Pancreatic Cancer Support Group

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Comments (509)

@mcantr I also am dependent on Creon. What dose is your son on? My Creon is...

https://connect.mayoclinic.org/comment/236334/

Discussion: Total Pancreatectomy: What can I expect?

Support Group: Digestive Health

Posted: Dec 31, 2018

Not sure who the they is you are talking about. There is prescription medication to treat...

https://connect.mayoclinic.org/comment/1203383/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 3 8:21pm

Have you tried purchasing Creon from a Canadian Phamacy? I purchase 300 units for about $460.

https://connect.mayoclinic.org/comment/978708/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Dec 11, 2023

Here is the direct link to Abbvie’s patient support for obtaining Creon. The Abbvie Foundation provides...

https://connect.mayoclinic.org/comment/734369/

Discussion: How can I help my husband face the possibility he may not survive?

Support Group: Pancreatic Cancer

Posted: Aug 5, 2022

My husband has been taking creon since last June. We always assumed the diarrhea was due...

https://connect.mayoclinic.org/comment/208588/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

@beachdog I know someone who uses this product. He uses it because of the cost of...

https://connect.mayoclinic.org/comment/208594/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

Any reason why you stopped taking enzymes I was taking Creon but it wasn’t working for...

https://connect.mayoclinic.org/comment/1181973/

Discussion: Anyone tried over the counter enzymes to help digest fat post whipple?

Support Group: Pancreatic Cancer

Posted: Nov 29, 2024

The blurred vision showed my pupil is somewhat dilated by the Creon. Anyone else has this...

https://connect.mayoclinic.org/comment/948589/

Discussion: Possible Creon side effects: What helped you?

Support Group: Pancreatic Cancer

Posted: Oct 16, 2023

Will do. Also she has been on Creon since surgery in 2015 and has been very...

https://connect.mayoclinic.org/comment/662909/

Discussion: ONIVYDE irinotecan liposome

Support Group: Pancreatic Cancer

Posted: Dec 16, 2021

I get my Creon through Abbvie Assist free, sent to my home each month. Maybe you...

https://connect.mayoclinic.org/comment/1004592/

Discussion: Is GOODRX trustworthy?

Support Group: Pancreatic Cancer

Posted: Jan 27, 2024

Welcome, @jeffp. you sound like you're building a great support team and resources around you to...

https://connect.mayoclinic.org/comment/1174110/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Nov 15, 2024

The income eligibility for obtaining Creon through the Abbvie patient assistance is a tiered system based...

https://connect.mayoclinic.org/comment/947844/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Oct 15, 2023

I had Whipple surgery in Feb 2021, followed by chemo (stage 3 pancreatic cancer). I usually...

https://connect.mayoclinic.org/comment/786057/

Discussion: Whipple procedure and follow up chemo

Support Group: Pancreatic Cancer

Posted: Dec 18, 2022

I also had a problem getting Creon (out of stock, with no date to replenish). I...

https://connect.mayoclinic.org/comment/939183/

Discussion: Can’t seem to locate Creon - 36000 units

Support Group: Pancreatic Cancer

Posted: Sep 30, 2023

Creon has become my best friend although it took a few step ups to get the...

https://connect.mayoclinic.org/comment/803938/

Discussion: New Diagnosis of EPI, taking Creon: Sad and scared

Support Group: Digestive Health

Posted: Jan 30, 2023

Check with the manufacturer for Creon. They have a program that may help you with cost....

https://connect.mayoclinic.org/comment/817503/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Feb 26, 2023

I'm not sure how that would work, but thank you for the suggestion. Currently, I am...

https://connect.mayoclinic.org/comment/978829/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Dec 11, 2023

Creon played havoc with me. I was told to take 36000 units two tablets per meal...

https://connect.mayoclinic.org/comment/971718/

Discussion: Pancreas and spleen removal: how is life afterwards?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

They call it FOLFIRINOX at 100% to start and see if he tolerates it. He also...

https://connect.mayoclinic.org/comment/996806/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 13, 2024

Love hearing the success stories! And also was excited when 2025 began to take advantage of...

https://connect.mayoclinic.org/comment/1269965/

Discussion: CREON..Pancreatic enzyme supplement cost

Support Group: Pancreatic Cancer

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