Pancreatic Cancer: Discussions | Page 25

gamaryanne, Can you provide a link to this clinical trial - and it's formal name?

https://connect.mayoclinic.org/comment/902961/

Discussion: Has anyone used or heard of high dosage Vitamin C IV to treat cancer?

Support Group: Pancreatic Cancer

Posted: Jul 27, 2023

Additionally there is a clinical trial using hydroxychloroquin with high doses of vitamin in D for...

https://connect.mayoclinic.org/comment/902322/

Discussion: Has anyone used or heard of high dosage Vitamin C IV to treat cancer?

Support Group: Pancreatic Cancer

Posted: Jul 26, 2023

@stageivsurvivor what clinical trial were you in and did it make it as a treatment option...

https://connect.mayoclinic.org/comment/888404/

Discussion: Phase 1 Clinical Trial - GNX102

Support Group: Pancreatic Cancer

Posted: Jul 1, 2023

Thank you. I treat locally in the twin cities clinic and visit with mayo with scans....

https://connect.mayoclinic.org/comment/886959/

Discussion: What were your tumor marker results at time of stage 4 diagnosis?

Support Group: Pancreatic Cancer

Posted: Jun 29, 2023

I advocated for aggressive chemotherapy of Folfirinox. This was the formulation used from 2011-2018…not the (m)Folfirinox...

https://connect.mayoclinic.org/comment/882727/

Discussion: Clinical trial (third line treatment) lurbinectedin and irinotecan

Support Group: Pancreatic Cancer

Posted: Jun 21, 2023

To answer the 2 questions -- I have been offered a clinical trial but I do...

https://connect.mayoclinic.org/comment/870854/

Discussion: Nothing left to offer in the way of therapy?

Support Group: Pancreatic Cancer

Posted: Jun 2, 2023

On June 12, 2012 I had my first CT scan which imaged a tumor in the...

https://connect.mayoclinic.org/comment/868035/

Discussion: Giving hope: 5 year celebration pancreatic cancer-free

Support Group: Pancreatic Cancer

Posted: May 28, 2023

What gene mutation did you have and what drug did you take in your clinical trial?...

https://connect.mayoclinic.org/comment/867773/

Discussion: How to find Clinical Trials for Pancreatic Cancer?

Support Group: Pancreatic Cancer

Posted: May 27, 2023

NED is the term used that replaces “in remission” to better reflect what is going on....

https://connect.mayoclinic.org/comment/844457/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: Apr 17, 2023

When I was treated for metastatic disease to my liver from 2012-2014, I was aware that...

https://connect.mayoclinic.org/comment/834561/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: Mar 30, 2023

I have been having my ctDNA measured since 2014 when I entered a clinical trial and...

https://connect.mayoclinic.org/comment/834522/

Discussion: Signatera testing: Has anyone had this done?

Support Group: Pancreatic Cancer

Posted: Mar 30, 2023

No, mets never showed up on the PET or previous CTs. The latest CT (4/24/25) showed...

https://connect.mayoclinic.org/comment/1297782/

Discussion: Recurrence after Whipple, Folfirinox and radiation (SBRT)

Support Group: Pancreatic Cancer

Posted: May 5 7:50pm

NED is wonderful to hear but in my experience I would be asking second opinions on...

https://connect.mayoclinic.org/comment/1282299/

Discussion: NED: the highs and lows of No Evidence of Disease

Support Group: Pancreatic Cancer

Posted: Apr 15 8:14am

Regarding weight loss, was a fecal elastase-1 test ever ordered to measure the output of digestive...

https://connect.mayoclinic.org/comment/1301700/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 11 10:07am

@gamaryanne The mutated gene is the BRAF. (BRAF V600E). My wife has a rare form of...

https://connect.mayoclinic.org/comment/1299562/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: May 8 7:10am

Thank you @mimimmx for your response and sharing your experience. I am glad the treatment works...

https://connect.mayoclinic.org/comment/1207114/

Discussion: Anyone participate in RMC9805 and RMC6236 clinical trials?

Support Group: Pancreatic Cancer

Posted: Jan 8 7:21pm

Look for a clinical trial! It takes a lot of time to navigate through the complexities...

https://connect.mayoclinic.org/comment/1246559/

Discussion: What's next?

Support Group: Pancreatic Cancer

Posted: Feb 27 10:48am

@indyellen, I pulled your comment into its own discussion so that it could be posted simultaneously...

https://connect.mayoclinic.org/comment/1214960/

Discussion: Anyone had CAR-T therapy for solid tumors? (pancreatic cancer)

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17 12:25pm

I am sad to hear your story. My oncologist was the one who suggested looking outside...

https://connect.mayoclinic.org/comment/1253333/

Discussion: Fear pancreatic cancer oncologist may discontinue care

Support Group: Pancreatic Cancer

Posted: Mar 8 1:49pm

Would you kindly post which clinical trial this is? Maybe a link to the website or...

https://connect.mayoclinic.org/comment/1136301/

Discussion: How to find Clinical Trials for Pancreatic Cancer?

Support Group: Pancreatic Cancer

Posted: Sep 4, 2024

Pancreatic Cancer Support Group