Pancreatic Cancer Support Group

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Comments (865)

Which ctDNA tests is everyone using? FWIW the Grail/Galleri cfDNA (cell-free DNA) blood test claims to...

https://connect.mayoclinic.org/comment/852227/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: Apr 30, 2023

@robee , that is our decision as well, and our oncologist agrees. As long as the...

https://connect.mayoclinic.org/comment/999915/

Discussion: Chemo break: how quickly do tumours grow back?

Support Group: Pancreatic Cancer

Posted: Jan 19 8:00am

We are actually located in Northern Europe and unfortunately we don’t have centers of excellence here....

https://connect.mayoclinic.org/comment/975339/

Discussion: Ductal adenocarcinoma, colloid (mucinous) type

Support Group: Pancreatic Cancer

Posted: Dec 5, 2023

Of course it's incredibly upsetting to hear "Stage IV," but some people do have atypically good...

https://connect.mayoclinic.org/comment/971983/

Discussion: Where is best place to go for second opinion for stage 4 pancreatic?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2023

@gamaryanne I learned the term "TNT" for "Total Neoadjuvant Therapy" midway through my 12 pre-Whipple treatments...

https://connect.mayoclinic.org/comment/944291/

Discussion: Any thoughts on the mRNA vaccine trials for pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Oct 8, 2023

Hello, I just joined this blog and find it to be extremely helpful. I am have...

https://connect.mayoclinic.org/comment/955287/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 28, 2023

I was diagnosed as stage 4 in july of 2022 with a ATM gene mutation.Not in...

https://connect.mayoclinic.org/comment/833758/

Discussion: Treatment options for pancreatic cancer stage 4?

Support Group: Pancreatic Cancer

Posted: Mar 29, 2023

@bobsrdoch , sitting at 43.7 would cause me a little nervousness too, but the real issue...

https://connect.mayoclinic.org/comment/896513/

Discussion: N.E.D. And other things that go bump in the night

Support Group: Pancreatic Cancer

Posted: Jul 16, 2023

I have the (g)BRCA2 mutation and was the first patient accepted into the RucaPANC clinical trial...

https://connect.mayoclinic.org/comment/921289/

Discussion: Questions about maintenance chemotherapy

Support Group: Pancreatic Cancer

Posted: Aug 30, 2023

Regarding Abraxane: If you run into an insurance issue with it, the manufacturer (Bristol Meyers Squibb)...

https://connect.mayoclinic.org/comment/854026/

Discussion: My dad (76) was diagnosed with stage iv pancreatic cancer

Support Group: Pancreatic Cancer

Posted: May 3, 2023

robee - Beginning late May of this year, following diagnosis of adenocarcinoma at the head of...

https://connect.mayoclinic.org/comment/954166/

Discussion: Has anyone had Folfirinox stop working and had to start a new chemo dr

Support Group: Pancreatic Cancer

Posted: Oct 26, 2023

I so appreciate your very thoughtful response. The docs say that at the tumor at 3.5...

https://connect.mayoclinic.org/comment/939659/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

I appreciate everyone's concern about the Caris testing. Here's my take on it: I am not...

https://connect.mayoclinic.org/comment/853968/

Discussion: Not locally advanced--it's actually stage 4

Support Group: Pancreatic Cancer

Posted: May 3, 2023

Thanks for asking. The day after I last made a comment on this thread I was...

https://connect.mayoclinic.org/comment/910450/

Discussion: Changing chemo regimen after 4 cycles of Folfirinox?

Support Group: Pancreatic Cancer

Posted: Aug 10, 2023

Hi. Disclaimer: I'm one of the less-informed persons on this part of the Mayo site, and...

https://connect.mayoclinic.org/comment/956596/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Oct 30, 2023

I was diagnosed with pancreatic cancer on Aug. 27, (my birthday, mind you), of 2023. 6.1...

https://connect.mayoclinic.org/comment/1013917/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Feb 11 5:04pm

Hello! My name is Dale, I was diagnosed with pancreatic cancer in December 2023. My cancer...

https://connect.mayoclinic.org/comment/1026603/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 3 9:11am

You are not delusional. You have to have hope. I live in Ohio as well and...

https://connect.mayoclinic.org/comment/770179/

Discussion: Chemo not working. What to do next??? Please help!!!

Support Group: Pancreatic Cancer

Posted: Nov 7, 2022

I also think you're counting right (with Day 1 being the first day chemo is administered)....

https://connect.mayoclinic.org/comment/931038/

Discussion: Began folfirinox treatment - have a few questions

Support Group: Pancreatic Cancer

Posted: Sep 16, 2023

@naeimalkfouf, hello! I apologize for not speaking or reading Arabic, so I am answering in English....

https://connect.mayoclinic.org/comment/1008045/

Discussion: هل يمكن علاج سرطان البنكرياس؟ Can pancreatic cancer be cured?

Support Group: Pancreatic Cancer

Posted: Feb 1 8:20pm

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