Pancreatic Cancer Support Group

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Comments (682)

NED is wonderful to hear but in my experience I would be asking second opinions on...

https://connect.mayoclinic.org/comment/1282299/

Discussion: NED: the highs and lows of No Evidence of Disease

Support Group: Pancreatic Cancer

Posted: Apr 15 8:14am

Regarding weight loss, was a fecal elastase-1 test ever ordered to measure the output of digestive...

https://connect.mayoclinic.org/comment/1301700/

Discussion: CA19 increase, gaining weight and feeling better - Confused

Support Group: Pancreatic Cancer

Posted: May 11 10:07am

@gamaryanne The mutated gene is the BRAF. (BRAF V600E). My wife has a rare form of...

https://connect.mayoclinic.org/comment/1299562/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: May 8 7:10am

I am rooting for you to find a treatment program that will be effective in reducing...

https://connect.mayoclinic.org/comment/1303271/

Discussion: Celebrating Life after Pancreatic Cancer!

Support Group: Pancreatic Cancer

Posted: May 13 11:07am

Thank you @mimimmx for your response and sharing your experience. I am glad the treatment works...

https://connect.mayoclinic.org/comment/1207114/

Discussion: Anyone participate in RMC9805 and RMC6236 clinical trials?

Support Group: Pancreatic Cancer

Posted: Jan 8 7:21pm

Look for a clinical trial! It takes a lot of time to navigate through the complexities...

https://connect.mayoclinic.org/comment/1246559/

Discussion: What's next?

Support Group: Pancreatic Cancer

Posted: Feb 27 10:48am

@indyellen, I pulled your comment into its own discussion so that it could be posted simultaneously...

https://connect.mayoclinic.org/comment/1214960/

Discussion: Anyone had CAR-T therapy for solid tumors? (pancreatic cancer)

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17 12:25pm

I am sad to hear your story. My oncologist was the one who suggested looking outside...

https://connect.mayoclinic.org/comment/1253333/

Discussion: Fear pancreatic cancer oncologist may discontinue care

Support Group: Pancreatic Cancer

Posted: Mar 8 1:49pm

Would you kindly post which clinical trial this is? Maybe a link to the website or...

https://connect.mayoclinic.org/comment/1136301/

Discussion: How to find Clinical Trials for Pancreatic Cancer?

Support Group: Pancreatic Cancer

Posted: Sep 4, 2024

@aminaahmoody1 thank you for your encouragement, and no need to apologize for "venting." In all honesty...

https://connect.mayoclinic.org/comment/845306/

Discussion: Dilated pancreatic duct: Should I get a second opinion?

Support Group: Pancreatic Cancer

Posted: Apr 18, 2023

@frances007 Thank you for telling me your story, and I commend you for having so much...

https://connect.mayoclinic.org/comment/844993/

Discussion: Dilated pancreatic duct: Should I get a second opinion?

Support Group: Pancreatic Cancer

Posted: Apr 18, 2023

We use SBRT frequently for our resectable PDAC patients. SBRT in the setting of metastatic is...

https://connect.mayoclinic.org/comment/1315823/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 1:03pm

I had a whipple and then recurrence at surgical bed - had SBRT which worked but...

https://connect.mayoclinic.org/comment/1315562/

Discussion: I'm back: increasing CA19-9 was accurate indicator of recurrence.

Support Group: Pancreatic Cancer

Posted: May 29 9:28am

Thank you very much for sharing! Are you able to share what Clinical Trial you are...

https://connect.mayoclinic.org/comment/1176841/

Discussion: Anyone have experience with immunotherapy clinical trials?

Support Group: Pancreatic Cancer

Posted: Nov 20, 2024

@breemichelle26 How is your dad doing? Did you decide on which trial he will try? I’m...

https://connect.mayoclinic.org/comment/1169344/

Discussion: Pancreatic Cancer Peritoneal Metastasis

Support Group: Pancreatic Cancer

Posted: Nov 7, 2024

Have you considered going back on GC and adding abraxane? Abraxane is the really powerful one...

https://connect.mayoclinic.org/comment/1169327/

Discussion: Has anyone been able to have surgery for tumor in the tail?

Support Group: Pancreatic Cancer

Posted: Nov 7, 2024

Hi all, I had Whipple February 2024 with clear margins, 12 rounds of Folfirinox April to...

https://connect.mayoclinic.org/comment/1221052/

Discussion: Recurrence after Whipple, Folfirinox and radiation (SBRT)

Support Group: Pancreatic Cancer

Posted: Jan 25 7:28am

Thank you, @gamaryanne. I’ll get the biopsy results this week. I’m less than 1 mile from...

https://connect.mayoclinic.org/comment/1163348/

Discussion: Is there an early way to detect blood clots?

Support Group: Pancreatic Cancer

Posted: Oct 27, 2024

Oh my @mnewland99 ! So glad this was caught. I also had a nodule that has...

https://connect.mayoclinic.org/comment/1163313/

Discussion: Is there an early way to detect blood clots?

Support Group: Pancreatic Cancer

Posted: Oct 27, 2024

No cancer trial uses a placebo including phase III. That is considered unethical to deprive a...

https://connect.mayoclinic.org/comment/1138176/

Discussion: Clinical Trials: they are not designed only to be a “last resort”

Support Group: Pancreatic Cancer

Posted: Sep 8, 2024

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