Pancreatic Cancer Support Group

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Comments (1,170)

For background, I had Whipple February 9th 2024, then 12 rounds of Folfirinox during which my...

https://connect.mayoclinic.org/comment/1306623/

Discussion: Blood Clots from Chemo?

Support Group: Pancreatic Cancer

Posted: May 18 7:29am

My cancer is stage IV in the tail & is not operable. The not operable part...

https://connect.mayoclinic.org/comment/1133852/

Discussion: Has anyone been able to have surgery for tumor in the tail?

Support Group: Pancreatic Cancer

Posted: Aug 31, 2024

@priscwy this is a great question especially to me as it was basically the first question...

https://connect.mayoclinic.org/comment/1324179/

Discussion: Is CA 19.9 at 40, a cause for concern?

Support Group: Pancreatic Cancer

Posted: Jun 10 9:37am

I'm very glad to hear your effects from Naliri are minimal. Is it lowering your ca19-9....

https://connect.mayoclinic.org/comment/1332489/

Discussion: Anyone familiar with the clinical trial RMC-6236? Or how to enroll?

Support Group: Pancreatic Cancer

Posted: Jun 22 8:44am

I don’t know how high your husbands CA19-9 went but I have just seen the effect...

https://connect.mayoclinic.org/comment/1246556/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Feb 27 10:44am

Plum1 How are you doing after your trial of 6236? Are your CA19-9 numbers still going...

https://connect.mayoclinic.org/comment/1298906/

Discussion: Anyone participate in RMC9805 and RMC6236 clinical trials?

Support Group: Pancreatic Cancer

Posted: May 7 9:51am

I live with a lot of anxiety and fear with this IPMN. I have had nausea,...

https://connect.mayoclinic.org/comment/1278971/

Discussion: Anyone have/had BD-IPMN (branch duct intraductal papillary mucinous)?

Support Group: Pancreatic Cancer

Posted: Apr 10 9:18pm

I’m going to ask my dr about resection. How long was that surgery and recovery period?...

https://connect.mayoclinic.org/comment/1301032/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 10 10:18am

I have been doing Gemzar every other week since beginning it last July with a break...

https://connect.mayoclinic.org/comment/1076276/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 28, 2024

NED is wonderful to hear but in my experience I would be asking second opinions on...

https://connect.mayoclinic.org/comment/1282299/

Discussion: NED: the highs and lows of No Evidence of Disease

Support Group: Pancreatic Cancer

Posted: Apr 15 8:14am

Fantastic news gamaryanne and I’m praying for many more decreases in CA19-9 for you and have...

https://connect.mayoclinic.org/comment/1285877/

Discussion: NED: the highs and lows of No Evidence of Disease

Support Group: Pancreatic Cancer

Posted: Apr 20 8:23am

Hey Happy Jack! You made me laugh and I love your sense of humor my man....

https://connect.mayoclinic.org/comment/1206479/

Discussion: Anyone have a dilated pancreatic duct? Worried.

Support Group: Pancreatic Cancer

Posted: Jan 8 7:15am

I took a red light ride to the hospital when I woke up one morning and...

https://connect.mayoclinic.org/comment/1253568/

Discussion: Rising CA19-9 numbers but scans ok

Support Group: Pancreatic Cancer

Posted: Mar 8 9:58pm

I only had a few diet sodas my senior year of high school, haven’t touched them...

https://connect.mayoclinic.org/comment/1217609/

Discussion: For those with pancan, did you drink lots of Diet Coke or Coke?

Support Group: Pancreatic Cancer

Posted: Jan 20 3:57pm

You are so welcome. I was diagnosed as stage 4 end of June 2022. I was...

https://connect.mayoclinic.org/comment/1264114/

Discussion: What were your symptoms of pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Mar 22 11:40am

My CA19-9 just creeps up little by little. 33, 51, 55, and now 82. I’m on...

https://connect.mayoclinic.org/comment/1258820/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 15 4:47pm

I think sometimes there is caution by oncologists as CA19-9 can sometimes increase due to inflammation...

https://connect.mayoclinic.org/comment/1253339/

Discussion: Rising CA19-9 numbers but scans ok

Support Group: Pancreatic Cancer

Posted: Mar 8 1:54pm

My husband's scans also clear the last 4 times (done every 2 months) but markers climbed...

https://connect.mayoclinic.org/comment/1259944/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 16 10:28pm

I’m so sorry @dalegantous to hear your news. Based on your CA19-9 results it sounds like...

https://connect.mayoclinic.org/comment/1310755/

Discussion: Blood Clots from Chemo?

Support Group: Pancreatic Cancer

Posted: May 22 10:27pm

The surgeon suspected recurrence at surgical site 6 weeks ago. At that time, he suggested sending...

https://connect.mayoclinic.org/comment/1319797/

Discussion: Total pancreatectomy challenges

Support Group: Pancreatic Cancer

Posted: Jun 3 9:52pm

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