Pancreatic Cancer Support Group

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Comments (1,135)

@wpprescott Hello! Would you mind sharing what stable dosage of QTX-3034 you are on? My wife...

https://connect.mayoclinic.org/comment/1406024/

Discussion: Negative Turn in a Long Journey

Support Group: Pancreatic Cancer

Posted: Oct 1, 2025

I was diagnosed in 2012 with stage IV acinar cell carcinoma. This type by itself does...

https://connect.mayoclinic.org/comment/1017488/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 17, 2024

jk77. Thank you for the feedback. 17 down and 11 to go go. The end is...

https://connect.mayoclinic.org/comment/986009/

Discussion: Your experience with IMRT (radiation) + capecitebine (oral chemo)?

Support Group: Pancreatic Cancer

Posted: Dec 24, 2023

I'm glad he's healed up and getting a more tolerable treatment. Make sure to take a...

https://connect.mayoclinic.org/comment/937810/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Sep 27, 2023

My husband had no symptoms from his cancer. He actually went to the urgent care regarding...

https://connect.mayoclinic.org/comment/1103115/

Discussion: Diagnosed with Stage 4 Pancreatic Tail Cancer: No Symptoms Yet

Support Group: Pancreatic Cancer

Posted: Jul 10, 2024

@denip: Adding my two cents. I had 8 rounds of Folfirinox, and for the 1st 4...

https://connect.mayoclinic.org/comment/956644/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Oct 31, 2023

The manufacturer (Bristol Myers Squibb / "BMS") has a program (at least in the USA) that...

https://connect.mayoclinic.org/comment/938094/

Discussion: Cancer drug cost in Ontario, Canada

Support Group: Pancreatic Cancer

Posted: Sep 28, 2023

I was diagnosed with stage 3 pancreatic cancer in jan 2021. I have had Whipple surgery...

https://connect.mayoclinic.org/comment/852944/

Discussion: How do you deal with Chronic Diarrhea and Pancreatic Cancer treatment?

Support Group: Pancreatic Cancer

Posted: May 2, 2023

I have a germline ATM mutation and a somatic KRAS G12D mutation. I had a ho-hum...

https://connect.mayoclinic.org/comment/1368417/

Discussion: KRASG12D mutation and Gem/Abr

Support Group: Pancreatic Cancer

Posted: Aug 11, 2025

The oncologist knows and has recommended that my husband sees a psychiatrist. My husband decided he...

https://connect.mayoclinic.org/comment/1175248/

Discussion: Has anyone been able to have surgery for tumor in the tail?

Support Group: Pancreatic Cancer

Posted: Nov 18, 2024

Has anyone suffered from a sickly sweet taste after folfirinox treatment? In the days following my...

https://connect.mayoclinic.org/comment/940142/

Discussion: Began folfirinox treatment - have a few questions

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

I am getting to the end of my Folfirinox regimen. 3 more infusions to go. Things...

https://connect.mayoclinic.org/comment/931260/

Discussion: Began folfirinox treatment - have a few questions

Support Group: Pancreatic Cancer

Posted: Sep 17, 2023

Diagnosed in May of 2022, I have inoperable stage IV (tumor is in tail and involves...

https://connect.mayoclinic.org/comment/833212/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Mar 28, 2023

Hello Colleen, thank you so much for responding and for your info, I will definitely make...

https://connect.mayoclinic.org/comment/779000/

Discussion: Radioembolization for pancreatic cancer metastasis to liver?

Support Group: Pancreatic Cancer

Posted: Nov 30, 2022

@dianegil Hi, My husband Mike was diagnosed in August of 2023. Tumor found incidentally, it was...

https://connect.mayoclinic.org/comment/1427713/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 31, 2025

Hi, the ongoing clinical trial of the RAS inhibitor RMC-6236 includes a requirement for participants to...

https://connect.mayoclinic.org/comment/1432082/

Discussion: Help with clinical trials (RMC-6236 and it's variations)

Support Group: Pancreatic Cancer

Posted: Nov 6, 2025

I had my final diagnosis on a Friday afternoon, signed the documents and then found out...

https://connect.mayoclinic.org/comment/1183108/

Discussion: Recent diagnosis: Have questions about treatment options?

Support Group: Pancreatic Cancer

Posted: Dec 2, 2024

@waltsocal , It's always good to "get everything in order" but not time to give up...

https://connect.mayoclinic.org/comment/995127/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jan 10, 2024

Sitting in the chemo chair getting GAC #30 as I type. Just got my CA19-9 result...

https://connect.mayoclinic.org/comment/1037817/

Discussion: CA 19-9, sensitivity and responsiveness to treatment

Support Group: Pancreatic Cancer

Posted: Mar 21, 2024

Thank you so much for your thorough response and good thoughts! I was not aware of...

https://connect.mayoclinic.org/comment/922875/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Sep 2, 2023

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