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Public Support Group 985 total results
Comments (897)
Hi, I did 12 rounds of Folferinox, one week on and following week off, for my...
https://connect.mayoclinic.org/comment/873512/
In hindsight, I'm downgrading the Folfirinox experience to a bit worse. I had forgotten about the...
https://connect.mayoclinic.org/comment/875762/
I hope all is well with your husband. Waiting to get testing and results is so...
https://connect.mayoclinic.org/comment/866150/
I am in a similar situation. I got the biopsy result on Feb. 2 of this...
https://connect.mayoclinic.org/comment/859888/
@joanalc , I'm not a doctor, so I couldn't tell you if that's appropriate or excessive,...
https://connect.mayoclinic.org/comment/868966/
When chemo is first started, the tumor burden is large. That means there is malignancy with...
https://connect.mayoclinic.org/comment/804761/
Having an adenocarcinoma and not being a secretor of CA19-9 is known and documented. Approximately 10%...
https://connect.mayoclinic.org/comment/925574/
ashley2235 - Thanks so much for your reply. Wow! Good for you to have such a...
https://connect.mayoclinic.org/comment/903965/
2nd opinion! MRI! Bloodwork! (CA19-9, CEA, ctDNA) It doesn't necessarily have to be Mayo, but someplace...
https://connect.mayoclinic.org/comment/913736/
Agree with getting to an excellent center of excellence. If the genetic testing isn't done ahead...
https://connect.mayoclinic.org/comment/927046/
More answers might start to roll in after dark. I'm not a doctor, so I'm hesitant...
https://connect.mayoclinic.org/comment/854439/
@pattyclaire , The two genetic tests I'm aware of are 1) Invitae, which detects "germline" mutations...
https://connect.mayoclinic.org/comment/863923/
The decrease in CA19-9 likely decreased as a result of the clearance of the blockage that...
https://connect.mayoclinic.org/comment/936969/
Thank you for all the info. MSK felt the new spot on my liver is too...
https://connect.mayoclinic.org/comment/953960/
If your CA19-9 is climbing, there is likely something going on. A scan may be able...
https://connect.mayoclinic.org/comment/949041/
I couldn't tell you if it meets the legal criteria for malpractice, but in 20/20 hindsight,...
https://connect.mayoclinic.org/comment/931070/
Woohoo! Congrats again, and thank you so much for sharing. I'm surprised they switched the chemo...
https://connect.mayoclinic.org/comment/941088/
Thank you. I know there are so many variables to the CA19-9, but seeing a jump...
https://connect.mayoclinic.org/comment/922906/
Post-Whipple and w/o treatment, my CA19-9 went from 12 to 33 to 77 to 277 (at...
https://connect.mayoclinic.org/comment/959013/
It's somewhat academic, but you might be interested to know and document exactly where they staged...
https://connect.mayoclinic.org/comment/961010/
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