Pancreatic Cancer Support Group

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Comments (688)

I had a whipple and then recurrence at surgical bed - had SBRT which worked but...

https://connect.mayoclinic.org/comment/1315562/

Discussion: I'm back: increasing CA19-9 was accurate indicator of recurrence.

Support Group: Pancreatic Cancer

Posted: May 29 9:28am

Hello @nogginquest, As it's been a little over a month since you last posted, I wanted...

https://connect.mayoclinic.org/comment/166032/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Nov 7, 2018

My platelets have dropped recently ,also on Folfurinox.Not too low to stop chemo though.I was wondering...

https://connect.mayoclinic.org/comment/869684/

Discussion: Low Platelets: Anyone else go through this?

Support Group: Pancreatic Cancer

Posted: May 31, 2023

I am at UCI so yes a research institution and my doctor deals mostly with clinical...

https://connect.mayoclinic.org/comment/886045/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 27, 2023

So what Clinical trail are you on? You put PI but what is this? I am...

https://connect.mayoclinic.org/comment/1253358/

Discussion: Fear pancreatic cancer oncologist may discontinue care

Support Group: Pancreatic Cancer

Posted: Mar 8 2:26pm

I just started this Clinical trial 02/02/2024. So I am on Herceptin and Niraparib. So far...

https://connect.mayoclinic.org/comment/1020941/

Discussion: Anyone been on a clinical trial of Immunotherapy and Niraparib?

Support Group: Pancreatic Cancer

Posted: Feb 23, 2024

You are amazing. I will keep your persistence in mind as I make my way along...

https://connect.mayoclinic.org/comment/814125/

Discussion: Pancreatic Cancer Recurrence after Whipple

Support Group: Pancreatic Cancer

Posted: Feb 19, 2023

Insurance is very important when you're on a clinical trial. The company pays for their drug,...

https://connect.mayoclinic.org/comment/1215758/

Discussion: Obstacles to clinical trials

Support Group: Pancreatic Cancer

Posted: Jan 18 1:29pm

Hi i am still hanging on and getting ready to start a clinical trial. Its a...

https://connect.mayoclinic.org/comment/676385/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Jan 30, 2022

We use SBRT frequently for our resectable PDAC patients. SBRT in the setting of metastatic is...

https://connect.mayoclinic.org/comment/1315823/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 1:03pm

My greatest concern is whether to “use the radiation card now” or hold off as long...

https://connect.mayoclinic.org/comment/1092253/

Discussion: Questions about SBRT radiation therapy targeting liver mets

Support Group: Pancreatic Cancer

Posted: Jun 23, 2024

@bradthompson88 it looks like you are faring through this pretty well. I'm always curious when others...

https://connect.mayoclinic.org/comment/1343478/

Discussion: Dad getting diagnosed.

Support Group: Pancreatic Cancer

Posted: Jul 8 4:38am

Yes. I ditto what all have said. Resistance to drugs happens differently for all of us...

https://connect.mayoclinic.org/comment/1129773/

Discussion: CA19-9 rise while on maintenance chemo

Support Group: Pancreatic Cancer

Posted: Aug 24, 2024

This is likely not helpful due to how rare the disease is, but in the unlikely...

https://connect.mayoclinic.org/comment/1116816/

Discussion: Anyone with BRCA 2 mutation taking Olaparib?

Support Group: Pancreatic Cancer

Posted: Aug 3, 2024

Thanks to all that have replied. I suppose a PET scan would get to the bottom...

https://connect.mayoclinic.org/comment/1173158/

Discussion: Has anyone had lung metastases?

Support Group: Pancreatic Cancer

Posted: Nov 14, 2024

I went on a clinical trial specifically for my rare genotype and did well for 2...

https://connect.mayoclinic.org/comment/680730/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 14, 2022

If I may ask, how is this different from SBRT? SBRT has been recommended S a...

https://connect.mayoclinic.org/comment/1114969/

Discussion: Options for unresectable tumor with SMV involvement

Support Group: Pancreatic Cancer

Posted: Jul 31, 2024

I have lost the thread that mentioned Facebook pages with groups who are in the clinical...

https://connect.mayoclinic.org/comment/1260297/

Discussion: Anyone familiar with the clinical trial RMC-6236? Or how to enroll?

Support Group: Pancreatic Cancer

Posted: Mar 17 11:47am

@56pan, I hope you saw the helpful post from @stageivsurvivor. Congrats on being accepted into the...

https://connect.mayoclinic.org/comment/1062865/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

I was on the folfirnox but it wasn't working.I am now on a clinical trial at...

https://connect.mayoclinic.org/comment/981496/

Discussion: Tumor can’t be removed: What are chances of survival now?

Support Group: Pancreatic Cancer

Posted: Dec 16, 2023

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