Pancreatic Cancer Support Group

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Comments (677)

Most patients don’t understand the significance of staging and assume the worst when told it is...

https://connect.mayoclinic.org/comment/721146/

Discussion: What chemo did you have with stage 4 pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Jun 26, 2022

Coming from a background in cancer, immunology and cancer stem cell research, a ten year survivor...

https://connect.mayoclinic.org/comment/717266/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 13, 2022

Yes, because of a BRCA mutation I am able to have this clinical trial. I can...

https://connect.mayoclinic.org/comment/686406/

Discussion: Anyone had Pancreatic Cancer in the head of the pancreas?

Support Group: Pancreatic Cancer

Posted: Mar 4, 2022

We, I, am here to support you and your wife in any way we can. I...

https://connect.mayoclinic.org/comment/678766/

Discussion: Cancer: Nothing about this is normal.

Support Group: Cancer: Managing Symptoms

Posted: Feb 8, 2022

I did take Creon, up to 3*4 per meal but as I improved, I find that...

https://connect.mayoclinic.org/comment/667454/

Discussion: Post Whipple: how long before your stomach "woke up"?

Support Group: Pancreatic Cancer

Posted: Jan 3, 2022

@drewgrebe I had radiation treatment 21 this morning. Four more to go. Mostly I am feeling...

https://connect.mayoclinic.org/comment/285189/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 16, 2020

Hello-we will be meeting with Dr. Mahipal in person tomorrow. My wife and I are very...

https://connect.mayoclinic.org/comment/285186/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 8, 2020

Hello @nogginquest So nice to hear from you. What an adventure traveling 6,000 miles! I'm glad...

https://connect.mayoclinic.org/comment/166007/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Sep 13, 2018

thanks for your encouragement I also had a Dr./resident that the first time he looked at...

https://connect.mayoclinic.org/comment/165880/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Dec 3, 2017

I will be at Mayo Rochester next week for all my pre-screening appts. Mayo had recommended...

https://connect.mayoclinic.org/comment/1310676/

Discussion: Anyone in Clinical trial for MEK Inhibitor IMM-1-104. NCT05585320?

Support Group: Pancreatic Cancer

Posted: May 22 7:00pm

Another type of targeted drug targets specific proteins that are on the surface of cancer cells....

https://connect.mayoclinic.org/comment/1302550/

Discussion: Which Mutations can be targeted with treatment for pancreatic ca?

Support Group: Pancreatic Cancer

Posted: May 12 12:55pm

Please read my response to Annette who posted something similar to you. Get a SECOND opinion!!...

https://connect.mayoclinic.org/comment/1220568/

Discussion: Recently Diagnosed with Stage IV Adenocarcinoma

Support Group: Pancreatic Cancer

Posted: Jan 24 11:09am

I was diagnosed with Pancreatic Acinar Cell Carcinoma in June 2012 with the tumor 4cmx3cmx3cm on...

https://connect.mayoclinic.org/comment/1059508/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 30, 2024

Thank you for this posting; I plan to start the Gem/Abrax and would LOVE to gain...

https://connect.mayoclinic.org/comment/1300994/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 10 9:31am

How are you doing? Are you back on chemo or did you find another clinical trial?

https://connect.mayoclinic.org/comment/1297892/

Discussion: Any successful experiences with GemAbrax after awful side effects?

Support Group: Pancreatic Cancer

Posted: May 6 2:04am

Start with clinical trials.gov and search for pancreatic cancer. I have the G12D mutation and am...

https://connect.mayoclinic.org/comment/1246727/

Discussion: What's next?

Support Group: Pancreatic Cancer

Posted: Feb 27 2:02pm

@carrie40 Did the mets ever show up on a PET or CT? I don’t make ca19-9....

https://connect.mayoclinic.org/comment/1297597/

Discussion: Recurrence after Whipple, Folfirinox and radiation (SBRT)

Support Group: Pancreatic Cancer

Posted: May 5 3:35pm

If a stage-4 patient has already been told, "There is nothing else I can do" by...

https://connect.mayoclinic.org/comment/1297680/

Discussion: Stage 4 Pancreatic cancer and supporting my son's choices

Support Group: Pancreatic Cancer

Posted: May 5 4:53pm

I had 12 bi-weekly mFolfirinox over 6 months between Oct 2021 and May 2022, Whipple in...

https://connect.mayoclinic.org/comment/1287627/

Discussion: Celebrating Life after Pancreatic Cancer!

Support Group: Pancreatic Cancer

Posted: Apr 22 2:40pm

My trial in Houston was a stem cell infusion, just a single, one-time treatment. It required...

https://connect.mayoclinic.org/comment/1288513/

Discussion: Celebrating Life after Pancreatic Cancer!

Support Group: Pancreatic Cancer

Posted: Apr 23 10:03pm

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