets to lymph nodes only?

Support Group: Pancreatic Cancer

Posted: Aug 14, 2023

I did 2 rounds with Folfirinox which resulted in rising CA19 and tumor growth. Switched to...

https://connect.mayoclinic.org/comment/1036629/

Discussion: Change of Chemo

Support Group: Pancreatic Cancer

Posted: Mar 19, 2024

I was just scheduled for surgery 4/14 for a distal pancreatectomy. They began and found another...

https://connect.mayoclinic.org/comment/852371/

Discussion: Signatera testing: Has anyone had this done?

Support Group: Pancreatic Cancer

Posted: May 1, 2023

Yes. Chemotherapy until tumors shrunk (14rounds). Liver tumors shrunk together so could be embolized. Months later...

https://connect.mayoclinic.org/comment/834732/

Discussion: Surgery locations

Support Group: Pancreatic Cancer

Posted: Mar 30, 2023

I was on a supplement for pandemic enzymes, company is Megeagetics. My oncologist was against it...

https://connect.mayoclinic.org/comment/896499/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Jul 15, 2023

My husband was CA 19-9 of 2500, which went up to 4200 after the first month...

https://connect.mayoclinic.org/comment/883178/

Discussion: What were your tumor marker results at time of stage 4 diagnosis?

Support Group: Pancreatic Cancer

Posted: Jun 22, 2023

I have recently diagnosed advanced neuroendocrine pancreatic cancer (mass in tail, locally spread and mets to...

https://connect.mayoclinic.org/comment/804574/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Jan 31, 2023

My pancreatic cancer metastasized to my peritoneal lining. I just had my 7th round of chemo...

https://connect.mayoclinic.org/comment/1339466/

Discussion: Anyone in Clinical trial for MEK Inhibitor IMM-1-104. NCT05585320?

Support Group: Pancreatic Cancer

Posted: Jul 2 4:33am

deec2, I am assuming from your specificity of size and locations that your husband has had...

https://connect.mayoclinic.org/comment/785625/

Discussion: Treatment options for pancreatic cancer stage 4?

Support Group: Pancreatic Cancer

Posted: Dec 16, 2022

For our example, these numbers are useless as predictors. My spouse had a high of 80...

https://connect.mayoclinic.org/comment/911572/

Discussion: CEA and CA19-9 Results as Predictors of Treatment Outcome

Support Group: Pancreatic Cancer

Posted: Aug 12, 2023

I had 44 treatments and stopped Jan 2024 through April 2024. My CA19-9 started going up...

https://connect.mayoclinic.org/comment/1267272/

Discussion: Any successful experiences with GemAbrax after awful side effects?

Support Group: Pancreatic Cancer

Posted: Mar 26 11:42am

I had whipple surgery in January 2024 with clear margins. My surgeon had me do 3...

https://connect.mayoclinic.org/comment/1317827/

Discussion: I'm back: increasing CA19-9 was accurate indicator of recurrence.

Support Group: Pancreatic Cancer

Posted: Jun 1 9:55am

My CA 19 recently came back at 1277. I have had a PET scan and CT...

https://connect.mayoclinic.org/comment/979576/

Discussion: Is it possible to have very high CEA and CA19-9 without cancer?

Support Group: Pancreatic Cancer

Posted: Dec 13, 2023

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